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Getting a first wheelchair - any advice please

11 replies

archaeoptyrx · 13/01/2023 13:20

Posting here for traffic, hope that is ok. After a year of ill-health and adjusting to walking with crutches and having a blue badge, I have accepted that there will be times when I need to use a wheelchair. I have used a basic borrowed one a few times and been able to do things with my family that I wouldn't have been able to without and to stay out longer. As well as problems with walking, I have chronic fatigue and left-sided weakness so would need the option of being the pushed as well as to self-propel. Please help me. How do I go about choosing a chair, where do I go, is there any funding if I don't need it all the time? I would like something with some colour and that isn't too big (I am slight). Please be kind, I don't know where to start and this is a big step (excuse the pun) which I am trying to be entirely positive about. Thank you.

OP posts:
archaeoptyrx · 13/01/2023 15:22

Bump for after school pick up traffic. Thank you.

OP posts:
LadyKenya · 13/01/2023 16:09

Good for you. As you have realised a wheelchair is not just an aid, but can be a lifeline to enable the user to live life as fully as they are able to. Have you tried speaking to your GP, and asking to be assessed for a wheelchair? Hopefully you will get some advice from people who have got wheelchairs. Good luck.

Ivegotmyhappyfaceontodayles · 13/01/2023 16:13

Sounds a good positive step OP. I'm not sure about wheelchair details but have a feeling this lady might. She's awesome instagram.com/nina_tame?igshid=YmMyMTA2M2Y= and probably you could find info through her networks too. Best of luck with it!

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tatyr · 13/01/2023 16:35

Hi there,
If you have had any involvement with an OT, they can usually advise/refer you to your local wheelchair service for an NHS wheelchair/wheelchair voucher, or a GP can. The criteria for NHS wheelchair provision is usually that it would be needed for more than 6 months, having a condition which affects your ability to walk, needing to use it more than 3/4 times a week and that it would make a significant improvement to your life. The upside of an NHS wheelchair is that they will maintain/repair and if your needs change they will adapt/issue a more suitable chair.
If your local wheelchair service users the voucher scheme you can top up the cost to get something a bit more snazzy/different colours etc, but check if they would still maintain- they may not.

Alternately, any good disability equipment shop should be able to measure you up for an appropriate chair from a range. It sounds like you want something self propelling and folding, so it can be taken out in a car. Self propelling is quite tiring, but means you could for example browse the shelves in a shop, or move around a library. If you have longer distances in mind or don't always have a person to assist you, it might be worth looking at electric options.

Loopyloooooo · 13/01/2023 16:38

Ask the GP to refer you to wheelchair services :)

kerosene20 · 13/01/2023 16:50

I’m in the same boat OP. Thinking of just getting a light folding one for now that my DH can push as I rarely go anywhere without him anyway. It’s a bit overwhelming.

DaisyDreaming · 13/01/2023 16:52

Wheelchair services will at best stick you in a heavy one (in some areas they won’t even give them to people who can walk short distances).

can you get to Birmingham? A bit later in the year there’s an amazing event called naidex where there’s all sorts of wheelchairs, it’s great for trying them and getting an idea of what you might want. It’s quite over whelming. You don’t go to buy but the reps will come to your house.

where in the country are you?

you have your basic chairs, the nhs like the action 3’s. They are heavy and hard to self propel but cheap. The wheels are set so it’s just so hard/near impossible for you to do anything like get up a little curb

theres chairs like the argon’s which are the inbetween ones, lighter, bit more expensive and much easier to push yourself, get up a small curb.

then there’s the active chairs. There’s ones with fused frames which you won’t want as you don’t know your settings and ones that can be adjusted. These cost lots of money but are so light and easy to push yourself. I thought these all had low backs as you normally see people with spinal injuries with low backs in them but you can have all sorts of different custom backs put on them. Everything is custom fit to you and adapted. Sadly the price reflects this!

going to a really good show room or naidex is really helpful, as well as YouTube. I started on YouTube, wheels no heels and another man have good views on custom active chairs if you go down that route. There’s all these words you hear like camber and bucket. Don’t worry if you go to Naidex or a showroom and have no clue, we all had our first wheelchair and didn’t know what we wanted or needed.

I really regret putting up with nhs basic chairs for as long as I did. Do get yourself referred to the nhs though as they can give you some money to put towards a better chair and the waiting list for an assessment is long

Mrsjayy · 13/01/2023 16:57

You can either ask for a referral like pp have suggested or buy your own.

I went to a disability aid shop. ('I'm sure it's not called that) google your area. I was measured up and just chose one they had from stock . I only used it occasionally so didn't get an expensive 1 but its light enough that I can self propel.

Confuzzlediddled · 13/01/2023 17:17

From experience, if you have fatigue issues and weakness I would say don't get a wheelchair, get a small mobility scooter instead. I got a chair first but it was the scooter that really changed my life, they're not just for old biddies and the small ones are classed as wheelchairs so you can go on buses, trains, into theatres etc.

Mrsjayy · 13/01/2023 17:31

Yes I have a scooter now but it's quite sturdy does split down to go in the car .I'd love one of the proper ones that folds onto itsself.

archaeoptyrx · 13/01/2023 18:54

Thank you everyone. I really appreciate you taking the time to answer. I am in Lincolnshire and wouldn't currently be well enough to get to Birmingham but it's definitely something to think about. It sounds like I need to start with my GP. I have an appointment at the start of February so will work towards this. My OT is through the fatigue team so I don't know if he would be able to help. I sorted my crutches with the physio but she has discharged me now. Thank you so much.

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