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Anither one about adhd in women...problem with sorting

38 replies

Darkdiamond · 15/01/2023 12:42

I posted something under a different username about 6 months ago, basically explaining how inefficient I am at housework and how I have sensory overloads and overwhelm when doing simple tasks. Someone mentioned adhd and ever since, I can't get it out of my mind.

I'm generally a pretty functional person, did well at uni, have a professional career, kids, manage a home etc. I used to think I was just disorganised but since Ive had kids, I'm much more organised and have systems etc in place, so things have improved. However I still feel like something isn't quite right.

The way my mind works sometimes feels like cogs screeching. I really struggle to complete tasks which involve a lot of sorting/categorising/thinking/planning/logistic.My mind just completely shuts down.

When tidying/cleaning, I feel like I use up a lot of physical energy but nothing looks much different. When cleaning, my hands feel too big for my body and I become really aware of sensory distractions such as a damp spot on my sock or something something tickly up my sleeve. This becomes unbearably uncomfortable and I have to use a lot of mental fortitude to get through it. Sometimes i can't finish a job as I flit from one thing to the other, without seeing the first one through. Stop, start, chop, chop.

I have a driving licence but my spatial awareness and sense of the road are so awful that I only drive the same 5 routes that I know off by heart. I get totally overwhelmed by sensory information, particularly if it's visual and there are a lot of things in my eyeline that aren't grouped together.

However, i never know how to sort things and end up shoving piles of papers, objects, books into the same container because I just can't process what I need to do. I used to think I was just lazy but I really struggle to make decisions about where to put things (what category does sit go under? Do I keep or throw away?) . I find this so difficult!

For so long people have thought that I'm lazy, disorganised, sloppy etc and the thing is, I often feel really motivated to not be those things (if that makes sense). I'm willing to put the physical effort into it, no problem, but I just can't engage mentally.

Does this sound like ADHD to you or do you think this is just a normal part of being a human? My sibling got an ASD diagnosis later in life and I suspect one of my parents is ND, if not both.

If this is actually a neurological thing then I can think about more specific ways to handle my thinking, rather than the more motivational stuff I've been listening to.

Hope this makes sense.

OP posts:
Onnabugeisha · 16/01/2023 17:20

yellowcourgette · 16/01/2023 15:55

Sigh. I am going to really fight myself here and not engage in a back and forth argument with a random person on the internet. I am a quantitative research scientist, and I do not need you to refer me to studies. I have already read them. Nor do I need you to 'apologise' to me. Unless you are a researcher in this field with a significant study under your belt that I have not seen then I am going to deem myself capable of understanding this at length based on the available research. This includes being able to assess the source, reliability, statistical significance and potential other explanations of statements put forth in said research.

You are referring to studies that have been widely debunked due to flawed methodology. I do not have the trime or energy to trawl though all of the papers you are referring to individually but I am hazzarding a guess that they include the main recent studies including the NZ one. Some of the flaws:

  • They are actually talking about teen onset. Which is under the age of complete neurological development, and not the same as magically developing a neurological disorder later in life.
  • A statistically significant amount of proposed adult onset cases had comorbidity with other disorders that better explained their symptoms. They completely ignored other conditions like autism or major depressive episodes, both of which have symptom overlap with ADHD.
  • These studies are full of false positives and false negatives and rely heavily on self reporting.
  • The NZ study (which actually had a reasonable sample size - sorry but I am not going to allow one case study of a 58 year old to redefine decades of research) failed to ascertain the onset of symptoms; see above. However, their claims are based on only 27 people, 15 of which had other mental disorders with comorbid symptoms.
  • A significant amount also of the above had symptoms from childhood, but they were not diagnosed at that point as they were below threshold.

Despite this, even if adult-onset ADHD exists, we're talking about such a low probability of developing it that it's extremely unlikely. Again I highly doubt that the recent surge of people claiming to have ADHD because tiktok told them haven't also had adult brain trauma. In addition, if it does exist, it is not the same condition as 'standard' ADHD which is defined as a neurological developmental disorder.

I don't expect everyone to do a deep dive into research, but it really grinds my gears when unqualified people put across stuff they've read as hard facts and will defend it so adamantly. You are misleading people by coming across so confident and stating this as fact. It's feeding this ridiculous trend which is extremely damaging. Just because you read it on the internet doesn't make it true.

