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Anyone have experience of moving a terminally ill parent to live with them in a different part of England?

7 replies

werdkraft · 13/11/2021 20:00

My mum has less than 6 months to live (leukemia) and has declined badly in the last 3 weeks so can no longer care for herself. She will need round the clock care. I suggested she come to live with us and she likes the idea - she said her consultant mentioned it as a possibility too. However, we live 300 miles away. Assuming the consultant is ok with the move, does anyone know how easy it would be to arrange? I can't find any information online about it, which suggests it might be unusual and difficult. But maybe I'm not using the best search terms.

OP posts:
bestcattoyintheworld · 13/11/2021 20:12

Would she need a private ambulance or could she go in an ordinary car? Anything can be achieved if you can afford it. I once cared for a very frail elderly lady who managed to make a train journey with her daughter to the other end of the country as she was moving down to live with her. What's your mum's general condition and mobility like? I guess she needs to avoid infection risks so public transport isn't an option.

CorrBlimeyGG · 13/11/2021 20:21

It really depends on your mum's needs and who is funding them. Also if she needs to continue to attend hospital regularly and how practicable transferring her care would be.

werdkraft · 13/11/2021 20:23

She has limited mobility now. Private ambulance would be best, but we might manage in a car if we stopped frequently.

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bestcattoyintheworld · 13/11/2021 20:32

Hospital treatment and care can be transferred. People aren't stuck in one area, they have freedom of movement, particularly if they need support.

She can have supportive medications to help her with the journey such as an anti sickness med, anti anxiety med and pain relief. Extra padding on her seat to help with comfort and pressure. Is she able to sit in a chair or would it be better if she was lying down?

CorrBlimeyGG · 13/11/2021 20:34

Every person is different, do you think she'd manage the journey without it causing more harm? It's a very long way, would you be able to manage toileting needs? Also ambulances are not comfortable, you tend to feel every bump in the road.

Would you be planning for her to live with you? Do you have enough room?

CorrBlimeyGG · 13/11/2021 20:35

Hospital treatment and care can be transferred.

In theory that's certainly true, and it's how it should be. The reality is very different.

Thymeout · 13/11/2021 20:40

The hospital would need to arrange the transfer. You could ask your mother's keyworker/CNS to find out the procedure for this and take it from there.
Your dm might need adjustments to be carried out in your home - grab rails, a hospital bed. Your local hospital will probably want to arrange a home-visit so an occupational therapist can assess.
My local hospital has an arrangement with a hospice, with a palliative team. I have a friend who had leukaemia. She continued to see her consultant at the hospital but was also visited by hospice palliative care and given a bed when she needed more care than her dd could manage. So it's likely they would be involved, too.
I'm so sorry you are in this position, but I would like to say that my friend's consultant timed her transfusions beautifully so that she was at her best for Xmas and New Year. It was a v happy time and she died a few weeks later, very peacefully.

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