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GP appointment cancelled, looking for any advice

53 replies

Moaningturtle · 07/01/2022 08:44

I’ve just had a long awaited GP appointment cancelled and I am beside myself with what to do. I’ll copy the notes I had in my phone for the doctor below.

If anyone has any advice or ideas or anything at all I can get over the counter that I haven’t tried please please share!

“Headaches started about 3 years ago and have gotten worse in the last year. Approximately every 3 weeks.

Saw dr before (May 2021) who said it could be tension headaches and prescribed naproxen. Since then it’s got worse with extreme spells.

Headache comes on over a few hours, starts as bad throbbing pain behind left eye and will either continue like that for about 3 days or will get very bad after about 5 hours to the point of not being able to move or do anything and I vomit and sleep and then it’s gone within a few hours.

Nothing helps, tried paracetamol, aspirin, ibuprofen, migraleave, co-codomamol, and naproxen. In hospital the codeine helped, but it was also one of the shorter headaches so may have been easing anyway.

Once I get the first pains nothing I do seems to help.

Recently there seems to be daily shooting pain’s across the front of my head, like lightning.

Worried about work as work nights in care with only one other person, if it happens there I don’t know what would happen.”

I hope that all makes sense. To elaborate on the hospital part - at the beginning of November I had such bad pain in my head that I was repeatedly vomiting and crying in pain, called 111 for out of hours appointment for stronger pain relief and they sent me to A&E. Had a CT scan and blood tests which were clear and the Drs there said probably migraines but didn’t prescribe anything and told me to go to GP. First appointment I could get was today and that’s been cancelled last minute.

OP posts:
OpposableThumbs2 · 07/01/2022 10:37

I get menstrual migraines, started in my early 40s. No over the counter things worked. I got Frovatriptan from the doctors and it is amazing. If you can show the doctors at least 3 months of tracking when they happen compared with your cycle it will help.

Mum5net · 07/01/2022 10:38

Grin You are in very good hands here, the advice from start to finish being posted is from people absolutely in the know. There are lots of little nuggets which I wish I'd known when I started with headaches. @GoldenBlue explains it so well. If you do what @GoldenBlue suggests you will fast track a solution that probably took me ten years to navigate back in the day when the internet was just beginning.
May I add that beyond her list there are even more treatments to add to your mix - acupuncture, occipital nerve block injections, botox, so while headaches are no fun, there is still reason to be positive about managing them..
I am through my menopause now and don't get any headaches at all.

BeLessMe · 07/01/2022 17:56

@Oneearringlost you obviously know a lot more than the neurologist that I’m under for my cluster headaches then, who explained the throbbing in one eye-as in the op- is typical for cluster headaches. I’ve also never had to go to A& E for mine - not that I would have been able to move to get there. And yes, they are so painful I would happily be put out of my misery when they occur. I live in fear of getting the next one and, if they increase in frequency I will be getting a prescription of oxygen to go along with my injections.

OP I’m glad you managed to get another appointment. I hope you manage to get some treatment that works.

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UncomfortableBadger · 07/01/2022 19:41

Have every sympathy OP - I have suffered migraines triggered by my menstrual cycle for years and the doctors don’t want to do anything except prescribe hefty painkillers and birth control pills (not ideal as we were wanting to TTC). Triptans made no difference for me, but like another poster, I can tell an attack is coming on if my neck gets tight and needs cracking.

Seeing an osteopath regularly hasn’t got rid of the migraines but it does make the associated tension in my neck, jaw and shoulders much more bearable. Keeping a frozen ice pack ready to go is also helpful to shove on my face/neck.

The only thing that has completely knocked them on the head, albeit temporarily, is falling pregnant. Not a single migraine since I got the positive test and I’m dreading how bad they’ll be after the baby is born Sad

WeAreTheHeroes · 07/01/2022 19:51

The very fact the headaches are in the same specific place and last 72 hours screams migraine to me OP. Pps are right that triptans would be the way to go - sumatriptan is available over the counter as Migraitan and Boots Migraine Relief. Ime a pharmacist usually has to agree to let you have them OTC and they won't if you haven't been previously prescribed them by a doctor.

greenweepingwillow · 07/01/2022 19:54

absolutely sound like migraines. I had them really badly when I was teenager/early adult. They then eased off...until I hit peri-menopause! It is very common for hormonal fluctuations in peri- menopause to trigger migraines. In addition to suggestions above I have also started HRT (not just for the migraines, for other peri symptoms too) and that has deifnitaly helped so may be worth bearing in mind if that may be an option for you.

Arcadia · 07/01/2022 20:17

Sounds like my migraines. Sumatriptan only thing that works for me too, however I am also on a low daily dose of amitriptyline (10mg) which has roughly halved my migraines in terms of frequency, duration and intensity.
I'm premenopausal too. I track them and they usually come at the end of my period and last a few days. Sometimes at the beginning of my period as well. And other random times.

