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Original poster

Long covid symptoms

22 replies

Myzone · 22/12/2022 20:08

Hi all, so I think I’m struggling with long covid. Had covid in February and I would say since April I have started to go downhill mentally and physically. I have only recently linked covid to this but First my antidepressant stopped working all of a sudden after 8 years, switched to different ones but nothing worked then I started having GI problems, heart flutters( also in neck) and my heart was always above 100, reflux symptoms, my breathing also started to get funny, brain fog, weird lightheadedness( off balance and drunk feeling) and breaking out in hives with histamine intolerance now( reacting to everything). I have been referred to cardiology and dermatology. What is shocking is there are NO long covid clinics in Scotland at all. This has all had a massive impact on my life now for 8-9 months and I have had to leave my job and really struggle to do anything with my kids. I didn’t even think any of this was caused by covid until my partner linked the dates and now I can’t even take antidepressants at all as I had a severe reaction to them. I’m just looking to see if anyone else Is going through anything similar as I feel so alone right now and can’t see things getting any better.

OP posts:
xmaslurgy · 22/12/2022 20:11

See if you can sign up to the hope for long covid program

Original poster
Myzone · 22/12/2022 20:19

@xmaslurgy thank you I’ve just registered ❤️

OP posts:
xmaslurgy · 22/12/2022 20:24

Myzone · 22/12/2022 20:19

@xmaslurgy thank you I’ve just registered ❤️

Horray! I found it so helpful and it can be done at your own pace when you have the energy x good luck. It sucks so much.

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Covid-19 General health
over50andfab · 26/12/2022 05:08

Are you menopausal age as most of your symptoms can also be related to this?

Original poster
Myzone · 26/12/2022 09:00

@over50andfab i’m male and only 31 😂 x

OP posts:
Noonesperfect · 27/12/2022 11:48

Hi there, this sounds just like my poor daughter aged 20. Had covid in March started to get a bit better then went down hill June time. She gets a histamine reaction every day and feels like her insides are burning at the same time. She was having heart rate over 100 even at rest , would go ridiculously high at times. We have a long covid clinic, but daughter is pretty much bed bound and genuinely feels to ill to attend. We had a private on-line consultation with a great cardiologist, and did a 24 hr ECG test at home (posted to us with instructions). My daughter is now on medication which has helped with the heart issues. The daily rash though is something else. There is hardly any food she can eat that doesn't make her react. I feel so sorry for her, and most doctors seem clueless about how to help.

Do you feel really tired most of the time as well? Long Covid is thought to be incredibly similar to ME/CFS.

Bluelightbaby · 27/12/2022 11:53

I got Covid (the first time) in November ‘20. I’ve still got long Covid now. My symptoms have improved but are still there. My breathing whilst it still isn’t as good as pre Covid, can still be laboured at times. I’ve had to go part time as I’m still suffering with ongoing fatigue. I have muscle and joint aches too. I also have skin flare ups on my face.
I was referred to long Covid clinic around a year ago but still haven’t heard anything and not sure what they could do anyway as it’s still so unknown

Original poster
Myzone · 27/12/2022 16:32

@Noonesperfect im so sorry to hear what your daughter is going through, I am completely drained. It sounds like your daughter might have Mcas. Try having a look at it and also dysautonomia. Doctors don’t really know much about mcas but I know there’s some specialist in uk who can diagnose it. I can let you know some if you want. I just feel like covid has damaged my heart even though bloods show no damage I just don’t feel right at all.

OP posts:
Original poster
Myzone · 27/12/2022 16:33

@Bluelightbaby hopefully you will get there soon. I’ve had it 3 times but feb when I had omicron variant I felt not bad until about 5 weeks later things went really downhill.

OP posts:
Noonesperfect · 27/12/2022 16:38

Myzone · 27/12/2022 16:32

@Noonesperfect im so sorry to hear what your daughter is going through, I am completely drained. It sounds like your daughter might have Mcas. Try having a look at it and also dysautonomia. Doctors don’t really know much about mcas but I know there’s some specialist in uk who can diagnose it. I can let you know some if you want. I just feel like covid has damaged my heart even though bloods show no damage I just don’t feel right at all.

Hi there, yes please . I would be interested to know about the Doctor's who can diagnose MCAS. This is what we thought it could be. Nightmare isn't it?

Original poster
Myzone · 27/12/2022 16:56

@Noonesperfect i have pm’d you x

OP posts:
Noonesperfect · 27/12/2022 16:58

Hi there, I'm new to Mumsnet. How do I access your PM to me 🤦‍♀️. Sorry

Noonesperfect · 27/12/2022 17:09

Hi I've managed to access it. Many thanks 👍. Hope you start to improve soon.

Original poster
Myzone · 27/12/2022 17:15

Thanks and hope you and your daughter get answer too, also maybe loon at long covid support group on Facebook and mast cell activation (uk only) on Facebook they are really helpful xx

OP posts:
Noonesperfect · 27/12/2022 17:23

Thank you so much 🙏. I will.

SatInMySpottyOnesie · 08/01/2023 21:59

This all sounds very familiar 🥺
My husband is 3 months post covid still coughing, sneezing (allergies), gastritis, raised BP, chest/ back/ jaw pain, keeps coming down with cold symptoms - congestion, sore throat, fatigue….
He’s had chest x Ray, 2 lots of bloods - all clear, 2 ECGs- one on a treadmill - all
clear, heart ultrasound - clear. Lung function test next week
After a half decent 4 days, just today he’s back to cold / flu symptoms again.
He’s at his wits end and I worry for his state of mind 🥺
I just don’t know what to do 🤷🏼‍♀️

Original poster
Myzone · 09/01/2023 08:23

@SatInMySpottyOnesie im really sorry to hear what you and your husband are going through but yes that’s exactly how I am, In fact I tested positive for covid for a 4th time 2 weeks ago again and that cleared quick but yesterday I woke up with another virus. It’s definitely had a massive impact on my mental health but I live knowing things will improve and for my family. I hope he gets back to his old self soon. Sending hugs.

OP posts:
SatInMySpottyOnesie · 09/01/2023 09:57

Thanks for the update and encouraging feedback.
He feels a little better this morning and has gone out on his bike.
We’ve had a long chat and I’ve looked on a few LC support groups. He most definitely is not alone and his symptoms seem quite common. I think just knowing that has made him feel a little better.
It would seem the best way through is to accept that life has changed now, he may continue to have bad days and that’s OK; but to make the most of the good days before he drives himself batshit crazy 🤷🏼‍♀️
thanks again

Original poster
Myzone · 09/01/2023 11:49

@SatInMySpottyOnesie just had a thought have a look at Nuffield health COVID-19 Rehabilitation Programme it’s free and you can self refer.

OP posts:
SatInMySpottyOnesie · 09/01/2023 13:53

Thanks
I did see links to that on some of the pages but to get on it you have to be diagnosed LC by a Dr- also we are not in UK
Nevertheless there is a lot of good information and advice out there 💪🏻

Starrr123 · 08/05/2023 09:57

@Myzone how are you now ? X

Psm92 · 13/10/2023 11:57

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