I've had enough now so I'm going to sign off!!!

Still doesn’t explain why you are resorting to 5-6yr old studies? The dates are on them for all to see.

And you haven’t posted any evidence of “debunking” of the more recent studies I posted…btw it wasn’t just one case study, there was another study with hundreds of patients.

Actually you haven’t even read the more recent studies…at all!
I do not have the trime or energy to trawl though all of the papers you are referring to individually yet you are confident enough to assert that I am referring to studies that have been widely debunked due to flawed methodology. You then list some “flaws” that may or may not apply to the research I linked, but you seem to think these flaws apply without having actually read the studies? How so?

Unless you are a researcher in this field with a significant study under your belt that I have not seen then I am going to deem myself capable of understanding this at length based on the available research. This includes being able to assess the source, reliability, statistical significance and potential other explanations of statements put forth in said research.

Well, you’ve admitted you have not seen all the available research…and claimed you don’t need to read the more recent studies to know they are debunked and flawed…yet have no evidence as to where you got this impression from?

Well, I also am a qualified scientist to doctorate level…and I while I do not dispute your statement that you:
“…deem myself capable of understanding this at length based on the available research.”

I do find it questionable that any research scientist would be able to assess the “source, reliability, statistical significance and potential other explanations of statements put forth in said research” without even reading the research!

yellowcourgette · 16/01/2023 20:42

Onnabugeisha · 16/01/2023 17:20

Still doesn’t explain why you are resorting to 5-6yr old studies? The dates are on them for all to see.

And you haven’t posted any evidence of “debunking” of the more recent studies I posted…btw it wasn’t just one case study, there was another study with hundreds of patients.

Actually you haven’t even read the more recent studies…at all!
I do not have the trime or energy to trawl though all of the papers you are referring to individually yet you are confident enough to assert that I am referring to studies that have been widely debunked due to flawed methodology. You then list some “flaws” that may or may not apply to the research I linked, but you seem to think these flaws apply without having actually read the studies? How so?

Unless you are a researcher in this field with a significant study under your belt that I have not seen then I am going to deem myself capable of understanding this at length based on the available research. This includes being able to assess the source, reliability, statistical significance and potential other explanations of statements put forth in said research.

Well, you’ve admitted you have not seen all the available research…and claimed you don’t need to read the more recent studies to know they are debunked and flawed…yet have no evidence as to where you got this impression from?

Well, I also am a qualified scientist to doctorate level…and I while I do not dispute your statement that you:
“…deem myself capable of understanding this at length based on the available research.”

I do find it questionable that any research scientist would be able to assess the “source, reliability, statistical significance and potential other explanations of statements put forth in said research” without even reading the research!

OK, my last reply. Please don't insult me. If you are a qualified scientist to doctorate level then you should be all for following well grounded research and not basing claims on poor studies. The studies you refer to, and which 'support' adult onset ADHD are flawed and surely as a highly qualified research scientist you should recognise that?!

Firstly the newness of resesarch is not directly correlated to how good it is. Just because it's newer doesn't mean it debunks previous studies, especially if they are flawed.

Secondly, I didn't say I haven't read them. Please don't insult me and assume and call me negligent. I said I wasn't prepared to go through each one individually to debunk them. But I will do now to the ones you directly linked, because this is important to me.