Moaningturtle · 07/01/2022 23:20

Do you all think the GP will be happy to diagnose migraines based on the information I’ve given here? I don’t want to have to wait another few months to build up a headache diary!

OP posts:
Mandatorymongoose · 07/01/2022 23:32

I take regular medication for migraines (topiramate) which hugely reduce the frequency / duration for me. When I do get one neurology recommend 900mg of aspirin, obviously it depends if this is safe for you as aspirin isn't for everyone. Codeine generally isn't great for migraine I don't think?
Triptans did help but I had awful side effects from them.

Drinkyourweaklemondrink · 07/01/2022 23:53

My husband has this and it was overwhelming his life
He now takes amytriptiline daily and sumitriptan in the event of a migraine
Light causes his

BritInAus · 08/01/2022 01:49

Triptans changed my life!

LemonySippet · 08/01/2022 02:33

Like @Mandatorymongoose I take daily topiramate to control mine having tried triptans which helped relieve the pain but did nothing for the frequency. Topiramate has changed my life, I've gone from 3 or 4 a week to 1 a month. I suffered since I was an early teen and never sought help until my late thirties. There are so many options to try. Good luck OP!

whateveryouwantmetosay · 08/01/2022 03:20

Definitely describing hormonal migraines! I also have them. I take Rizatriptan as it melts under the tongue and kicks in really fast. Definitely order sumatriptan and always have it on hand (until you get a proper prescription). Make sure you take it when you first feel the attack coming as it will be more effective.

whateveryouwantmetosay · 08/01/2022 03:22

Also try a magnesium blend for prevention. americanmigrainefoundation.org/resource-library/magnesium/

Moaningturtle · 13/01/2022 16:11

Hi everyone, thank you for your help last week. I have an update!

I saw the dr today and he was a bit reluctant to diagnose migraines, he said that I didn’t quite fit with the symptoms because I don’t get visual auras. Strange because everything I’ve read says that not everyone gets the visual disturbances. He said he was going to talk to the nurse at the headache clinic to come up with next steps. But in the mean time he did prescribe me some Rizatriptan tablets that dissolve on your tongue for fast relief. So I’m happy that I’ve got something to try at least, and we will see what the headache clinic advise. Luckily as I had brain scans in hospital I can leap frog some of the investigations.

Fingers crossed the meds work!

OP posts:
WeAreTheHeroes · 13/01/2022 16:46

That's good news. I have migraine without aura and it's still migraine, just not what is sometimes called "classic migraine". If the triptan you've been prescribed works then it shows the diagnosis is correct.

GoldenBlue · 13/01/2022 17:57

I mostly don't get aura or visual disturbances with my migraines, but have occasionally more recently including going completely blind in one eye for several hours a couple of years ago.

But generally my vision was unaffected, apart from light sensitivity

gerardsbutler · 13/01/2022 18:02

Only half of my migraines present with visual. Good you’ve got something to take. Hopefully the triptans will help.

I’d add just a couple of things. Triptans make me really nauseous. If it’s the same as you as for anti sickness medication. Also, keep a diary and if no improvement push for preventers.

There are a couple of good Facebook pages for uk migraine sufferers.

EducatingArti · 13/01/2022 18:05

I have migraines without any visual symptoms. Mine are triggered by stress (or as I relax after being stressed) but are vanishingly rare these days thankfully. I still get rizatriptan prescribed though just in case.

Mum5net · 13/01/2022 19:43

How many tablets did you get, OP?
Having a few emergency tablets in your bag will hopefully lessen your stress. I’m sure the headaches’ nurse will be v well informed. Pleased that you have this insurance policy.

Moaningturtle · 14/01/2022 00:57

I got 12 tablets, I have 4 in my work bag, 6 in my handbag and 2 in my phone case!!

I had to try 3 pharmacies to get them though, apparently there’s supply issues….I nearly cried!

OP posts:
gerardsbutler · 14/01/2022 07:11

That’s good you got a decent supply. Remember to take them as soon as you feel anything relatable to a migraine. All the best.

EducatingArti · 14/01/2022 09:27

They will likely make you feel drowsy so don't drive etc after taking one.

Moaningturtle · 20/01/2022 16:53

I had a text from my dr today to say that neurology have referred me on to ophthalmology. I’m a bit stumped as to what they think could be wrong with my eyes? It seems so likely to be a migraine from everything I’ve read and everyone I’ve spoken too. It’s so odd that neurology haven’t just said Yep, classic migraine.

Any ideas?!

OP posts:
freshcarnation · 20/01/2022 17:06

No idea here. Sounds like classic migraine to me.

I had horrendous migraines, every two weeks until late November. Had tried all sorts. My niece saw a neurologist in the USA who gave this advice

Lay off any food with MSG in. Crisps were the culprit for me.
Take magnesium
Take vitamin B2 - 400 riboflavin
Make sure you are super hydrated, so never let yourself get thirsty
Don't let yourself get hungry
First sign of an attack take whatever painkiller works for you with a caffeinated drink

I know I'm tempting fate but since taking this advice I've not had another migraine.