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Neurotypical growing up with neurodiverse parents & sibling

14 replies

failinghard · 26/07/2022 12:53

Hi there, it's recently come to my attention that both my parents are neurodiverse as well as my sibling. My brother was diagnosed fully in adulthood. I believe myself to be NT. I had a really traumatic childhood and am still healing at 39 years old. I am processing this new insight.
I wondered if there was anyone here with experience of this? Or if there are any books or charities that could help me?
Thank you
X

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Friarclose · 27/07/2022 00:39

This is me. Dm is mildly autistic with obsessive tendencies. She fixates on one thing and then it's all she wants to talk or think about. She's also not great at the emotional side of parenting. Practically, she's great. But if I need emotional support, she's not who I turn to.

My dad died in 2021 of alcoholism. He had a lot of rage and anger, and I believe displayed Asbergers traits.

My db and dsister both have ADHD, and brother also has diagnosed Asbergers.

I consider myself NT. I'm 39 too.

It's bloody lonely. I really understand what it must've been like for you growing up. Its still lonely now. I love my dm and siblings but I can never go to them for emotional support. Luckily I have a great dh and friends and I get that from them. Surround yourself with good friends is the only advice I have. I'm not sure of any books etc unfortunately.

Watchthesunrise · 27/07/2022 00:46

My cousin's child is in this position. She is 16 now. Dad and brother autistic; mum with learning difficulties. It's fair to say she's not doing so well. They live in chaos, house is a hoarder's house. Watching for advice.

failinghard · 27/07/2022 07:46

@Friarclose really good to connect with you on this, it's a pretty niche childhood experience, I wasn't sure if I would find anyone who has been through it. So sorry you went through it. I agree that loneliness is the defining factor of it. My DM sounds very similar to you, she has almost zero empathy but she could do the basics duties of motherhood, like there was always an evening meal on the table. She has specific interests and she doesn't really seem comfortable talking about much else. Our relationship is ok but I would never ever confide in her or expect sympathy from her. She is now disabled but thankfully I have a NT step dad who cares for her. Other than him she doesn't have any friends and never has had close relationships.

My Dad is a very unpleasant man - like yours full of anger and rage. He has stayed in the same town for his whole life and has never had any friends. He is racist, sizeist, sexist and just a bully tbh. He was terrible for my self esteem so I haven't had much contact with him over the last 5 years. When I had my daughter and she was 2 months old, he sent me a black bin bag of random stuff for a child of all different ages / household stuff that I would already get in my normal shop like wet wipes and horrible cheap sponge - you could tell he was trying to be nice but it was just so misguided and also late.

All this has come to a head in my mind because I just got married. My dad had some kind of mental health episode at my wedding, was extremely rude to me, avoided me (at my own wedding!) and left early without saying goodbye. He didn't make any effort to talk to my DH who he had never met. A couple of my partners family tried to speak to him but he wasn't amenable. And my MIL commented she felt he was deeply on the spectrum and was out of his colour zone and he prob could not handle how our wedding wasn't very traditional.

My mum didn't smile hardly at all. She seemed really out of her depth emotionally and socially. Realised I had never seen her in a social situation really.

I did a speech and was very proud of myself - neither my dad, mum or brother have said well done. None of them brought a gift. None of them even said I look nice.

We never had any adult influences when I was younger as they had no friends. We never did anything what I would
Call fun - it was always stuff that was my dad's special interest like war stuff, planes, trains and tonnes of National trust places. Literally never went to a soft play.

Childhood felt like I was in prison. There was no love at all. No guidance. No validation of my feelings. No safe place to land. No encouragement. If I had friends over they were not warmly welcomed, quite the opposite. I was bullied at school and came home to a cold environment. Tbh I am still angry. They should never have had kids.

I believe that I suffered from PTSD and borderline personality disorder for the rest of my teenage years and prob only found stability in last 5 years. I tried to take my life twice, got into drugs and put myself at risk so many times. I am in a really good place now and have loads of friends but it's all down to me and nothing to do with the start in life I was given.

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BruisedSkies · 27/07/2022 07:53

That sounds so hard. Poor child you, she went through a lot.

failinghard · 27/07/2022 08:40

@BruisedSkies thank you for caring! I have had a lot of therapy and chosen very different paths to my family and am making sure my children have a very different childhoods. On top of neurodiversity, both my parents had pretty shoddy parents themselves, so I am just determined to do things differently for my family.

