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13yo DD just diagnosed with ADHD - I feel vindicated!

16 replies

inigomontoyahwillcox · 10/01/2022 13:35

Putting this in chat as I just wanted to "celebrate"/moan a little rather than ask for advice (although wouldn't look a gift horse in the mouth if anyone had any pearls of wisdom!).

I've suspected DD had ADHD from an early age - there are many reasons/indicators and she’s really struggled at school, socially with her peers and with her sleep, but, as she’s a confident, bright, and charismatic kid, family members, her old GP, and various teachers have dismissed me over the years.

She had an awful time at primary school, with some of the teachers constantly giving her a really hard time (the worst culprit she ended up having for 2 years, unfortunately); only one ever really had her back and suggested I have her assessed - but the GP spent 5 minutes with us, and, as she was playing with something on the floor, dismissed the idea outright (she's retired now, fortunately).

It's only since high school that I've finally had support from her teachers and medics/therapists (she's recently been seeing a paediatric neurologist for chronic tic syndrome and had bullying issues which she's been seeing a counsellor for ... both who suspected ADHD without any prompting from me). And today, after 10 years of trying to get her the support she needed, the completion of multiple questionnaires by both us and school, and a lengthy assessment, she has a formal diagnosis of ADHD (combined type).

I'm elated that my beautiful, cheeky, funny, kind, and vivacious kid will now be able to understand her condition and receive the support she needs, as well as (hopefully) be understood by those adults involved in her life, and maybe even her peers (I hope I'm not being naive there). My hope is that she will no longer be dismissed when she's struggling in class, or in any other formal learning environment; her high school have been very supportive to date and were already starting to put strategies in place even before the diagnosis, so am hoping this will continue (she has a great head of year - a couple of the others not so much…maybe that will now change?).

BUT my brother and mother have from the outset thought they know better, and are even now maintaining, post-diagnosis, that she can't possibly have ADHD because she doesn't fit their extremely narrow perception of how an ADHD child should behave. They are intelligent people (one a physicist and one an ex-radiographer) but continue to jump to conclusions without taking any time to familiarise themselves with the condition. It's so fucking frustrating!

But I'm going to ignore them for the moment and concentrate on the huge positive ... DD is finally on the right path and she now has people, other than me (and a small number of others) that have her back. That bloody deserves celebrating! Although I am currently having to hold myself back from sending her old school a lengthy “fuck you” email.

OP posts:
Undecided1985 · 10/01/2022 13:49

So pleased you persisted - surely it will help fund the way forwarrd
I suspect one of mine has ADHD but as they are clever and confident and does not negatively effects I think its been ignored. I do think a diagnosis will come when they are an adult.

Realistically often other than if their is an associated learning difficulty the. their isnt the time to prioritise the diagnosis of higher functioning children.

So so glad you kept at it

Undecided1985 · 10/01/2022 13:49

*find not fund

Greenmarmalade · 10/01/2022 13:52

Celebratory Cake for you!! I can empathise entirely with this feeling, although I am yet to experience it. Getting closer with every appointment, I hope!!

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inigomontoyahwillcox · 10/01/2022 14:02

Thank you all, and thanks for the cake Greenmarmalade!

I do get that resources are stretched, I do, but I think she has suffered from a learning perspective over the years, I just hope that she has time to catch up/recover and build her confidence (she is incredibly critical of her work and academic abilities and dismissive of her acheivements) before she starts having to do exams which will have an impact on her future (i.e. GCSEs onwards).

OP posts:
inigomontoyahwillcox · 10/01/2022 14:07

and @Greenmarmalade, I hope your journey isn't as long as ours - the best of luck Flowers

OP posts:
Four4me · 10/01/2022 14:14

A big well done to you.
My son has downs, we obviously didn't have a diagnosis battle, but have had various challenges that I've had to fight (tooth and nail) for along the way.
It can be very stressful, but the little victories and successes are fabulous.
Your dd is lucky to have you. Thanks

SkankingMopoke · 10/01/2022 14:37

This is really positive to hear OP. I hope the diagnosis brings all the help and improved attitudes (from others) you are hoping for.