  • The one in your Medical News Today article (from 2015, which is apparently too old, but I'll address it anyway) claims a link between TBI and ADHD. Fine. ADHD can make one prone to accidents, risk taking, etc. Regarding actually causing ADHD, they found that '6.6% screened positive for ADHD through a self reported scale phone interview.' Self reporting is not reliable due to false negatives and positives and a desire to seek affirmation. They actually say that "we see that adults with TBI are more than twice as likely to report symptoms of ADHD". No shit... TBI causes symptoms such as concentration and attention issues, exhaustion, etc. Doesn't mean it's ADHD. I'm not willing to completely reverse decades of research based on any of this, not discounting the very small sample size and other flaws, and neither should you.
  • Your ADDitude link about TBI talks about 48 children, not adults, so it's not relevant. It also finds a significant link between ADHD and both maternal education and having a single parent.
  • The 58 yr old case study actually says that she reported a tendency of forgetfulness and forgetfulness since childhood. She also reported difficulties after starting her own business, so an environmental influence that you cannot rule out. They also diagnosed her based on her condition in work and at home. No childhood consideration. I'm not willing to completely reverse decades of research based on a single individual with ADHD symptoms in childhood as evidence of late onset ADHD in adults.
  • In 2022 Sasaki et al, a follow on from the previous study, they base their conclusions on 7 dementia patients out of 446 (1.6%). They confirm that they have all experienced a stressful life event before manifestation. They do not consider comorbidity. I'm not willing to completely reverse decades of research based on 7 people with ADHD symptoms. In addition, they use DSM V to diagnose which is inappropriate for adults. Again same statement.
  • For the Breda et al 2020 study, they look at young people up to 22 years of age. This is under 25 years of age (neurologically immature), which is not late onset in adults. For 22% of the young people diagnosed with ADHD they identified an 'ascending symptom trajectory' and identified that this was most common in females with high IQ. No surprise; smart girls mask. This doesn't mean they didn't have ADHD in childhood, it means they covered it up well. They then conclude that it's a neurodevelopmental disorder.

None of the above studies give any evidence to discount the known and proven development of ADHD as a neurological disorder, present at a young age. None make any effort to differentiate between late diagnosis and late onset, and therefore actually prove that any late diagnoses of ADHD weren't due to masking, environmental pressures, comorbidity, or raised awareness of the disorder.

Give me a robust study and I am absolutely open to changing my mind. Hell, please give me some robust sources because I am invested! But I base what I know about ADHD, and many things, on quality science, and I wish more people did the same. I don't know why you are so determined to undermine well founded prior research with poor studies which put forward qualitative-based theories and assumptions at best.

And AGAIN. We are talking about the extreme rise in adults saying they have ADHD, based on social media/friends/experience of lockdown/mental health. Not about very rare cases of elderly or brain injury patients who might have late onset ADHD, if any of the above studies are correct.

I am trying really hard to step away from this, but hey, my ADHD is making it super hard, because it's something that's really important to me to defend. The validity and strength of scientific research and how it is conveyed and communicated to the general public is also a passion of mine and I am acutely aware of the impacts of scientific miscommunication, often by journalists and laymen either because of misunderstanding, researchers overstating their findings due to whatever pressure, or Chinese whispers.

If you honestly think that any of the above studies are concrete evidence that a significant number of adults who are suddenly presenting the 'sexy' symptoms of inattentiveness and disorganisation now have ADHD, despite having no childhood symptoms (but strangely don't talk about addiction, theft, emotional dysfunction, unhealthy relationships), then fine. It can't possibly be due to anything else could it?

Onnabugeisha · 17/01/2023 00:57

Yes the studies I posted were meant to show the progression in science from what you posted so I laid stepping stones for you to follow. They also highlight the fact that very few studies have looked at ADHD in adults, who were not diagnosed with ADHD as children.

I will break up my response to your comments into more than one post and restrict myself to just the science as there’s no need to address implications that I have nefarious intent or that I’m trying to explain 100% of the adults seeking assessments in middle age or older.

TBI and ADHD

#1
You said “The one in your Medical News Today article (from 2015, which is apparently too old, but I'll address it anyway) claims a link between TBI and ADHD. Fine.”

Good, as that’s all I meant for that study to show..that a link was established in 2015 and at the time, they did not know what the direction was of correlation or causation. I agree with you completely on this:

You said: “Regarding actually causing ADHD, they found that '6.6% screened positive for ADHD through a self reported scale phone interview.' Self reporting is not reliable due to false negatives and positives and a desire to seek affirmation.“

Yep, self-reporting, especially childhood recall is highly unreliable.

#2
You said: “Your ADDitude link about TBI talks about 48 children, not adults, so it's not relevant.”

Ah, but it is relevant because it shows that ADHD was secondary to the TBI, as in caused by the TBI, and thus is “acquired ADHD”. The article links to the actual JAMA study: Secondary Attention-Deficit/Hyperactivity Disorder in Children and Adolescents 5 to 10 Years After Traumatic Brain Injury
The analyzed sample included 187 children with no preinjury ADHD. Mean (SD) age was 5.1 (1.1) years; 108 (57.8%) were male, and 50 (26.7%) were of nonwhite race/ethnicity. Of the 187 children, 48 (25.7%) met our definition of SADHD.

