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Ok... I think I have ADHD, maybe even Autism, probably ND

24 replies

missbunnyrabbit · 06/12/2021 22:01

My head is a mess, just have to let this out. I've been noticing for a while now on here, in the news, in real life, people everywhere saying they've been diagnosed for ADHD or Autism. I thought it was a bit of a 'trend'. I read and hear the symptoms people have, and I get annoyed because most of them describe me to a T, yet I've NEVER had any excuse, always thought it was me being 'broken' and that I didn't learn the right skills and I'm incredibly lazy, stupid and forgetful.

But it has hit me. All the struggles I've had in life...they fit these labels and descriptions that I see on mumsnet all the time. I think they are completely me. I have been struggling and masking my whole life. But if you knew me, you wouldn't think so...

I look and act (I think/hope) like a functioning adult.
I have learnt to converse with people.
I got straight As/A*s at school and first class at uni so everyone thinks I'm clever and organised.
I have got my own house and a professional job.
I'm quiet, sensible and well-behaved.
No one has ever suggested to me that I might have a disorder beyond anxiety and depression.

The thought of even suggesting I might have these disorders(?) to people makes me cringe, because they'd think I'm having a laugh, and also want to cry, because I've been SO focused on masking everything my whole life. I'm so EXHAUSTED with the masking and trying to survive, trying to be normal, trying to get good grades and a good job despite of it all.

So just some my symptoms, ADHD first [or ADD?]
-shocking memory, especially short term. I really struggle to remember conversations or instructions. Things have to be written down for me. I got good grades by learning all my answers using muscle memory. The only way for me to learn things is to write them out. I can't retain things in my head.

-little concentration. My mind just wanders. I lose my mind halfway through doing or saying things - I'll begin a sentence then completely forget what I was saying. Same with tasks. And thoughts. I just cannot follow my thoughts.. This happens several times a day.

-no attention span - constantly daydreaming and zoning out, very often in the middle of conversations with people or important meetings. Same when reading books, I'll think I've read a page then realise I wasn't paying attention to any of it. And tbh even if I was paying attention, I wouldn't remember any of what I read due to my awful memory.

-awful procrastination, always leave things to the last minute and never get stuff done. Always considered myself the laziest person ever.

-brain fog - I just can't think, it's like trying to grab ropes of information in my brain but they are swinging out of reach.

-very easily distracted by noises or movement. If I am interrupted mid sentence, I lose it. If I'm talking to someone and then someone else talks, I have to stop abruptly because my brain can't cope with both.

-jump between tasks - I'll start one then move onto the next before it's finished. Hardly ever finish things.

-so many thoughts in my head, I'm jumping between them, forgetting others, remembering others, they're all whizzing around all the time.

-poor listening skills - even when I feel like I'm listening, I often couldn't tell you many details of what you said.

-lateness. Now I'm never late for anything that I MUST NOT be late for. But when nothing terrible will happen, I am always late. I get up the same time every day for work, yet I arrive later and later each time. I do the same tasks every morning. It's like, because nothing bad is happening when I'm a bit late, my body makes no effort to hurry up.

-always losing things. I'll know that I saw it recently, but just cannot find the thread in my brain to tell me where.

-extremely impatient. People tell me this all the time. I become twitchy and very frustrated when having to wait even small amounts of time, especially if it's something I'm interested in. Feels like my brain is melting in on itself with frustration.

-can't cope doing multiple things at once. To the point where, if I cook dinner and my boyfriend starts trying to hug me, I snap at him to get off because my mind can't cope with doing the dinner and touching at the same time. This applies to so many things.

I could go on and on. Trying to keep this short now. My reasons for suspecting Autism are...

-lifelong struggle to make friends [I always saw friends as people I just walked around with at school]
-never could do eye contact, couldn't even look at my mother's eyes for longer than 2 seconds. I had to train myself to do it, and now I can, but it is a huge effort and have to look away a lot to compose myself again.
-never known how to converse with people or express myself. What on earth do people say to each other. I spent school as a mute, only answering in one-word replies to people. After I left school, I spent a lot of time listening to people talk, in real life and on tv, to pick up 'set phrases' and expressions/mannerisms that people have.
-hate social situations unless they are with my immediate family or boyfriend. I become so stressed by the thought of conversing with people. I panic during conversations when I've run out of my set phrases. And if someone says something to which I don't have a phrase - argh.
-I hyperfocus and obsess - I have always had such obsessive thoughts. They will go around and around in my head. Then I have obsessions with things, and it's all I can think about and talk about for weeks on end, sometimes months or years. It takes a lot of effort to control this in front of people.
-I'm VERY literal - always believe things people say. I'm always the last to get a joke, and often don't get sarcasm. People will say something stupid and I'll believe them straightaway.
-sensory issues. I had HUGE sensory issues with food especially as a child, but also with textures and smells etc. There were hardly any foods I'd eat and I couldn't cope with certain clothes, textures on my body, the weight of them, the feel. Things would just feel WEIRD.
-also sensory issues with touch - despite a very loving family, I haven't touch them since I was about 8, never let them hug me or anything. I hate being hugged or touched by strangers. In fact, I had to teach myself how to let people hug me, as I used to just stand there with my arms by my sides.
-can't process information quickly at all. I'm very slow.

