Adult hip dysplasia

[MrsH497]

Shameless repost as I didn't get any replies on health.

Hi everyone I've had right sided hip pain for years and been fobbed off (one of those things/nothing to worry about/exercise/physio). Finally after 10+ years I've had an X-ray and been diagnosed with hip dysplasia. My orthopaedic referral has been done I'm just wondering if anyone has been through hip dysplasia as an adult? What treatment am I facing potentially? My job is very active. This pain has been there for so long I just want it gone

Hi op
Sorry to hear that you are in pain. I had hip dysplasia.
Diagnosed at 20 after years of pain and a round of physio. I first had an arthroscopy but they made it clear that it was to delay a replacement. It didn't make things hugely better to be honest but still glad I managed to delay the replacement. When it got to the point of having to choose between keeping my leg straight or bent after a long day on my feet because it seized up and then I couldn't move it, I decided to go for a replacement. I got it done privately through my health insurance so not sure of NHS wait times. This was aged 25.
Hip replacement was easier recovery than arthroscopy, and I am so glad I got it done. It's changed my life. I am quite active too and can run and do all the things I couldn't do before. Biggest downside is being careful twisting and in certain positions which makes thing like yoga more difficult to do but just have to improvise in certain positions.
I'm 7 years on now and no idea how long it will last but I'm not limiting my life and my surgeon told me no rules, just do what feels ok, it's all risk/ reward.
Not sure if relevant for you but I've also had a baby since the replacement and caused no issues. Baby gets extra checks since it is hereditary but was thankfully ok

Happy to answer any questions and wishing you the best of luck in your treatment if you go down that route!

Ah thank you so much. So good to hear a replacement is positive and not going to render me worse off.

I've researched the surgery and honestly think I'd rather just have it done. The pains been getting worse. Is yours both hips? Oddly I only have pain one side. I've said for so long my hip hurts feels crampy all the time and been brushed off.

I've had my babies and as they were breech they had hip scans at 6 weeks old. They are 11 months and 2.5 so I want to be active for them.

I'll get a triage call in the next week but it's 3-6 months for initial appointment on the nhs. Keep going down the Google rabbi hole about the surgery options and whether it's likely to happen.

Sorry that was a brain dump. Thank you so much for replying x

Mine is just one hip. If your experience is the same as mine you will not regret the replacement. Having another one wouldn't phase me now that I have been through it as six weeks after surgery I felt like a new woman! My surgeon estimated mine would last 25 years, and constant improvements in artificial joints meant I would more than like likely just need one more in my lifetime.

One thing to consider is the recovery with two little ones might be quite tricky as bending down to pick them up and things will be difficult. You will need to make sure you have a lot of support at home in the first six weeks.

The musculoskeletal team just triaged me and said she thought it could be Greater Trochanteric Pain Syndrome despite X-rays showing the dysplasia in both hips. Was trying to push me towards more physio and steroid injection. Acknowledged there is the dysplasia but wasn't convinced the pain was that. Quite deflated. She is going to refer to the hip triage (yay more triage!) and a consultant will call me by mid March.

Was your pain in the outside of the hip or the groin?