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Would you do the same in my situation

5 replies

Pimpledimple · 13/02/2023 02:50

Worked all my life since I was even legally allowed as I helped family for extra money. I now have been diagnosed with a few illnesses that impacted me so much I had to leave my job end of last year. I originally planned to take a few weeks off see how I feel but it didn’t go to plan and I ended up even more unwell. Ive missed work a lot and since leaving my last job have been helping out my husband with his business as and when I feel up to it but he can only afford a small wage for himself at the moment. It’s a no pressure job but I’ve really not been able to do as much as I would like due to being so ill I do it to keep my active and in some easy work as I miss it. I tried to claim pip as I couldn’t do anything due to how I was but I got denied. I have some savings to tied me over for two years but had planned this for a deposit and luckily no accommodation costs at the moment but I feel a fraud not working at my age especially as I got denied pip they awarded me zero points. eventually I will need some money and don’t want to use all my savings. I’m in a lot of pain and exhaustion. So on a good day I can do work etc but I can’t be reliable. I can walk more than 200 meters when in pain to the toilet or the Sink but I can’t do it often so sit or lay down for long periods. I also think I found it hard as I had to describe my worst day but I felt a bit fraud like describing my worst day as sometimes I wake up and am able to do things. I really want to get a job and have looked into some but nothing is flexible and I can’t loose another job. My main symptom is fatigue but a pip form doesn’t really have questions for that. I’ve paid for 4 private doctors specialised therapies for my conditions every lotion potion and pill that may help just so I can have a quality of life.

OP posts:
TheSandgroper · 13/02/2023 03:25

I’m not in the uk so have little to say but my understanding from reading on here of other people’s experience is that you need to appeal the pip and get professional help to do so. Ask for your post to be moved to the Carers thread and someone will be better placed to help you. They have done it all before.

Best of luck.

Summer2424 · 13/02/2023 03:27

Hi @Pimpledimple you're not a fraud at all x
Take this time to focus on your health. Do all the things that work doesn't give us time to do. Sleep with no alarm, take up yoga, make meals from scratch, read books, paint, just do you now. Hope you feel better x

Pimpledimple · 13/02/2023 15:05

Thank you for all the advice I cook from scratch no matter how ill I am normally cooking is a hobby and a relaxing way to end the day. I’ve considered appealing but as I can’t answer the questions like at my worst I can still take my tablets with out help I can manage to slip on some stretchy pyjamas with out help. It’s frustrating.

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caringcarer · 13/02/2023 15:33

The questions on the PIP form are very specific and tend to be suited to a disable person who can barely move. I think they make questions very specific like that to stop so many people from claiming. I mean you get points if you can't read, but how many illnesses make you not be able to read?
Have you been to GP to see what they say about exhaustion? Are your vitamin D and B 12 levels ok as these when very lowake you feel exhausted all the time.

Pimpledimple · 13/02/2023 16:10

I have b12 injection vit d tablets folic acid as my levels are low and they’ve helped but I’m still exhausted they think I have mild me

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