Long term conditions and unable to work. Anyone else?

[multiplereasons]

Feeling down about it. No real reason for this thread except to hopefully find some support from others in a similar situation.
Everything just seems a struggle and it’s not how I wanted things to be but with various conditions it’s so hard. If one is ok I’m having a flare up of another and so on 😞

Hi there,

I am in the same situation as you. I have at least three chronic conditions, and I get really sad about how things have panned out for me sometimes.

How are you feeling at the moment? Could you tell me more about your situation?

I feel very alone in who I am sometimes and try to hide my problems (physical and well as emotional) from people because I have found people tire easily when a person has ongoing issues that don't resolve with time.

Sending a hug and hoping you are ok, I know that you posted a while ago, but you are not alone ❤

Same here.

It's lonely and really boring. There's always the thought of what if, I had a good career which was on track for a great career and its gone. I'll never be able to get it back. I'm not well enough for volunteering or any of the other "helpful" suggestions

The benefit threads on here make me want to scream with frustration - one day I was "you" and now I'm not, does noone have the ability to realise that or are they all too selfish that they can't see past I get a free car to go with the fact I have no life, daily pain, am a burden on my family, am not raising my DS the way I had planned to......I could go on all day.

DH is fantastic but even he doesn't quite get it. If I say oh I'm going to see x friend on Saturday, he will say why can you not make plans during the week so we can have the weekend together.
Because everyone works during the week, so it's just me here alone, waiting for the time to pass.

I agree as well about hiding your problems "grand, fine, keeping well enough" because once you don't get better very few people care. You find out who your real friends are and that circle can be very small. And even they don't realise how important a meet up can be to you, as its your first time meeting somebody whose not family in 3 months - but they saw a different friend last night, or the week before.

I'm waffling now, just letting it all out I suppose. I'm with you in solidarity. The main answer I have is its shit. But we do what we can to make it through, today has been a crap one for me, tomorrow I'll try and make it better.

Shit happens, we can get over it or roll in it. Today I've rolled, tomorrow I'm going to wash myself down and climb over.

I'm in the same boat. I also find others don't seem to understand why you haven't got 'better' with time and also there can be an undercurrent that this is somehow because you aren't trying hard enough- as if these things are within out control. They often are not

No advice really- except trying not to let what people say / think get to you too much. They just don't get it, maybe you can't unless you have lived it yourself.

Hello.

I'm not able to work any more due to disabling, long-term conditions.

I feel like my world is shrinking every day. I don't miss working; At the end I was hardly ever there, and when I could attend I was useless. I don't think people understand the effects that pain and strong medication can have on your cognitive abilities. I feel like my brain is just mush and I try to do puzzles to stop it getting any worse. I find it hard to pick up new skills and learn new things.

Like a previous poster, I get very frustrated st some of the ableism on here and in society in general. If I'm lucky to get out in my wheelchair I feel completely invisible and worthless.

My husband and family are brilliant, though, and keep me going. I know if I'm having a miserable day that tomorrow might be better. I like to have things to look forward to, to help me feel brighter. A drive out in the countryside around our home, a concert or weekend away. I know I'll be knackered and in agony by the end but a change of scenery does a power of good.

If it helps any I never think a person in a wheelchair is invisible or worthless. I have a friend with MS who can't walk at all, and I know the effort she goes to simply getting ready and out the door.

Feeeling stressed today about the new changes to ESA / WCA anyone else?

Pain not good today have a hot water bottle and pain meds, going to see if it settles then try and have a look at the details of the above.

I'm in the support group for cont based ESA and was told they don't need to reassess it again due to serious conditions etc. The thought of them opening that tin of worms is not good.