You said: “It also finds a significant link between ADHD and both maternal education and having a single parent.”

Er, you’ve worded this very vaguely. What was actually found was
“Maternal educational level and family factors influenced the risk for developing SADHD.” As in, the risk of developing SADHD due to a TBI was lowered with higher maternal education, and/or increased with family dysfunction because these factors affect recovery from a TBI. All the subjects in the study had suffered a TBI.

Severe TBI (hazard ratio [HR], 3.62; 95% CI, 1.59-8.26) was associated with SADHD compared with the OI group. Higher levels of maternal education (HR, 0.33; 95% CI, 0.17-0.62) were associated with a lower risk of SADHD. Family dysfunction was associated with increased risk of SADHD within the TBI group (HR, 4.24; 95% CI, 1.91-9.43), with minimal association within the OI group (HR, 1.32; 95% CI, 0.36-4.91).

The takeaway from this study is:
“Injury and environmental factors were associated with risk of secondary attention-deficit/hyperactivity disorder, with new onset up to 6.8 years after injury, highlighting the importance of identifying risk and promoting long-term follow-up of patients with high risk for secondary attention-deficit/hyperactivity disorder.”

Now you skipped this link I posted
Treatment of ADHD secondary to traumatic brain injury
Published online by Cambridge University Press: 16 April 2020
The lead in statement is presented as well established fact:

“Attention-deficit/hyperactivity disorder secondary to traumatic brain injury (ADHD/TBI) is one of the most common neurobehavioral consequences of TBI, occurring in 20% to 50% of individuals post-injury.”

And
“A female patient is presented with TBI and cognitive symptoms and behavior compatible with ADHD. The treatment with methylphenidate was useful for the behavioral problems. The 23 years old woman suffered 3 years earlier a car accident, causing severe TBI and polytrauma.”

Take this study and the JAMA one, and it is plausible that a TBI suffered at age 24, could result in SADHD 6.8yrs later, as in at age 30. In fact, I know it’s possible as I developed SADHD one year after a traffic accident caused TBI at age 39. I did not have ADHD as a child at all. I had no struggles of that sort. And over the years, I have met many more middle aged patients also suffering from newly manifested ADHD due to a TBI at the two head injury recovery and rehabilitation centres that have treated me. SADHD is a relatively new term, we are all diagnosed with ADHD.

You dismissed the whole idea early on of a TBI and ADHD causal link:

“No shit... TBI causes symptoms such as concentration and attention issues, exhaustion, etc. Doesn't mean it's ADHD. I'm not willing to completely reverse decades of research based on any of this, not discounting the very small sample size and other flaws, and neither should you.”

Yes, I know what a TBI is and what it does. Been there. But I rather think that the neurorehabilitation & neurologist consultants and the neuropsychologist & psychiatrist consultants working as a multi-disciplinary team on my case know better than you that my ADHD symptoms were in fact ADHD and not TBI symptoms. That’s why they diagnosed me with both. And why others like me, whom I have met on head injury recovery & rehab programs have also been diagnosed with both. This has been going on in the field for quite awhile now.

In addition, you are not being asked to “completely reverse decades of research” because this is a new area of research. Your statement implies that decades of earlier research have shown no link between TBI and ADHD. That isn’t the case. All the research on TBI and ADHD have shown a link, and more recently, a clear causal link.

Onnabugeisha · 17/01/2023 01:48

This is a side note, but I am curious as to why you did this?

yellowcourgette · Yesterday 08:20
Sorry, this isn't true. ADHD is a neurological condition, present since birth….Do you have the sources for the dementia case and other claims? I haven't read any studies about brain trauma 'causing' ADHD in adults, i.e. past the neurological development stage.

Onnabugeisha · Yesterday 15:08
ADHD isn’t present from birth in everyone. I’m really sorry, but your information is out of date by about five years. I posted the sources in the other thread we were on about ADHD….

yellowcourgette · Yesterday 15:55
I am a quantitative research scientist, and I do not need you to refer me to studies. I have already read them. Nor do I need you to 'apologise' to me.