I know I always felt different to my family. Like the odd one out. Maybe in time I can come terms with some of the ND traits I find stifling eg I often say they are completely joyless but it's not that they just find joy in very specific things, and maybe try to see them as positives.

My dad was so classic - obsessive interests which changed every couple of years.

I have gone no contact with my Dad now, there is no way we can ever see eye to eye, he is so wrapped up in how I should act, how I should be, and talks to me like I am a problem (because I have done my own thing in life - moved around a lot, different jobs, travelled loads, lots of friends) and it's just too toxic to be around. The first thing he said to me at my wedding was 'well it's a relief that someone has finally taken you on' - not 'you look beautiful', 'I am proud of you' or even just 'congratulations'. It went downhill from there as well sadly. Not good for my self esteem.

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BruisedSkies · 27/07/2022 22:26

It sounds exhausting for you to be around them. Just waiting for the next hurtful comment.

failinghard · 28/07/2022 06:36

@BruisedSkies yes that is exactly it

My mother wasn't much better at the wedding. Spent setup up day making me run around and get her drinks. Then made several digs how I had abandoned my daughter (left her with my mother in law and her for the afternoon but was coming back to check on her regularly)

She sat there with a miserable face most the day and obviously didn't really know how to be in social situations. No comments on saying I looked nice or that she was proud of my speech.

That was the first time they had socialised with my friends in my life so was eye opening to see how hard they find it!

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ArcticSkewer · 28/07/2022 06:46

You'll be lucky to find much support online. It's usually jumped on a few messages in. I expect you are used to having your feelings ignored and experiences invalidated by strident self-centred voices shouting you down for daring to have opinions and needs, so when it happens you'll cope well! Always some advantages hey

I had the same experience. It's left me, as family spokesperson and carer, unable to really see 'myself' as I was so wrapped up in my rescuer role and my needs were never seen by others so I am used to not seeing them as well.

I hope it's easier knowing that they couldn't help it? I think our generation/s had it hard because our parents, possibly also siblings, were not diagnosed. So they had no insight and noone else did either. I've found it easier to forgive and accept as I age, and with that insight.

I am regularly very happy my own children are getting a better childhood.

failinghard · 28/07/2022 11:23

@ArcticSkewer thanks for your note, sounds like you're in a bit of a bind with yours, for that I really sympathise. I also know the feeling of not having a clear identity, my parents did absolutely nothing to validate who I was and I had years meandering in life trying to figure out my story. Not only was I in a house full of undiagnosed neuro diverse people but I was also a very emotional and sensitive child, and I still am to some degree.
I have gone no contact with my Dad and keep my Mum and brother at arms length. My brother actually has a fairly sunny disposition but it's really hard to get on a level with him - his autism is the most pronounced - and he travels for his job so we haven't been in the same country much for last 20 years. My mum lives a way away and thank god has a fairly NT long term partner who is lovely to me (most the time) and who takes good care of her.

What do you mean 'jumped on'?

I think having the insight is prob going to be easier to tolerate my mother definitely.

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Nyfluff · 28/07/2022 11:40

I could describe my family and experiences very similarly. Except that I'm ND, and one parent was a narcissist with bpd and the other soothed the narc. The narc was a self appointed expert and controlled the family, for some reason they'd lie about me so my other parent would 'side' with them and not engage with me. I was lonely, anxious and overwhelmed and didn't get any emotional support or understanding.

My narc parent has no friends and ruins every holiday or event, they try to control and criticise everything, from the words I speak to my own feelings.

I think the worst part was being misunderstood and constantly invalidated. As an adult I'm never good enough in their eyes, and my childhood has left me with perfectionism and a need to feel loved.

ArcticSkewer · 28/07/2022 11:45

Sorry to hear about your childhood, Nyfluff.

Is it perhaps possible that the parent with bpd, with no friends, who tries to control everything, whose child is ND, is also on the spectrum and mis-diagnosed - very common in women with autism in particular.

failinghard · 28/07/2022 15:10

Sounds just like my dad @Nyfluff

Strongly suspect he is also narc

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HappyLouLou · 29/07/2022 05:53

I’m so relieved to have found this thread. I am in a similar position and it’s so hard to find information and stories! I am neurotypical, my older sister has an official ASD diagnosis and I’m pretty sure both my parents and my older brother have it as well. Two of my nephews have been officially diagnosed also.

I can relate to everything that has been discussed, and sending love and support to you all.

