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Catatonia or a strange kind of seizure?

30 replies

Whoneedssleep22 · 27/10/2022 04:47

I’m not sure where to start. I’ll just start with what’s happened the last 2 weeks I think.
A couple of weeks ago, I experienced racing heart, pins and needles on scalp and one arm, and an eyelid that seemed droopy, and pupils were different sizes, saw a nurse at my GP surgery that evening who said it is probably anxiety, possibly cause my increase in medication. Which I accepted and may very well be the case!
then on Saturday, at lunchtime I had pins and needles on my scalp, and then felt like my breathing and pulse was slower, my breathing was very very slow. Then after that it was like being in a kind of trance, staring into space, unable to move, just stood in the same position for hours, but I was conscious. It was hard to respond to anyone, really delayed, and when I did respond my voice was strange.
I had food in the oven for the DC, and it took over an hour just to manage to get beige freezer food on a tray and in the oven, then when it was time to get it out I just couldn’t, I was frozen, I kept telling myself to just get it out, but my body just wasn’t doing what I wanted. I eventually got it out, so it was obviously possible to do it! I’ve got takeaways since then. Six hours later I was able to function enough to just move, and when I saw myself in the mirror my pupils were massive and my skin was bright red.
spoke to out of hours docs a few hours after it happened, and she just said that seizures don’t last that long, so what was it then? Had an awful flavour in my mouth too after, can’t describe the taste but was so strong. I have recently had a cough though, so could have been from that.
yesterady, pins and needles, strange hallucination type things, kept feeling things on my face that weren’t there:
I don’t know if I should ask the doctor about it or if they’ll just think I’m anxious! In between all of this in the last couple of weeks I’ve just been very confused most of the time with periods of normality, I feel normal now. But earlier today and a lot of the time it’s been hard to formulate sentences and speak. I’ve spent most of the last 2 weeks feeling like I’m in some kind of daze, it’s like being in a trance at times and I can’t pull myself out of it! And lots of anxiety. Not been able to go to work in over a week, in fact I can’t even leave the house.

oh I get a completely flat effect/feeling when it starts, it’s horrible. So strange.
for context, I’ve recently started a new medication that can lower seizure threshold, but I’ve also just stopped 2 others, and the ones I stopped are pregabalin and lamotrogine, which are anti epileptics, although I’m not epileptic. Which is what is making me wonder.
a mental health professional said it could be catatonia, but I’m not sure it’s like that after looking it up, but obviously I don’t know for sure.
I had an another episode around 5 weeks ago that was similar but much more extreme, but I don’t want to make this longer than it already is! (Visual distortions, whispers, deja vu, flushing, tingling, dilated pupils… was sent to a&e by nhs 121 but couldn’t stay after triage as I was too paranoid to stay)

OP posts:
Whoneedssleep22 · 29/10/2022 05:57

I just stopped the meds, didn’t taper.
I can see how it sounds catatonic but I can’t imagine catatonia following such a predictable pattern, or causing flushing, slow breathing and dilated pupils, but maybe it does. I don’t know.
that’s what’s annoying, that I don’t know!

OP posts:
Sindonym · 29/10/2022 06:18

Catatonia as a term tends to get used quite widely these days. Whatever the official term it sounds triggered by the meds changes so I would talk to whoever changed them.

Whoneedssleep22 · 29/10/2022 06:30

Medication changes are by 2 different teams which makes it difficult, and they don’t seem to like communicating, but yes I will try my best to.

OP posts:
PaulaTrilloe · 29/10/2022 06:44

Yes you can ask your GP for thyroid blood tests.

In fact, they screen for Thyroid when people present at Hospital for psychiatric crisis reasons to rule it out.

Undiagnosed thyroid conditions affect cognition, slurred speech etc

Whoneedssleep22 · 29/10/2022 07:15

I’ll ask about thyroid when i next see the GP, I think there’s an online consultation option in my surgery website. I had a thyroid test a couple of years ago now I come to think about it, and it came back as “acceptable” so my thyroid is probably ok to be honest. But you never know.
I don’t actually have a diagnosed anxiety disorder by the way (although I have been feeling anxious these last couple
of weeks)
I have autism and adhd.
I hate appointments with doctors as I can never seem to be able to express myself, so I just end up putting them off until the problem goes away or becomes critical! Which probably isn’t sensible.

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