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Help with skin condition

9 replies

Danigirl1983 · 21/02/2022 12:56

Hey guys I'm sorry to post but I feel iv tried everything else, I am now posting on social media to see if anyone has anything similar,. This is literally ruining my life I have OCD when it comes to skin issues and God decided to make me live with one. My worst nightmare, all started last may as skin coloured bumps. Immediate panick for me. It went red. Itchy bumpy. Not scaly, paid privately for Dermatologist. She thought vasculitis. Gave me Steriod it took inflammation down great. However I feel it's damaged my skin. I get red patched when stand up and it burns. Fast forward 8 months it's worse. Leg redness all way nearly to knee. This redness drains when I elevate,. My dermatologist last week said he think it's vascular as it goes raised,. Got blood pressure took on ankles. Found to be to high. Waiting on a vascular specialist appointment probably wait a year eh. Still waiting on NHS dermatologist,. I am miserable. I am desperate. I have tried so many diets. I don't sleep great. I hardly go out. It stops me eating certain food. Sleeping certain ways. Wearing certain clothes. It's lietrally ruining my life. I am tried of fighting with it,. Currently flaring again. So steroid on area and then the burning starts. I can't win, I try not to use alot steriod just dab areas raised. I don't know what to do anymore. I had a biopsy done in aug. Was told showed inflammation in skin. And on looking at it they thought dermatits. However iv yet to see any like mines. Sorry for the long post but I am dying here from my mental health with it. Already tried to end my life in August and I have young kids. And when I look at them I just feel so awful. But I don't know how to live anymore,. If I stop steriod it will all raise and the itch alone is hard for me but I continue steriod it may damage skin more. I'm stuck and sad 😔

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sixtiesbaby88 · 21/02/2022 13:08

Vasculitis is very often a symptom of auto immune disease and can affect other parts of the body. A year is a long time to wait and normally it is treated by a rheumatologist because of the close association with lupus or other auto immune problems. Can you go back to your gp and ask for a rheumatology referral?

SpinningTheSeedsOfLove · 21/02/2022 13:13

Please go back to your GP. Tell them how desperate you are.

Mine has finally got an e-consult system up and running where you can give a full description of the issues, ask for a referral and upload photos of the affected area(s).

You need better treatment than you're getting. Flowers

Danigirl1983 · 16/03/2022 11:28

Hey iv managed to get a referral to a rheumatology specialist no idea how long wait is ,. Woke up yesterday rash over my body now. I feel life just keeps throwing things at me and I can't cope any more with the pressure 😔

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Redannie118 · 16/03/2022 11:46

Can you please post some pics? I have an auto immune skin condition too( Scleroderma) so I feel your pain. As a quick fix do you have a bath? Some porridge oats in the foot of an old pair of tights and run under the hot tap until the water goes cloudy is very soothing. If its burning a cold gel pack( buy cheaply from Amazon or lots of chemists) can be really soothing too. A daily anti histamine could also help. None of these will cure you, but may bring symptoms down to a managable level.

Danigirl1983 · 16/03/2022 13:43

Yeh I have pics of my original rash I will post I struggle to live like this. Today I feel like ending my life I just can't deal with it. Everywhere I go I see things to try and it confuses me. I had tried all these diets. And give up after few weeks they don't work. I'm exhausted. After virus at weekend and now this new rash. Random sizes thighs upwards. Hoping this one is viral. Thanks for the reply I need to vent and I don't know how to cope. 1st pics are new rash.

Help with skin condition
Help with skin condition
Help with skin condition
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Danigirl1983 · 16/03/2022 13:46

3rd pic and 4th are the leg rash I feel like one big rash now. Ment to have a wedding on Fri was really looking forward to it and I don't look forward to much and now with new body rash I can't go. I'm praying this is viral with how sudden it started and the difference in sizes of spots. Not overly itchy either

Help with skin condition
Help with skin condition
Help with skin condition
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Redannie118 · 16/03/2022 13:50

Ooooh yeah that looks sore. The second lot def look like they could be something autoimmune. Do you have any other symptoms, even if it feels like its nothing to do with your rash?

Danigirl1983 · 17/03/2022 08:56

The 1st lot comes after bad cold and sinusitis hoping viral. Next set I got a biopsy showed inflammation and big long words no actual diagnosis I paid privately for that. Steirod keep that from being inflamed but it's ruining my skin big time. What do you do to help yours. What's caused yours? It's hard to adjust my life now. Nearly a year and to be honest I want to give up x

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Danigirl1983 · 17/03/2022 08:57

They have found the pressure in my legs are to high. All bloods show up normal it's super frustrating I know something is wrong, waiting on an appointment coming through although I reckon it will take a year

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