I’m really scared. DD is 6 months and has been doing strange movements that look like little seizures for a few weeks now. Initially went to doctors and got fobbed off but went back a week later as I knew something wasn’t right. Saw different doctor who agreed and arranged referral to paediatrics. Saw them on Monday and they immediately ordered an urgent EEG as they think she might have a form of epilepsy called West syndrome.
We had the test this afternoon and I am terrified. So anxious about getting the results. What makes it worse is that they said they will call me ASAP when the report is ready which “might be this afternoon or if not then Friday morning”. So I’ve waited anxiously all afternoon for a phone call but not got one so I’ve got to wait overnight and watch the clock in the morning. Im so scared for her. She’s lying next to me and she’s so perfect and lovely and I can’t bare the thought of her not being ok. My older daughter has (different, unrelated) medical issues and it feels so unfair. Would be grateful for a handhold, don’t think I’ll sleep much tonight.