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Anyone here take LDN for chronic pain, or ME/CFS?

3 replies

buzzheath · 22/07/2022 23:03

I was diagnosed with ME/CFS last year - I am moderately affected. Can potter about at home and work from home but physical exercise/long days out/walking tire me out a lot. I have been prescribed LDN. Starting at a dose of 0.5ml every morning (my consultant said morning is better as it won't disturb sleep). A bit worried about potential side effects, and I suppose also of it not having any effect at all. Any advice/insights/experiences much appreciated. Thanks!

OP posts:
MeMeMeYou · 01/11/2022 21:11

How are you getting on with the LDN now? I'd like to try it and am similar to you in terms of severity. Also wondering who you see that prescribes it as I cant frt it on NHS but thinking of private prescription. Would prefer to be under a Dr whilst taking it tho

Anotherbloodyusername2 · 01/11/2022 21:22

@MeMeMeYou

In case you don't get a reply from the OP, my husband got it after getting a load of information from a FB group catchily named "LDN low dose naltrexone for ME/CFS myalgic encephalitis and fibromyalgia".

(He tried it briefly then stopped but I don't think his experience will be relevant to you)

MeMeMeYou · 01/11/2022 21:44

@Anotherbloodyusername2 thank you, I'll look it up. I am on a fb group for it but may be a different group. I'm definitely going to give it a try one way or another!

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