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Any experiences of Angiomyolipoma (AML)? Concerned

1 reply

confusedofengland · 07/02/2023 10:16

I was just wondering if anybody has any experiences of Angiomyolipoma (AML) in the kidney please. DH has been for an ultrasound where one has been picked up, measuring 1.5 cm x 8cm x 7 cm. I have been googling & that sounds pretty large to me, but I don't know!

We have had a pretty rough couple of years - life-threatening accident for a parent, surgery for another, aging grandparent problems, severe MH problems in teen relative including suicide attempts, one of our DC has ASC/ADHD diagnosed within last year or 2, so lots of intervention with that currently, plus money worries - and this has basically left everything down to me. DH was ill with a cough over Christmas so 90% of that was cancelled & I had to keep up a cheery front while working & taking DC with me. I feel like this might push me over the edge. I literally cannot cope but have nobody to turn to & have to do more than before. Every time I think things might be getting better, they get worse.

I also feel bad as DH is at the doctors weekly if not more & always with different things, so I have not been very tolerant of his illnesses, which is bad.

If anybody can share experiences I would be grateful please.

OP posts:
Coulddowithanap · 03/05/2023 16:23

Hi. I am currently being treated for 2 AMLs on one of my kidneys.

Mine were picked up by an ultrasound then had a ct scan to confirm what they were as they couldn't totally tell from the ultrasound.

My largest one was 6cm. I believe they prefer to embolise them rather than cut them out. (just means they cut off the blood supply to them)

The op itself was ok but I'm finding recovery hard (only had op last week so probably pushing myself too hard)

How is your husband doing now?

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