Just a sahm

[Fooshufflewickjbannanapants]

Ranty mc rantface!!!!

Meeting some new people at church today, usual chitty chat what do you do etc, "I'm a carer for my disabled dc"
Oh so a stay at home mum then? That must be lovely......
Me in my head
"Aside from the pain and heartbreaking emergency life saving operations
The routine ops, the routine hospital appointments, the eyes, the head, the legs,
the splints, the Lycra suit the wheelchair the specialist classroom chair, the ear defenders , the chew buddies, the wheelchair gloves..the stuff!!
The amount of stuff!!
The medication, the constant monitoring the meds, giving the meds ordering the meds, adding to the meds
The constant alert mode, is he off because of the life threatening things? Or is it his long term thing? Or is it his medication? Or is he just Normal poorly?
The changes needing to be made to the house, the right sort of car seat ( and car!) the endless communication with specialists.
Then the horror that is the gut busting and soul destroying Dla form, the ehcp forms, the Ed psych, the tick forms the checking and re checking, the paper work!! Oh my days!
The endless fucking fighting for everything just to give your child an equal chance, it’s exhausting, and that’s before the actual parenting!!"

Me in real life " yeah sometimes"

🤦🏻‍♀️ I'm a fucking wet lettuce and so angry at myself, no real point to this post tbh just needed to rant sorry

Did you or can you verbalise any of the harder stuff so you aren't left feeling like this? They aren't mindreaders so won't know unless you tell them. It sounds hard OP, hope you get a break sometimes.

I don't think they'd know this either, or even have any clue really.
Disabled can mean such a huge range of things.

I feel for you OP. You shouldn't have to "verbalise" or explain your situation to anyone for them to understand. I can't imagine how nasty-natured you'd have to be to make catty comments to a mother who cares for a disabled child.

The person you were speaking to is a twat OP.

No one normal hears that someone is a carer for a disabled child, turns that into a big standard SAHP role (no picnic with pre-schoolers) and then implies it’s all hahah heehee.

Of course you are angry.

Give them a wide berth going forward.

BOG standard

You very clearly told this person that you are a carer for your disabled son.

They were purposefully pretending to not hear and disregarded your job by telling you that you are a SAHM and it is lovely.

Many people get cloth ears on to avoid having to take disability seriously.

The onus is not on you to educate these fucking idiots.

Next time just give them a blank look and walk off.

Did they not just mean it must be nice spending lots of time with your child? Without tone it’s hard to tell if it was a genuine attempt to say something positive about your situation which hit a nerve, or condescending.