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My mum is in hospital and I'm scared

6 replies

Squiff70 · 06/11/2021 21:37

Sorry, this is long...

My 69 year old mum is in hospital on a neuro ward with symptoms nobody can explain at the moment (we're waiting on loads of blood test results). It started three months ago when her mouth drooped on one side, and on the same side of her face her eyelid started closing. She couldn't keep that eye open at all. She refused to go to hospital and in her words she "doesn't 'do' ill".

I didn't know this until two weeks later when she came to visit and immediately we packed her off to A&E fearing she'd had a stroke. They did a CT scan and sent her away once they'd ruled out a stroke. Days later, her other eye started to close and she started having difficulty speaking in the evenings.

Since then, she's got weaker and weaker, to the point where a ride in the car tires her out so much she has to rest for the remainder of the day. This isn't like my mum at all - she's usually gardening, cooking, sewing and the like.

She finally had an appointment with a neurologist last week and they admitted her immediately as her symptoms are so alarming. Both her eyes are closed most of the time, she's tired, weak, and needing help with everything. I fear for my lovely mum's health and her future.

One thing they're trying to either diagnose or rule out is Myasthenia Gravis. For those who don't know, it's an autoimmnune condition which manifests in the symptoms she is displaying. People with the condition can have "myasthenic crises" whereby they become so weak they stop breathing and have to go on a ventilator. I have nightmares about this (this time four years ago I was in an induced coma and on a ventilator for five weeks and have PTSD, partly as a result of the nightmares I had at the time that I couldn't wake up from). I'm scared my mum will deteriorate further and not get better. Equally I'm scared it's something else (no idea what) that'll cause these symptoms to be permanent. I don't know what treatment she needs, if any exists etc.

I'm shocked and horrified at how much she's gone downhill since I last saw her in September.

Hand hold please, or anything remotely comforting would be appreciated.

OP posts:
mnahmnah · 06/11/2021 21:40

Oh that’s awful, for you and your Mum. It’s one of those random health things you never hear of until it happens isn’t it? By often these things can seem worse than they are and can be easily solved once the doctors know what they’re dealing with. I really hope that is the case for your mum. Big hugs

Tailendofsummer · 06/11/2021 21:42

Oh you poor thing, what a worry. Thank goodness you visited her and she is now in the best place - the doctors will be as keen as you to find out what is wrong and to do everything they can to fix it. Flowers

nomorefrogs · 06/11/2021 21:44

Just wanted to say I'm thinking of you. Also, a friends mum had a similar experience and it turned out to be Lymes disease. Try not to let your traumatic experience of being ventilated alarm you about your mum. She will be monitored closely and hopefully soon be on the mend.

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Tallisimo · 06/11/2021 22:18

That sounds very scary for you. Thank goodness she’s got you to look out for her. I hope the medics can work out what’s going on. Meanwhile, sending hugs.

Whenigrowupiwanttobea · 06/11/2021 22:19

She is in the right place receiving all the tests to confirm a diagnosis. Once you have that it will be a relief I am sure. She will be put on the right treatment plan and hopefully will regain some of what she has lost over the last few weeks. Xx

Squiff70 · 06/11/2021 22:40

Thank you all so much for your replies. I know you're all right of course but it doesn't stop me worrying. I know she's in the right place and hopefully will get a diagnosis and treatment ASAP. We're still waiting for the plethora of bloods to come back. @nomorefrogs I don't know anything about Lyme disease other than that I think it comes from tick bites. I'll look into it, thank you.

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