We are in the earlier stages of a similar sounding situation: bright and non-disruptive DD who tries hard and copes enough (in school) to meet minimum academic expectations. We suspect ADHD. I have pushed at school, and the assessments we have managed to get so far have shown she is very academically able but has extremely poor working memory. They initially agreed after observation with many of the behaviour traits/issues we see at home, but, with the exception of executive function/working memory, have since tried to pretend they weren't seen. They are stretched, I know, and as DD is doing OK against national standards (rather than her own potential) and not causing a problem to the rest of her class, her issues have been downplayed and dismissed. We spoke to the GP, who agrees there are some strong indicators that need investigating, but was clear he didn't want to get involved until we have exhausted our options of going through school. We're stuck in limbo. We are also concerned about the future MH issues that come with all the constant masking/coping/trying to fit in, as well as decoding social rules and navigating friendships.

Littlefish · 10/01/2022 14:44

Hooooooooray! That's great news.

My dd was diagnosed at 15, and then medicated.

Things have improved immensely at school in the last 2 years for her.

I still have to make a complete pain in the arse of myself at school sometimes, but they can't deny the diagnosis!

TheAirbender · 10/01/2022 14:53

Stories like this make me so happy. I was diagnosed at 42 and I can see how it would have been utterly life changing to know earlier. Ignore the naysayers, people still don’t get ADHD. Good luck to your DD.

TheAirbender · 10/01/2022 14:55

I realise this isn’t always possible, but could you pursue a private diagnosis?

TheAirbender · 10/01/2022 14:55

@TheAirbender

I realise this isn’t always possible, but could you pursue a private diagnosis?
Sorry - that was meant for @skankingmopoke
BlackeyedSusan · 10/01/2022 15:30

Ah yes. Fuck the fucking disbelieving bastards.

(Been there, with its not ASD just a parenting problem)

Bobrosspaintbrush · 10/01/2022 16:00

It’s a great feeling isn’t it. I have been where you are today. One health visitor dismissed my ASD concerns for my son because he looked up when his name was called. Spent years trying to get him diagnosed.
When we got the diagnosis I took him to curry’s and we gave all the dishwashers and fridge freezers the once over. ( he loved doing that).

inigomontoyahwillcox · 10/01/2022 16:03

@SkankingMopoke

This is really positive to hear OP. I hope the diagnosis brings all the help and improved attitudes (from others) you are hoping for.

We are in the earlier stages of a similar sounding situation: bright and non-disruptive DD who tries hard and copes enough (in school) to meet minimum academic expectations. We suspect ADHD. I have pushed at school, and the assessments we have managed to get so far have shown she is very academically able but has extremely poor working memory. They initially agreed after observation with many of the behaviour traits/issues we see at home, but, with the exception of executive function/working memory, have since tried to pretend they weren't seen. They are stretched, I know, and as DD is doing OK against national standards (rather than her own potential) and not causing a problem to the rest of her class, her issues have been downplayed and dismissed. We spoke to the GP, who agrees there are some strong indicators that need investigating, but was clear he didn't want to get involved until we have exhausted our options of going through school. We're stuck in limbo. We are also concerned about the future MH issues that come with all the constant masking/coping/trying to fit in, as well as decoding social rules and navigating friendships.

Sounds very familiar - DD has certainly been impacted mentally with the masking/coping, we can tell quite easily when things are getting too much, now we understand, as her mental health issues manifest themselves physically - predominantly with a significant increase in her facial tics, otherwise she comes across very resilient.
OP posts:
DSGR · 10/01/2022 16:03

Well done. I wouldn’t send an f you email
To the primary but I would send one telling them that despite their lack of help you’ve actually got a diagnosis now and you hope they won’t put another child through similar.
Don’t expect a reply.

inigomontoyahwillcox · 10/01/2022 16:43

No I won't @DSGR Grin - although I have drafted an email essentially saying what you wrote.

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