So if you do not need me to refer you to studies because you have already read them, then why did you explicitly ask me to refer you to sources regarding late onset ADHD & “other claims” and furthermore say you had not read any studies on TBI and ADHD?

Lovemylittlebear · 17/01/2023 02:24

Hi all,
i hope it’s ok to ask this question (I have found the discussion on here and literature reviews very interesting).

I have been with my husband for 17 years (from teens). When he was a young teen (before I met him) he had a nasty mountain bike incident and opened his forehead/eye brow area up by crashing head first into a curb. He has since had a dent in his eyebrow. He said he was basically stitched up and discharged with no scans or follow up (not sure if that’s normal or not).

Anyway, there are certain things that I have found emotionally challenging over the years and over more recent years I have wondered if these behaviours are more of a skill deficit than a performance deficit. If so, this takes a lot of the ‘emotion’ out of it for me. For example, thinking that he doesn’t care enough or that I am not important enough to wondering if it’s just something he really can’t help (as he says it is). Definitely not ASD (that’s my field). Until recently my understanding of ADHD has been for those with joint diagnosis but my understanding has dramatically improved over the last couple of years for those with ADHD as sole diagnosis.

  • Only remembering part of the information. Eg feeling really poorly and asking for specific tablets and drink. Coming up with something slightly different. Previously I would have interpreted this as not caring enough to properly listen.
  • Poor empathy (maybe not right word) or lack of emotional competency. Eg going in for miscarriage induction and working on laptop whilst nurse inserts pessary (as focus on work and not upsetting boss). No reassurance during postnatal hemorage. He does understand when people are sad and can show kindness and love etc but it can be poor. Eg major incident and ambulance called for newborn who nearly died in our arms. I was shocked when he came and put his arm around me to comfort me.
  • He had a first at degree and a PHD in physics. He’s very smart and now does a clever internet networking job and can flit between screens super well and multi task in work. This is where my confusion initially ku because I could see him engaging in behaviours that he couldn’t do with me but could do in work. Eg listening to full and complex instructions and multi tasking.
apologies if I haven’t been clear enough. I have strep A and feel terrible so not super articulate atm. However for the research scientists, could some of the areas that I find challenging in our relationship be attributable to some sort of trauma based injury to the head?

many thanks x

Onnabugeisha · 17/01/2023 02:33

Late onset/manifestation of ADHD

Let me remind you, that you stated, quite confidently:

“ADHD is a lifelong condition that has to have shown signs from childhood and persistent through life.” And “ADHD is a neurological condition, present since birth”

This is all because I have contested these to points as inaccurate and out of date.

The first case report.

You said: “The 58 yr old case study actually says that she reported a tendency of forgetfulness and forgetfulness since childhood.”

May I observe [without insulting you], that you stated earlier “Self reporting is not reliable due to false negatives and positives and a desire to seek affirmation.” So why are you relying on it here? I haven’t, I dismissed it, because self-reporting based on recall of childhood isn’t reliable. You seem to be going against your own scientific principles here.

I’m relying on the assessment they did of this 58yr old, diagnosing her with late onset ADHD.

You said: “She also reported difficulties after starting her own business, so an environmental influence that you cannot rule out.”

No, that’s inaccurate because the start of her business did not coincide with the appearance of her symptoms as you imply:
“The patient was president of her own company, and she ran her business well. However, she gradually became inattentive and forgetful that it interfered with her work and daily life; thus, she visited our hospital with the encouragement of her family and employees, who worried that she was suffering from dementia. After various inspections, dementia was ruled out and she finally diagnosed with very late-onset ADHD.”

You said: “They also diagnosed her based on her condition in work and at home. No childhood consideration.”

Correct, and as mentioned before the self-reported childhood recall of forgetfulness is not reliable and cannot be used as evidence of childhood ADHD. She had no ADHD symptoms until she was 58 and there was no new environmental influence despite you implying there was.

You said:”In 2022 Sasaki et al, a follow on from the previous study, they base their conclusions on 7 dementia patients out of 446 (1.6%)”

No, they were not technically dementia patients- they were patients referred for a dementia assessment: “These patients comprised 246 women and 200 men. All patients have been referred to our hospital by their family physicians for assessment of dementia.”

You said “They do not consider comorbidity.”

