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Son was intubated :(

4 replies

Lucyrobbo12 · 21/10/2022 10:42

Hi all,

thought I would reach out on here and see if anyone else has had a similar experience.

My son, who is 21 months, got severe croup and so had to be intubated as he needed to rest and recover and his breathing was so laboured bless him. It was awful to see and I think I’m suffering from PTSD. He came home on Sunday which was wonderful and I feel so lucky that he’s back with us and healthy again.

One of the meds he was on was Dexamethozone (sp?) and has had to be weaned off it due to how much he had to take. His last dose was 3 days ago, but we’ve been finding that his mood has been all over the place and he is tantruming all of the time and sleep has been dreadful. Refusing to sleep in his bed, waking up at different times and just not going back to sleep, screaming through the night, getting cross if I’m sitting or standing, it’s been so hard to watch him go through all this and me and my husband are so emotionally and physically drained.
They found that he also had a bad chest infection which also caused him to suffer so much with the croup.
It is unusual for a child to be intubated due to croup but they are finding it’s more common at the moment after the lockdown.
I was told the Dex takes quite a few days to leave the system (especially if you’ve been on it for a while) and he was on it for almost 2 weeks and he can experience these types of symptoms because of it. Just wondering if anyone else has experienced this? Or can relate?

Thank you!

OP posts:
KidsDr · 21/10/2022 10:48

You should consider contacting the hospital(s) via PALS to see if any type of debriefing service is available to process these very frightening events. Yes, dexamethasone causes so called "roid rage" but hopefully will settle as its out of his system soon. Glad your son is now at home and getting better ☺️

Lindy2 · 21/10/2022 10:51

Oh gosh. I don't have experience but what a scary ordeal you've all been through.

He's only been home a little while. It's going to take a bit of time to settle again and for you all to recover emotionally from what happened.

All I can say is be gentle with yourselves. Do whatever works/helps to get everyone through the next few weeks regardless of normal routines and I'm sure in a little bit of time things will be more normal again. I'm glad your son is recovering .

Lucyrobbo12 · 21/10/2022 10:52

Thank you. I forgot to mention that he’s having ENT look down his throat in a few weeks to see if there if there is anything structurally wrong (floppy larynx/large noids)
It has been very traumatic and awful but hopefully soon it will just be a horrible memory!

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Lucyrobbo12 · 21/10/2022 10:54

Thank you! I think Covid has a lot to answer for!

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