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Two years of grief

26 replies

crumblecrimble · 15/11/2021 16:46

I don't know what I'm hoping to achieve posting here, I just need to offload even just a small piece of this.

My mum started coughing in late 2019, with a dry cough that sat in her lungs. We had a lovely Christmas, but she couldn't shift it right through to February 2020. Then one day she started coughing blood.

She called me early March, when I was still living abroad, to tell me she was sorry to do this to me but she has lung cancer. It was everywhere in both her lungs, and surgery wasn't an option. She was 61 and had never smoked.

Lockdown happened, and she and my dad spent it alone, as the cancer spread through to her liver and her bones. It was a lonely, painful time for them, and I was stuck hundreds of miles away.

As soon as we could DH and I sold our home, and moved into a rental nearby in England. DH got a new job, and my work moved me to the London office. My dad started to lose weight, we thought it was the stress. Medical professionals wouldn't come out to the house, I could never understand why.

My mum just got worse and worse, with a first fall that showed lesions in her brain and a second fall that put her in hospital with a broken femur. During that second stay we weren't able to visit for a while due to a covid scare on her ward.

For a week after we'd finally got her home she was in agony. She would bleed from her surgery wound where they'd put a pin in her leg, she had terrible oedema that caused puddles to pool around her feet, and she couldn't walk unassisted. Her skin turned green, and she struggled to breathe. I finally called everyone I could - hospice, district nurses, macmillan nurses - and begged them to finally come out to the house because you wouldn't leave a dog like this. They came, and there was talk of a short hospice stay and a syringe driver. But she died that night, after sedation from the out of hours locum because she was in hysterics. I had to help the undertakers with her body, and make the funeral arrangements.

A couple of months passed, and my dad lost more weight and turned yellow. He was diagnosed with pancreatic cancer just after new year.

It's spreading now, despite chemotherapy and radiotherapy, and he has stopped eating. He's emaciated. I spend my time travelling between his home and mine, terrified he's going to faint when I'm not there.

It's just me and my DH looking out for dad, there's no-one else. It's been a carnival of pain for months, and the future doesn't hold much light

OP posts:
Chocolatecoatedkettlebell · 15/11/2021 17:13

I’m so sorry for what you are going through. It’s the injustice of it that hurts so much. My very wonderful late mother in law was diagnosed with lung cancer in a similar way and as she was a non smoker and also relatively young it was a huge shock. It was just my husband and his sister caring (I did my best to support them), although non covid times. We also moved to be much closer and we are still here now. I’m certain that at the time my husband would have said similar to you about the future not holding much light. Watching him be utterly broken was oh so hard. That was nearly 10 years ago now which feels very odd because it means I knew her less time than she has been gone, but she left a lasting and warm mark on my life. My husband has built himself back up, it wasn’t easy, he reflects a lot. Lots of other things have happened in our lives since. Some wonderful, some not so much.
This is all a ramble. There is light, it’s not easy though. Take care of yourself. Your husband sounds wonderful.

SequinnedShawl · 15/11/2021 18:31

I'm so very sorry for what you're going through. Flowers

Waahingwashingwashing · 15/11/2021 18:33

Oh love I am so so sorry Flowers

Queenie6655 · 15/11/2021 18:39

So so sorry

Why do these things happen
So cruel

Will be praying for you and your family

Sounds like you are trying your best and helping so much xxxxxxxx

Ratched · 15/11/2021 18:44

Jesus, I never post on these threads because I am useless at expressing myself, but I can feel the pain and agony and sheer fucking injustice of it all. And I can do nothing to help.

I am so, so very sorry.

doodlejump1980 · 15/11/2021 18:49

I’m so sorry you’re going through this. As the saying goes… “if you’re going through Hell, keep going!” Make sure you’re taking some time for you too. Flowers

MaybeAMoaner · 15/11/2021 18:50

So sorry for you, what a lot to have to deal with.
Your poor mum and dad.

rubyslippers · 15/11/2021 18:54

That is overwhelmingly sad
I don’t know what to say except that feels breathtakingly unfair and heart breaking
Could you ask for some help in terms of getting some respite or palliative care for your dad?