Not the case, they did a very thorough job of ruling out all other organic or psychological comorbidities:

“After ruling out 39 patients with psychiatric diseases or organic diseases, 81 fulfilled our criteria and 326 did not. Developmental disorder specialists examined and reviewed the medical records for these 81 patients. As a result, 9 patients were suspected of having ADHD, and 7 of these 9 patients were given a diagnosis of ADHD. In terms of EOAD, neuropsychiatric specialists suspected 37 patients of having EOAD at the first examination. Of those 37 patients, 22 patients (3 who fulfilled our criteria and 19 who did not) were diagnosed with EOAD and 6 patients were diagnosed with ADHD. The remaining 9 patients were diagnosed with the other diseases. From the point of view of ADHD, ADHD accounted for 1.6% of patients who initially visited our specialty outpatient clinic for dementia and accounted for 16% of patients initially suspected of having EOAD”

You said: “I'm not willing to completely reverse decades of research based on a single individual with ADHD symptoms in childhood as evidence of late onset ADHD in adults” and then the same on “…7 people with ADHD symptoms.”

But you’re not being asked to “reverse decades of research” because prior to this NO research has been done on ADHD diagnosis of middle age & older adults that were known not to have ADHD in childhood:

“In recent years, many studies on ADHD in adults have been published [2,3,4,5,6,7,8,9,10,11,12,13], including some on the late-onset type of ADHD [8,9,10,11,12,13]. Some of the reports on late-onset ADHD have been attracting particular attention because they presented data challenging an accepted finding that the symptoms of ADHD should appear at < 12 years of age as established by studies conducted over the past 2 decades [14,15,16,17]. However, all reports on late-onset ADHD published to date were confined only to the period until early adulthood, thus making the occurrence of ADHD during the senile period questionable.

Finally I included this study because of your extreme insistence that “ADHD is a lifelong condition that has to have shown signs from childhood and persistent through life.” and “ADHD is a neurological condition, present since birth”

You said “For the Breda et al 2020 study, they look at young people up to 22 years of age. This is under 25 years of age (neurologically immature), which is not late onset in adults. For 22% of the young people diagnosed with ADHD they identified an 'ascending symptom trajectory' and identified that this was most common in females with high IQ. No surprise; smart girls mask. This doesn't mean they didn't have ADHD in childhood, it means they covered it up well. They then conclude that it's a neurodevelopmental disorder.”

You’ve not really summarised this very well or accurately. First off, it’s a bit off to argue that late onset of ADHD in people aged 18-25 is “not late onset in adults”….they’re plainly young adults and referred to as adults in all the scientific literature.

The study specifically says in three prior studies many did not have ADHD in childhood ranging from 25% to 80%:

“Three birth cohorts that assessed ADHD in >8000 individuals from New Zealand, Brazil and the UK showed that around 80% of adults with current ADHD syndrome did not have the disorder in childhood. Furthermore, those adults with late-onset ADHD did not differ from their full-criteria counterparts in terms of clinical profile, severity, comorbidities and impairment. Two additional population studies that considered subtle ADHD symptoms in childhood as evidence of a neurodevelopmental trajectory found that 25% of adults with ADHD were late-onset cases.”

“Until now, no single study has followed children up to adulthood with a sufficiently long follow-up to permit identifying possible ascending trajectories.”

“We tested both polythetic definitions and latent growth modelling analyses to differentiate between neurodevelopmental and late-onset ADHD cases.”

“This study was carried out with data from 5249 individuals born in 1993, representing 99.1% of all live-born children in the southern Brazilian city of Pelotas (340 000 inhabitants), and followed up to 22 years of age. The participants underwent five evaluation waves at the perinatal period and at 11, 15, 18 and 22 years of age. In 2015, 4003 individuals were traced (including 193 deaths), with a final retention rate of 76.3%”

This study essentially found that 33% of adults with ADHD had no symptoms of ADHD in childhood, not even subclinical symptoms:

“According to the multi-step polythetic approach, most adult ADHD cases (67%) had chronic symptoms since childhood or early adolescence and had a homotypic neurodevelopmental trajectory, as previously reported.
These results also confirm one of the possible causes of dubious late-onset ADHD related to the presence of subthreshold symptoms instead of a full disorder in childhood. Thus, our results are in line with previous findings showing that subthreshold ADHD symptoms in childhood predict ADHD in late adolescence, and that children with subthreshold symptoms are at higher risk for adverse outcomes later in life.”