The diagnoses in my family are very new and I am still wrapping my head around how my childhood was affected and why I have found being part of my family so difficult. It’s a lot to process.

I moved away from my family a few years ago, and I’m so glad I did. I know it’s not their fault but the constant disappointment and lack of understanding, support and empathy just became too much for me!

failinghard · 29/07/2022 08:52

@HappyLouLou so glad you found us and vice versa! Even though it's fairly uncommon, I feel like there must be so many people out there with a similar experience who are just so lost with it all.

My personal journey to this realisation started from therapy. I had so many self esteem issues in my twenties and early thirties that manifested in all sorts of self destructive ways (suicide attempts, brushes with the law, dependencies, bad crowds, eating disorders - all of which made me feel like even more of 'a problem' than my parents already made me feel like) and just a lack of moral compass, sense of identity and confusion about my story. I always knew my home life was not normal. I used to cry all the time, mostly in private, sometimes so my parents could hear - they never came to comfort me. For a long time I buried the emotional neglect, then started therapy about 10 years ago and realised it was not normal. That a young child shouldn't be so upset all the time and withdrawn as I was. I was asked to leave the parental home at 17 because of my behaviour and went to uni because it was my only option to get out (not because I actually had any interest in the degree course) and thinking back I would class me as feral. I had no idea how to be, so immature, so incredibly vulnerable. I was probably the worst kind of friend too, had no experience of community, give and take, collaboration.

Over the years, I have thought more and more about the early years of my life. Mostly it was lonely, a lot of time spent playing by myself but I think this was good for my imagination if I am trying to find positives. I think I was my dad's obsession - the apple of his eye - until I wasn't anymore. I think my dad played me off against my mum. To hurt her actually. He was angry, volatile and sometimes violent. They both were. He got more and more controlling as the years went on. Neither of them had any friends, they didn't speak to part of their families on both sides, and my dad seemed to isolate my mum further. I feel like my Dad had more going on than just ASD, he was such a bully... bullied all of us and we in term bullied one another. He is like the dad out of in betweeners who takes the piss out of his son and does anything to undermine him, everything is a joke.

My mum presents in different ways and has become increasingly unmasked in recent years. Very cold. Never says anything nice about anyone. Very negative person. Again, no friends, no dinner parties, no holidays with other families. She rarely went out and did stuff with us or for herself, a home bod. No real hobbies - but had things she enjoyed at home eg cross words, computer games, cooking and she worked in accounting. She likes routine and familiar places. She wasn't maternal in anyway but fairly dutiful (in some ways - she announced when I was 10 that I had to do all my own washing). She used to just ignore me,
Sometimes for months and months at a time, almost look through me. She was so rude to any of my friends, when they phoned or came round, to the point they didn't bother anymore and I felt too embarrassed of them to invite people round. Sometimes someone would ring for me and she would say I wasn't in. We went shopping once together during my childhood. We never did mum and daughter stuff like go out for lunch. She didn't have an interest in make up,
Dressing up etc - never told me I looked nice, not once.
Needless to say I never applied myself at school. Basically cause they didn't care what I did or didn't do. I never did any homework as they never helped me with it. They never were interested in what options I had taken, what subjects I enjoyed or did not, there was zero guidance or encouragement. They used to go to parents evening but never once discussed what my teachers said. They made no attempt to get to know me or help me know myself. They never told me how to look after myself and protect myself (from predators) and unfortunately ended up dating much older men from 15 which has affected me badly in my adult life. We never did very much fun stuff - yes some meals out, visiting adult places like museums and National Trust which I found incredibly boring. Most the tome during teenage years I was told to get out the house, they didn't want me around. I wasn't popular at school, it took me a while to find my people, and was bullied a lot. It was so horrendous to be bullied at school, come home to hostility and then be forced out onto the streets with no where to go and no one to hang out with. I was just so lonely and wanted to die from about 11 years old. Not normal!

My brother is ASD and I wish I could say they were good at parenting him but unfortunately probably worse. Just took the piss out him and did nothing to boost his confidence. And dragged me into this type of dialogue too, something I feel terrible about today.

There were also lots of accidents when in care of mum - I fell down the stairs and badly hurt my head, brother chopped his finger off etc - she just seemed let us play unsupervised all the time. I have seen the way she is with my baby and I'd never leave her with her.

I absolutely hated my childhood. It was terrible. They should never have had children. What doesn't make sense to me is that they also fostered children and my mum was a child minder for sometime. There are so many things that don't make sense.

I hope it wasn't as bad for you!

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