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Autism

32 replies

N1956 · 20/01/2022 00:30

Hi I am struggling with my 13 year old autistic child's behaviour. DS is like a toddler in a big body. DS likes to do his daily tasks himself eg getting ready for bed etc. However can not manage his daily routines & has no concept of time, if you promt or try to help then the meltdowns start.
DS takes long as his like for his daily tasks that he will take hours to complete, in the mornings we are an hour or more late to school& DS is not in bed on time, there again he will take 1 or 2 hours for bedtime routine. Mornings he will not get out of bed, and we keep saying to him to get out of bed he will say I need 10 mins peace & those 10 mins can be a hour or more. He spends hours in the bathroom and will start playing With things in the bathroom. On days off or weekends we can’t go out because DS spend the whole day eating breakfast, we show DS the clock, set timers, rewards but we don’t seem to get anywhere.
Also DS rituals have increased that DS has to do everything first and it’s a nightmare we can’t even go to public places. If DS thinks we touched things that are DS’s has to have a meltdown and yells DS didn’t do it first then picks up toys now they will touch it second or makes his family too and DS does not want to be second. After explaining to DS that we didn’t even touch the item, toys, food, clothes etc but DS says that DS believes we did because his brain tells DS. Even going into the car or out of the door we have to start again and again until DS is satisfied. We try our best not to give in but we never win in the end.
DS is obsessed collecting DVDs, books and cds. DS plays games on PS4, but still likes to watch baby programs and will buy plush toys eg Peppa pig.
At home DS can’t stay without a devices , even at eating times DS has to have a device. DS wants to have everything his own way. DS has hyper mobility and sees OT therapist. Is anyone else experienced silmilar with there autist child & had help from professionals?.

OP posts:
Thenose · 20/01/2022 15:54

I'm autistic and have an autistic teen and 9 year old. Have you considered that your son may have developed obsessive compulsive disorder?

boobybum · 20/01/2022 16:03

Maybe a visual timer like this would help.

www.learningresources.co.uk/time-tracker

Our ds has rituals that take ages so we’ve just had to wake him up much earlier than we’d ideally like to give him time to complete them.

N1956 · 20/01/2022 16:29

@IncompleteSenten Thank you!

OP posts:

Interested in this thread?

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IncompleteSenten · 20/01/2022 16:36

You're welcome. I hope it helps.

girlofthenorth · 20/01/2022 23:26

Hi OP have been working and come back to see all this amazing advice ! I work in the field of creativity and mental health , I will see if i can send you some links tomorrow when I'm more awake !

FabriqueBelgique · 21/01/2022 00:32

Have you tried not battling and just letting him do what he needs to do with your support? He sounds overwhelmed. All the battling will add to it, leaving you in a viscous cycle.

My daughter needs an hour after school to lay face down on her bed like a weirdo. She’s drained and needs to decompress or she’ll be crying her eyes out for no known reason (basically overwhelmed) later in the evening.

My step-son cannot keep still. He has to wobble at the very least and launch himself round the room at the most. His brain requires constant stimulation which he gets from the movements.

My nephew has to let out quick high pitched screams to release tension.

When you learn the why’s behind neurodiverse behaviours, you can work with them and even joke about them eventually Grin.

I’m learning myself. Listen to / watch / read content by neurodiverse people and read all the books you can get your hands on. It’s fascinating stuff and it’s making me see the world through a new lens. Lots of “Ah hah!” moments.

Amiecherry · 26/02/2022 21:01

EXPLORING THE SCHOOL EXPERIENCES OF CHILDREN WITH ASD: THE PERSPECTIVES AND EXPERIENCES OF PARENTS.

Hi all,
I am currently looking for parents from the UK to take part in my final year educational psychology project. I am exploring parent perspectives on the school experience, either mainstream or provision, of children with ASD.

It will be conducted using semi-structured interviews, which are done online via Microsoft Teams. The interview should take approximately 30-60 minutes and your assistance would be greatly appreciated. If you are interested in participating and would like to know more, please email me at [email protected] and I can send you a more detailed information sheet.

Thank you,
Amie Cherry

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