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Anyone else's autism/ADHD worse since having DC?

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joffr · 26/10/2022 22:36

My son is profoundly autistic, nonverbal and doubly incontinent, ADHD too. I understand a lot of what he goes through as if we're working on the assumption that I've got what he has on some lesser level, I still experience it

Now I suppose my question isn't is it 'worse', but rather, can you mask less successfully at times, and does it take a bigger toll on you?

Functionally - find I am a brilliant masker but find social situations exhausting. Since having DC my own 'autism' seems worse. I need time alone and like to be left to do my own thing every evening. Utter bliss. I feel like my every word is measured and it's exhausting (I don't have any form of anxiety but find the mask to fit in starts to slip and I can only keep it on for so long). I am described as a lovely person by family and friends but I always say something inappropriate, usually only realising once it's too late. I really don't mean to Sad I sound so strange

I don't like certain noises and if I'm honest, I too would sit rocking with my hands on my ears. It's soothing and it works - I won't do it though! I know it looks weird to other people obviously. I will have a meltdown if one particular sound I'm thinking of is heard by me. Which is why I remove myself straight away without hesitation, in order for people not to see me Blush

I am chaotic. I try so hard to have everything planned and organised. And I succeeded with the finer details (with a lot of pressure on myself), then I forget the main part, like packing a hospital bag and forgetting the actual hospital visit Smile ridiculous but even with reminders set, it just slips from my brain at random. The self hatred is horrible!

I can't keep friends as I don't like catching up every so often in person. I don't want to socialise in the evening. I want to unwind. I need time to recover from being in the world where I have to be seen and talk

Sucker for routine and I find a change in my routine unbearable in certain examples - such as my bedtime routine

Just wondered if people felt less able to cope with masking since having DC?

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