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Is deafness a disability?

81 replies

FindingMeno · 25/10/2022 11:19

Interested in others thoughts on this.
I am a moderately deaf hearing aid user and I don't class myself as having a disability although I am eligible for a disabled person's railcard.
I just muddle through problems and don't expect anyone to make any particular adjustments to help.
But maybe I should if I need to? Is deafness a disability and is it only such at a severe or complete level?
Opinions please!

OP posts:
LaurieFairyCake · 25/10/2022 12:54

I lost my hearing in both ears completely a couple of months ago as I had to wait til the wax softened enough for it to be auctioned

It was terrifying for me, I felt very scared and very vulnerable for a week - by the end of it I couldn't talk to anyone, couldn't work and was feeling very tearful

Scared the shit out of me. You're amazing Flowers

LaurieFairyCake · 25/10/2022 12:54

Suctioned not auctioned Grin

itsgettingweird · 25/10/2022 13:02

LaurieFairyCake · 25/10/2022 12:54

Suctioned not auctioned Grin

If you auctioned off your ears you'd definitely be amazed as deaf 🤣

OP it is a disability in the fact it is disabling. That doesn't mean you see yourself as disabled and that's fine.

Some people will aids will need very little adjustments and tbh they should be readily available is most places anyway.

My sons a swimmer and now they have a strobe light at all meets you request at time of entering.

Far more young swimmers are competing now due to this simple adjustment. Most places also have a whiteboard where they write which meets they are whipping (calling up). They've finalised realised deaf swimmers take their aids out for most the time they are poolside!

However to be classified as a deaf swimmer you need to have a certain level of hearing impairment.

Interested in this thread?

Then you might like threads about this subject:

gogohmm · 25/10/2022 13:10

It's partly down to you, my dd is autistic but isn't disabled yet another person with autism (of same "level") could feel disabled

Atmywitsend29 · 25/10/2022 13:15

I have moderate conductive hearing loss in one ear, am supposed to wear a hearing aid. (I only don't because I ran out of batteries)

I don't consider myself to be disabled, mainly because I am just used to it, I don't claim any benefits for it, and other than having to get people to repeat themselves alot I don't feel it has too much impact on my life, but yes it is technically a disability.

RedPandaFluff · 25/10/2022 22:14

This is an interesting conversation . . . I have Usher Syndrome (Type 2) which means I am losing my sight and hearing. I wear hearing aids and I no longer meet the visual field standard for driving.

I was filling out a form the other week that asked if I had any disabilities and I genuinely didn't know whether to say yes or no!

Nsky62 · 25/10/2022 22:28

Def yes
Recently been diagnosed with Parkinson’s, I ‘m disabled by not being able to walk (when tired I nearly fall over my feet).
Also have problems with distance 3D vision, optically correct, affecting me in general, through meds it has improved slightly, so therefore a dopermine issue.
Unfortunately I still have to wait and see Parkinson’s nurse beginning of December

primeoflife · 25/10/2022 22:32

@FindingMeno why do you find @glassfully's suggestions unhelpful? It's what the Deaf children I teach ask for!

The only bit I disagree with is hearing impaired as no one in the field who knows anything uses that term now.

vinoandbrie · 25/10/2022 22:40

@LetItGoHome @Mangolist this is me too, I am profoundly deaf in my left ear, I have no left ear drum.

I was brought up to muddle through, only now as an adult am I starting to go ‘wait, this does take a toll’. Things like having to sit in the right place and being able to localise sounds as you say, but also in career terms, I can’t network how other people can, I simply can’t work a room as I can’t hear well enough due to background noise. I’m fine one on one. When trying to network at an event, I can smile and nod but come across as slow and have to ask for things to be repeated multiple times. Embarrassing.

Is there really something that can be done for this nowadays? I would LOVE to be able to hear like other people, it’s my fantasy - although perhaps in reality I’d find it too much and not like it at all!

Emily1583 · 25/10/2022 22:41

Most definitely. It's one of your senses.

SteveBuscemisRheumyEye · 25/10/2022 22:51

@primeoflife she said they were helpful, not unhelpful!

FindingMeno · 25/10/2022 22:52

primeoflife · 25/10/2022 22:32

@FindingMeno why do you find @glassfully's suggestions unhelpful? It's what the Deaf children I teach ask for!

The only bit I disagree with is hearing impaired as no one in the field who knows anything uses that term now.