Again, I could go on and on.
OK I just had to let that all out. I've been masking my whole life and I am so exhausted. I imagine I seem entirely functional to people, if just a bit awkward and shy. But I had to teach myself how to mask these things and how to get by. I realise that now. And these are just SOME of the things I've been dealing with.

OP posts:
Myadhdusername · 06/12/2021 22:05

Welcome to the club OP! On the whole it’s an absolute nightmare to get a diagnosis as a woman though.

When I realised I had ADHD it was almost a relief to realise there was a reason why everything had been so difficult for me my whole life. I’m almost kinder to myself now.

vivariumvivariumsvivaria · 06/12/2021 22:05

I have the same issues as you in the ADHD list, and I was diagnosed as having marked inattentive ADHD earlier in the year. The medication is really good and they are going to have to prise it out of my cold, dead hand.

Go and speak to your GP, it sounds like you could do with an assessment.

purplebatbear · 06/12/2021 22:07

Sending you a massive hug. It's a lot to process, isn't it. I've just approached my doctor as I think I have ADHD and they sent me a few questionnaires that they've sent off as part of a referral to the hospital.

I know what you mean about it being exhausting. Masking is soul destroyingly hard and takes a lot out of you xx

TheNarwhalBalloon · 06/12/2021 22:08

Welcome, OP. You're certainly ND. I hope you find the answers you are looking for.

I was lucky, I found it easy to get a diagnosis. I think it depends what area you live in. But your GP is the place to start. Take a list with a shortened version of what you've told us here and be prepared to talk about why you want a diagnosis in case they ask that.

Iamanicepersonreally · 06/12/2021 22:11

I'm exactly the same apart from the lateness thing. I'm never late.

missbunnyrabbit · 06/12/2021 22:19

Wow, people are being nice. I thought people would hate me because of how sceptical I was about ADHD etc. I've just felt so annoyed that these people had a reason for being why they were, and I didn't.

Now I've accepted it, if I went for a diagnosis [does the NHS even do that, I've read so many people saying they have to go private and spend hundreds, which I can't afford] I'd feel devastated if they said I didn't have any of these things. As I said, I present like any other person. I've worked hard on it...sigh.

OP posts:
missbunnyrabbit · 06/12/2021 22:21

@Iamanicepersonreally

I'm exactly the same apart from the lateness thing. I'm never late.
I'm never late for anything important. Never late for an appointment or to meet people. But turning up late for work, I get away with it because no one notices and it doesn't really impact anyone.
OP posts:
ThelmaDinkley · 06/12/2021 23:41

God it could have been me writing your post OP. My dd has just been diagnosed with asd and I could face written your post word for word. Are the two conditions co-morbid and what happens if you get a diagnosis? Does it change anything for the better? Genuinely interested as I don’t know whether to ask GP for referral. Good luck OP

ThelmaDinkley · 06/12/2021 23:42

Have written, not face!

Rainbows89 · 07/12/2021 01:46

I am like you and I was just recently diagnosed 2 weeks ago with ADHD.

Kerantli · 07/12/2021 04:22

I'm trying to get an appointment with a GP because of all this, so you're not alone at all.

Thankfully fiance doesn't get too annoyed with me (though after 10 years of this, he's had penty of time to adjust to how my brain works, and vice versa), but there are moments where I do wonder why he puts himself through it all

Blaziken · 07/12/2021 07:45

I could have written all of that and I’ve just been referred for ADHD assessment by my GP. I’m hoping they pick up on my ASD traits too!

Good luck OP

GingerFreaker · 07/12/2021 08:01

Maybe you are, maybe you're not. What difference would it make to you to know?

When my youngest was diagnosed... It was all so difficult. I couldn't imagine putting myself through it, although every online test says yes... And I recognise the traits in myself.

I have though taken it on board as a positive, and for the first time in my life am taking some kind of control. I now feel able to say no to certain situations. And it's so liberating. I no longer feel like air is being squeezed out of me all the time. Just some of it😁

AshGirl · 07/12/2021 08:13

I think you will find quite a lot of people (especially women) in a similar situation. You may or may not find a diagnosis helpful, as that's a very personal thing.

I have felt like a weight has lifted off me by simply admitting that I am probably not just shit and that there are a collection of things that I struggle with, and there are tools out there that can help. Just masking all the time is a recipe for burnout so do your research (it'll become a special interest very quickly!) and learn some ways to help yourself.