It also found that girls weren’t being “missed” but that
“In our analysis, the ascending (late-onset) trajectory was associated with female gender and higher IQ. “

“In summary, both polythetic and latent trajectory analyses support the view that the majority of adults with ADHD had a chronic, stable neurodevelopmental trajectory of the disorder. On the other hand, our results also confirm the existence of late-onset ADHD in around a fifth of cases, owing to an age-dependent ascension of symptoms.”

May I remind you again, your statements were:
“ADHD is a lifelong condition that has to have shown signs from childhood and persistent through life.” And “ADHD is a neurological condition, present since birth”

The studies clearly show this is not the case.

Onnabugeisha · 17/01/2023 03:15

@Lovemylittlebear
However for the research scientists, could some of the areas that I find challenging in our relationship be attributable to some sort of trauma based injury to the head?

Definitely, absolutely they are likely secondary to his head injury.
(Please note, I am speaking as a TBI patient in this respect. My scientific field is colloquially referred to as “rocket science”.)
I suffered a head injury and TBI following being hit by an SUV while cycling. I had a concussion and lost consciousness. But I was similarly discharged with usual post concussion advice. My TBI was missed until months afterwards when my functioning suddenly underwent a massive decline. I know now my pathway was textbook for a head injury with TBI. Anyway, to address what you have noticed specifically:

Only remembering part of the information. Eg feeling really poorly and asking for specific tablets and drink. Coming up with something slightly different.
Yes, head injury/TBI often causes cognitive deficits in short term memory retention and processing. So what happens is you say x to a person and they simply can’t catch x and hold it in their head long enough to remember they are going to get x. I likened it to butter skidding over a smoking hot frying pan…by the time it gets to the other side of the pan, the butter (thought) is gone, evaporated.

Poor empathy (maybe not right word) or lack of emotional competency.
Yes, this too can be caused by a head injury with TBI, and is usually referred to as emotion dysregulation (which is actually a vary general term for a lot of different presentations). For example, if someone is hurt, I find myself uncontrollably smiling and laughing even though I am actually experiencing feelings of concern and care. I do manage to get it under control now but the initial response I cannot control. This is still distressing to me and my family even though we know it is the lingering effects of the TBI. So, from what I understand the specific site and severity brain injury will affect how your emotional reactions get scrambled.

He had a first at degree and a PHD in physics. He’s very smart and now does a clever internet networking job and can flit between screens super well and multi task in work. This is where my confusion initially ku because I could see him engaging in behaviours that he couldn’t do with me but could do in work. Eg listening to full and complex instructions and multi tasking.

Ok, so this is good. I had almost a year of rehab to get to the point of having the short term memory to be able to flit between screens. The difference between this and remembering verbal instructions is still immense though. Visual data is boom there! You can flit back and forth anytime to remind yourself of it. In fact, he probably has to go back and forth more than he ever did! I know I do. I used to be able to read multiple pages and have almost perfect recall…now I have to flit back and forth a few times just to enter a 6 digit verification code. Verbal instructions…hah! Still impossible to remember. I usually put a note in my phone while standing there or jot them on a piece of paper as a miniature to do list like “Get: English muffin with the green marm, Earl grey tea (1 sug), and two paracetamols” because by the time I get from my DH (assuming he is poorly) to the kitchen I will have forgotten what he wanted. My family too know to instantly text me a reminder as well right after telling me.

Lovemylittlebear · 17/01/2023 03:34

@Onnabugeisha thank you ever so much for your reply. So sorry to hear about the injury that you incurred. Really interesting info thank you. My Dad had a stroke a couple of years ago and although superficially recovered very well, the part of his brain most affected he now struggles with emotional regulation (becoming tearful - which he experiences shame for…I’ve told him it’s a good thing actually and that he is showing my sons that men can find things sad and can cry so I think that has helped him after years of ‘manning up’ and his working memory. Anyway, this and more recent work with children with just an ADHD or dyspraxia diagnosis got me thinking about my husband.