I think they're helpful, not unhelpful!

OP posts:
LadyChamberlain · 25/10/2022 22:54

Genuine question, are deaf people able to access any kind of disability benefit?

Mangolist · 25/10/2022 22:55

vinoandbrie · 25/10/2022 22:40

@LetItGoHome @Mangolist this is me too, I am profoundly deaf in my left ear, I have no left ear drum.

I was brought up to muddle through, only now as an adult am I starting to go ‘wait, this does take a toll’. Things like having to sit in the right place and being able to localise sounds as you say, but also in career terms, I can’t network how other people can, I simply can’t work a room as I can’t hear well enough due to background noise. I’m fine one on one. When trying to network at an event, I can smile and nod but come across as slow and have to ask for things to be repeated multiple times. Embarrassing.

Is there really something that can be done for this nowadays? I would LOVE to be able to hear like other people, it’s my fantasy - although perhaps in reality I’d find it too much and not like it at all!

You can get bone conducted hearing aids nowadays. Maybe worth asking about? I tried one once and to be honest it terrified me! Noise from all sides which I'm just not used to!

primeoflife · 25/10/2022 22:56

@FindingMeno lol thank goodness for that, I thought there was a big hole in all my training!!!

FindingMeno · 25/10/2022 23:01

LadyChamberlain · 25/10/2022 22:54

Genuine question, are deaf people able to access any kind of disability benefit?

Not as far as I'm aware.
But happy to be corrected.

OP posts:
DatasCat · 25/10/2022 23:08

I have mild to moderate hearing loss, have had it since birth, and have worn hearing aids (on and off) since I was three. For many years I refused to consider myself ‘disabled’ with all the baggage and stigma that term carries.

But there’s no such thing as a ‘mild’ hearing loss, especially a prelingual one. It affects your language and social development. I’m aware I process speech differently from the norm; it takes me fractionally longer, and because I learned to read early, I see words in my head as I speak. If I learn a foreign language, I need the written as well as the spoken words or I can’t process the pronunciation properly. My conversational timing in groups is also slightly off, so I don’t always get jokes and banter. In my second year at primary I was electively mute, and I now realise that I was cognitively overloaded with all the noise and demands I was having to process; stopping speaking was a way of trying to simplify things in my head.

One final point: short and long sight can be corrected to near normal with glasses in most cases. Hearing loss cannot be restored in this way. Hearing aids do not make your hearing normal, just functional to varying levels. So TL;DR: deafness is a disability. A hidden one.

LetItGoHome · 25/10/2022 23:14

Mangolist · 25/10/2022 22:55

You can get bone conducted hearing aids nowadays. Maybe worth asking about? I tried one once and to be honest it terrified me! Noise from all sides which I'm just not used to!

My daughter has a middle ear implant (vibrant soundbridge) and it's great. She had a bone conduction hearing aid before but since it conducts the sound to both cochlear it didn't much help with the sound localisation. The soundbridge enables the deaf side to hear independently, which is key. The bone conduction hearing aid was still very useful and is definitely worth looking at especially as it can be a non surgical option.
@venoandbrie it's definitely worth a chat with your audiologist to see what options are out there for you.
@Mangolist my daughter has microtia too xxx

LetItGoHome · 25/10/2022 23:19

DatasCat · 25/10/2022 23:08

I have mild to moderate hearing loss, have had it since birth, and have worn hearing aids (on and off) since I was three. For many years I refused to consider myself ‘disabled’ with all the baggage and stigma that term carries.

But there’s no such thing as a ‘mild’ hearing loss, especially a prelingual one. It affects your language and social development. I’m aware I process speech differently from the norm; it takes me fractionally longer, and because I learned to read early, I see words in my head as I speak. If I learn a foreign language, I need the written as well as the spoken words or I can’t process the pronunciation properly. My conversational timing in groups is also slightly off, so I don’t always get jokes and banter. In my second year at primary I was electively mute, and I now realise that I was cognitively overloaded with all the noise and demands I was having to process; stopping speaking was a way of trying to simplify things in my head.

One final point: short and long sight can be corrected to near normal with glasses in most cases. Hearing loss cannot be restored in this way. Hearing aids do not make your hearing normal, just functional to varying levels. So TL;DR: deafness is a disability. A hidden one.