There's no point trying to do things the 'normal' way and then beating yourself up when they don't work Thanks

vivariumvivariumsvivaria · 07/12/2021 11:42

Yes, that's a good point - Ash. I'm kinder to myself now. It's not my inadequacies, it's not my fault, it just is.

Plus, the meds are REALLY helping. Not perfect, not at all, I'm still living in chaos and I'm still feeling overwhelmed and I still forget things and get distracted - but it is all LESS so it is manageable.

And I am less exhausted because I am not hiding it all the time. I got an appointment wrong last week - turned up on the wrong day, but it's ok, it's not a moral failing, I don't need to beat myself up for being useless - that's the first wrong place, wrong time thing I've done for months. So, it's not ideal, but it is manageable.

It's really nice not feeling overwhelmed and exhausted at 5pm every day.

RobertClementHughes · 07/12/2021 12:22

@missbunnyrabbit I saw your post on the other ADHD thread. Flowers to you, I understand exactly what you mean because I have been there too. Thinking that actually I am the normal one and if I can mask so well (without realising that this is what it is) why the bloody hell are other people thinking that there's something worth diagnosing? And then the penny dropped that actually the masking ISNT normal or what everyone else does...

I am reading lots at the mo as I wait for my GPs referral appointment to come through. Eye opening stuff, just have all this information now and no hope of picking through it to prioritise what's important Grin

RobertClementHughes · 07/12/2021 12:28

Also re: masking- this is how I feel 🤣

Ok... I think I have ADHD, maybe even Autism, probably ND
Eightandahalfyears · 07/12/2021 12:34

I’m awaiting assessment via the NHS. I’m certain I have ADHD

BogRollBOGOF · 07/12/2021 16:21

Get it all written down and take it to the GP.
I took a mind map of DS's traits and examples right back to when he was about 1 (he was 7) and the GP was great. 15m later we had a diagnosis of ASD (adults will probably take longer)

The ADHD (inattentive) sounds like a biography of me. Getting myself to the GP for something like this is the kind of thing I can procrastinate on for years!

PompomDahlia · 07/12/2021 18:37

This is so timely for me to read. I had an interview today and could barely get answers across because I find it so hard to verbally express my train of thought in a logical way. I’m better at writing things down so I can copy and paste and delete bits. I’m so easily overwhelmed by small things and really struggle with digesting information. I do wonder if my anti-anxiety meds are making the brain fog worse. I often say to DH that my head feels like a bowl of spaghetti.

For those with a diagnosis, have you had any practical support or ideas/suggestions to help?

wholeftthedooropen · 07/12/2021 19:45

"Welcome to the club OP! On the whole it’s an absolute nightmare to get a diagnosis as a woman though.
*
When I realised I had ADHD it was almost a relief to realise there was a reason why everything had been so difficult for me my whole life. I’m almost kinder to myself now.*"

Hi OP... So much of what you described, describes me too! I got to 41 wondering why I found everything so hard whereas it appeared everyone else found everything so easy. Faking everything to make it (or not make it depending on 'the thing').

A chance discovery on FB led me down the inattentive ADHD and PDA rabbit hole (wonder where that hyper focus came from 😜)...

I got the guts up to speak to my GP at the beginning of this year and she hardly hesitated to refer me to Pysch UK (using Right to Choose). Because of the enormous influx of referrals they've had, the waiting time for assessment has exploded and I now have to wait until next Summer for a psych phone appointment!

At first I was dismayed at the wait but it's given me chance to really think about whether I need a diagnosis. I know Inattentive ADHD fits me to a tee and poss autism. A diagnosis won't cure that, neither will meds but they may help....simply giving myself a break from beating myself up has probably been the best thing from discovering who I think I am.

There are some great support groups on FB , you're far, far from alone OP BiscuitThanks

19.28 19.42

Myadhdusername · 07/12/2021 19:49

@PompomDahlia no practical support (other than medication) but people who struggle to do certain things because of ADHD (or any other disability although you don’t qualify purely due to having a diagnosis, it’s how it affects you) can be entitled to PIP which would allow you to pay for support.

It is total slog to get it though which funnily enough puts a lot of people with ADHD off applying! Myself included.

Leah2005 · 07/12/2021 20:12

A really helpful read is Better Late than Never written by a woman who had a late diagnosis. (sorry can't remember author's name)

Calmisthemantra · 15/12/2021 20:40

OP i could have written your original post and it's only through talking with colleagues about my DD9 starting the diagnosis for ASC and they responded 'but she doesn't seem ...' etc that I listed a few traits that I'd researched and my brain went PING.
My DS8 was diagnosed at 6yrs old but presents so differently.
Everything you have written about how you feel I can understand. Feel a bit baffled and it's only been a few days. I've felt 'odd' my whole life and now I can look back at things and it slots into place and makes sense.

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