Given the job I do, I feel bad that we have had so many arguments about these issues over the years. I guess I just saw his brain excelling so well in work and during his PHD that I never stopped to thing about visual support (despite this being something I would talk about in work). He stipulates that he does love me and cares greatly but over the years I have questioned this quite a lot but now can take comfort to know that most likely it’s not something that he can help.

I guess my next question is what’s the best way forward? We can use prompts for things that don’t matter (shopping lists, texts after asked to do something etc). I want him to show good emotional literacy with the children though when they need support. Eg daughters favourite book gets wet and is very upset and cries (she saved up to buy it so was a big deal for her). He problem solves and tells her it is fine and will order a new one from Amazon. She continues to cry and he can’t understand why as he has fixed the problem. I then explain that whilst the problem is fixed she still needs her emotional needs meeting and needs a hug and to be told that her emotions are valied. I guess I’m asking if it’s possible to create new neural pathways here in this instance? I’m guessing if most likely is as he hugged me and propped me up when the paramedics were working on our youngest. This is after various discussions of upset (eg after child birth and miscarriages etc) so he is learning.

Out of interest, how would this sort of hypothesis be confirmed? Is this something he could see a specialist for if he chose to do so?

many thanks again for your time, super interesting and helpful. I think this dialogue has been enormously helpful for our relationship, thank you!

Onnabugeisha · 17/01/2023 03:37

@Lovemylittlebear
This charity were and still are a huge help to me. They’re called Headway.
Their webpage has tons of resources, research, fact sheets and accounts written by people of their experiences living with a TBI. You can find lots of good information there for you and your DH.

www.headway.org.uk
Helpline: 0808 800 2244
Call our free helpline 9am - 5pm, Monday to Friday.
Or email [email protected]

off for my beauty sleep. 😊

CheerfulYank · 17/01/2023 03:44

I have raging ADHD and my executive functioning is hideous…it’s very hard for me to see from point A to point B sometimes. Like if I’ve got a pile of things to throw away, but then I go in and there’s no bag in the garbage can. Or if I’ve finally got a decent laundry system going, and then the dryer breaks down, it can take me months to come back from. (That happened recently)

Right now, dealing with Christmas hangover is doing me in. The kids got a ton of crafty type gifts from DH’s parents and sister, but there’s nowhere to do them and they’re just lying around and ARGHHHHH 😫

I know that the only way forward is for us to have much less stuff in the house (it’s ridiculous) but it’s so hard to know what to DO with it all.

I don’t have any good tips other than Adderall, but I think it’s hard to get a prescription for that there, isn’t it?

Oh, my spatial reasoning is also terrible. I don’t drive, which is almost unheard of in my part of the States. People look at me like I’ve got three heads when I mention it.

Onnabugeisha · 17/01/2023 03:44

@Lovemylittlebear
Putting off bed..seeing you reply
I guess I’m asking if it’s possible to create new neural pathways here in this instance? I’m guessing if most likely is as he hugged me and propped me up when the paramedics were working on our youngest. This is after various discussions of upset (eg after child birth and miscarriages etc) so he is learning.
Yes, definitely because our brains are always plastic so can re-learn things and create new pathways. The problem is that a TBI makes learning much harder and slower than pre-injury, and often much slower than you’d normally expect from an average person.

Out of interest, how would this sort of hypothesis be confirmed? Is this something he could see a specialist for if he chose to do so?
Yes, a neurologist would be the first step. MRIs with contrast can often show the signs of damage to the brain (assuming it’s been awhile). However, it is important to note that a normal MRI does not rule out a TBI, as they cannot detect microscopic damage which (frustratingly) often happens if you were wearing a cycle helmet. So, start there. I’d also call up Headway for signposting as another consultant would be a neuropsychologist..these psychologists specialise in neurological conditions not mental health conditions. He is not likely to need a neurorehabilitationist because that focuses on basic skills like toileting, dressing, feeding yourself, mobility and so on.

Lovemylittlebear · 17/01/2023 03:49

@Onnabugeisha

super helpful. Thanks so much!!

hope you have a good sleep x

IdisagreeMrHochhauser · 17/01/2023 05:04

I have an autism diagnosis but also a separate diagnosis of visual stress/ Irlen syndrome. I have massive problems with visual processing that affect my ability to manage things.

I suspect I might also have ADHD but what you wrote in your OP made me think you should consider both autism and visual stress too.

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