Ongoing stomach issues for DS (14)

[MrsJBaptiste]

I put this on the Children's Health board this morning but haven't had any responses so am hoping someone on here can help...

My poor DS (14) is suffering so much and I just wondered if anyone has had a child with these issues and what they might suggest.

For info, DS is coeliac but this is managed extremely well, he will not let gluten near him and his most recent markers show that they are now completely normal after being sky high before he was diagnosed.

Since the summer, he has days where he wakes up with severe stomach pains and/or is retching and sick as soon as he wakes up or as soon as he tried to eat anything. This isn’t every day but on the days he’s like this, he’s deathly pale and will go back to bed for an hour or two before waking after it seems to have passed. He’s lost a lot of weight recently too as he’s obviously nervous about eating thinking he’ll be sick. This is obviously affecting school and he’s had 6 days off so far since September. Sometimes he’ll plough on and get himself to school because he feels he should but we feel so awful and if I’d been sick and felt terrible, I know I’d want to stay off.

We’ve been to the doctors and number of times, had additional online doctors appointments and are currently waiting for an appointment with Peadiatrics Gastro. We just feel so helpless as the doctors don’t seem to know what to do but it’s awful seeing him like this. He’s gone quite withdrawn and says he feels so down with it all and just wants to burst into tears sometimes (so not normal for a 14 year old boy).

Does anyone have any experience of anything like this?

For info, he’s tried - Gaviscon before bed, Omeprazole (not currently taking these), anti-sickness tablets and is currently on iron tablets.

Thanks.

@Tomnooktoldmeto Ah, that made me laugh! No girls on the scene although a lot of his friends are girls... I'd love him to be out after school and every weekend with a girlfriend but he's a homebird at the moment althiugh we do think this is down to feeling crap and rundown. Good tip for the future about the lipstick though

Poor thing! It sounds so unpleasant for him. You could also ask the GP to revisit the anti sickness tablet(s) he's on if they don't seem to be helping enough - he might benefit more from a different one. I've found that for me, they vary wildly in efficacy, and unfortunately had the experience of being prescribed a really useless one when I was a teenager. There are several options so they may be (should be imo) willing to try another.