Well said, and your final point is spot on 👏👍

Drywhitefruitycidergin · 25/10/2022 23:28

LadyChamberlain · 25/10/2022 22:54

Genuine question, are deaf people able to access any kind of disability benefit?

Deaf children can. My daughter is moderately deaf & at an NDCS event i was the only person in the room not claiming disability benefits. It genuinely hadn't crossed my mind because she wasn't costing me any more than my hearing daughter.
I kinda wish I had now because it would be really useful to have radio aid at home and some 1:1 rather than group lessons at swimming for example but she's 7 now so I worry they'll say why haven't you claimed up-to-now.

OP - I never know whether to tick yes for disabled or not for her as she does amazingly well academically although socially it's more difficult.

WB205020 · 25/10/2022 23:31

I had numerous problems with my ears as a child. Several sets of grommets and repeated ear infections to the point they became silent infections with no pain. That caused lasting damage to my ear drums and inner ear. Family had been on at me to get my hearing checked for a long time but I put it off until last year when I had a really bad cold and my eustation tubes collapsed and I lost 90% hearing. Fortunately some of it recovered but I'm classed as having moderately-severe hearing loss. Hearing aids changed my life. Not being able to hear my kids properly before to now with aids is hard to describe. It took a bit of getting used too wearing the hearing aids. Yet I wouldn't be without them now. Would I class myself as disabled.....I've not really thought about it but perhaps I am.

JoeMaplin · 25/10/2022 23:40

Yes under the equality act. However those
whi are Deaf ( as in big D Deaf) do not consider themselves to have a disability. Deafness is part of their culture. This is different to someone like myself whose first language is English, but is deafened - ie became deaf as an adult.

SpinningFloppa · 25/10/2022 23:44

Yes

BionicEar · 26/10/2022 00:15

As a deaf person you can apply for Personal Independence Payment (PIP). It is not automatically given as you have to give good reasons as to why you should be entitled to it.

if wanting to find out more, then I would suggest looking on Deaf PIP groups online that can advise how to apply and what things to put down.

if you are working you can apply for Access to Work to do an assessment of your needs to consider what support can be put into place at work to best support you in your job. For example this may provide you with a loop to use at work.

You can apply for NOW bus pass to use on buses.

You can apply for concessions rates to places such as cinemas/tourist attractions. For example if you are a National Trust member you can apply for a carer’s card which enables you to take someone in for free with you to provide support.

A lot of deaf people tend to downplay their disability as so used to being told to just get on with it.

Deaf people often suffer from concentration fatigue which leaves them very tired at end of day from all the listening/lipreading. This can also impacts on their mental and physical health.

What kind of things can you say impact you as a deaf person? Here are a few…

Not being able to follow conversation clearly. Often having to guess what is said or getting others to repeat. Usually they miss bits out or tell you “oh it doesn’t matter, wasn’t that important.”

Not being able to hear announcements in public places. Good example is a tannoy announcing train is now departing from a different platform. Most deaf people aren’t going to hear that and end up having to ask others what has just been said.

Difficulties with using telephone especially if lots of background noises or a difficult accent.

Difficulties with following conversation in noisy situations or struggling to lipread/understand difficult accent/beards/facial/tongue piercings/masks obstructing the face. Makes situations like hospital appointments more stressful.

Not being able to hear danger sounds such as car approaching fast/alarms going off. This increases more when tired/not able to wear hearing aid/implant.

At home risk of danger such as fire increases if cannot hear alarm at night or if in shower. Did you know specialist equipments for the deaf is way more expensive than your bog standard smoke alarm, and not all councils provide it for free either?

In response to the OP yes being deaf is a disability even though often people play down the impacts of it.

Florak · 26/10/2022 00:19

This is a really interesting post - not just the OP’s question but people’s experiences.

My DS12 has severe unilateral hearing loss and it does affect him quite a bit, swimming lessons were difficult, he struggles with PE lessons in echoey halls and gets tired from having to concentrate hard to listen at school. He wears a hearing aid but at primary school the school seemed to have the impression that meant that he was cured and no special allowances were made, and we were treated as if we were making a fuss for requesting that he be seated in a better position for listening, for example.

I used the parent and child parking places later than with my older DC because he had less awareness of where cars were coming from, so I worried if I couldn’t hold his hand when I was pushing a trolley. I always expected someone to have a go at me if his hearing aid wasn’t visible but luckily they never did!

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