Buildingthefuture · 15/11/2021 18:59

I’m so very sorry. I can feel the agony and devastation in your post. I don’t know how to help you but I am sending lots of love and support xxx

Panicatnight · 15/11/2021 19:06

@Buildingthefuture

I’m so very sorry. I can feel the agony and devastation in your post. I don’t know how to help you but I am sending lots of love and support xxx
Same. I’m so sorry x
LoveFall · 15/11/2021 19:07

I am so sorry you are going through this OP. I know what it is like to feel frustrated and angry when your dear parents suffer and die. I lost mine 7 years ago and I still can feel it.

I wish I could really help. All I can say is keep putting one foot in front of the other as best you can. Eat as well as you can and stay hydrated. I asked the doctor for help and was prescribed a few Ativan to help me sleep. It helped a bit to get rest.

Take care. I am sorry for your loss.

Hotpinkangel19 · 15/11/2021 19:14

Oh OP. I went through similar in 2017. Mum had a stroke and died not long after, Dad started to lose weight noticeably around the time of her funeral, I thought he wasn't looking after himself properly, but 3 weeks later after managing to get a GP to see him. He was diagnosed with terminal renal cancer. He died within a month of diagnosis. There are no words at all. I'm sorry you are going through this.

Igmum · 15/11/2021 19:16

So sorry and sending love. It is devastating to lose a parent and this will make it worse Thanks

PatchworkElmer · 15/11/2021 21:30

I’m so sorry

Shimmyshimmycocobop · 15/11/2021 22:08

I'm so sorry to hear about your mum and dad, I don't know when we became so poor at palliative care for people at home.
My mum died in July 2020, she came home from hospital to die and did die 5 days later. If I had known what it was going to be like I would have talked her out of it. The pain relief was inadequate and I was begging the district nurses to get the GP to up it but they didn't until it was too late.

My dad died nearly 30 years ago at home from cancer and had excellent care and had no pain in the last few weeks.
I had mistakenly thought it would be the same this time.
It feels very lonely without much family or medical support but your parents are lucky to have you. Flowers

TaVeryMuchLove · 15/11/2021 22:29

I am so sorry you’re going through this Flowers

Naughtynovembertree · 15/11/2021 22:37

Op I was two weeks by myself dad's side as he passed away.

How is this "sanctity" of life making people go through this?
How?
We wouldn't do this to an animal it makes me so bloody cross.

TheDogsMother · 15/11/2021 22:43

I'm so sorry, how incredibly sad for you.

EffYouSeeKaye · 15/11/2021 22:52

I am so sorry op. Flowers

DaisyNGO · 15/11/2021 22:54

OP I am so sorry and appalled the system let down your mum so badly.

Re your dad, are there options for care for him? If not, it is possible his local church might help or be able to find help.

Nibblypiggotonabus · 15/11/2021 23:17

You poor soul.
I can't imagine how hard things must've been. Thanks

GreenLunchBox · 15/11/2021 23:24

I'm so sorry to hear this, OP. Flowers
You write so beautifully

Pinkchocolate · 15/11/2021 23:28

My heart breaks for you. I’ve watched a parent suffer and die and then planned a funeral and it’s gut wrenching. Let alone what you’re now going through with your dad. My only advice is be kind to yourself and allow yourself small pleasures whether that’s time off work or a take away or whatever. Sending you so much strength.

Babyroobs · 15/11/2021 23:35

It sounds like you mum was badly let down with having no palliative care Nurse visits until things reached crisis point. I'm sorry you went through that.
If things deteriorate for your dad please try to get him hospice care if that is his wish. Does your local hospice maybe have a day care unit where he could go for the day to give him some company and they can keep an eye on him. I know our local one does and patients absolutely love it for a change of scene and their symptoms are monitored, pain control monitored, counselling on site if they need it etc.

Tellmeagain · 16/11/2021 00:26

I'm so sorry for you. I lost both parents days apart to cancer in similar circumstances. I didn't know where to turn with having to cope and keeping it all together when necessary, it was the hardest time of my life. I can only imagine what you are going through and send you all the strength possible to look after yourself whilst you support your dad.