I wanted to start a positive thread about great care we have had on the NHS. I know the government have starved it if funds so it has been run down. In 2010 it was independently declared the best health system in the world. It is sad to see what has happened since.
My family from their dad, have a slowly progressive genetic disease. Sadly DH was not diagnosed until we had both children as he has a mild form, although our daughter has a more severe form. Some of the care is outstanding though and can not be replicated in the private sector.
DD is under a multi-disciplinary team with a consultant who she sees every few months co-ordinating ongoing tests and treatment. This will not be ongoing, just when the condition is worse. We did have to wait a bit for her first appointment, but since then all staff have been so professional and have gone out of their way to make sure she gets what she needs.
In a facebook support group I keep reading people in the US especially who are paying or getting their insurance to pay for individual treatments, but they are nearly always unhappy. Because the treatment does not work so well unless you have a specialist coordinating a treatment plan and making changes as time moves on. Different medical staff need to work together for the best results.
I know if we had even a co-pay system, as a family we would now be bankrupt. Or I would have to accept my DD and DH being extremely disabled and needing carers. I am so glad they have been able to get what they need and I hope it continues.