I have posted about this before. I have felt exhausted for years. I suspected my heart or sleep apnea but dispite ten or so trys over 8ish years my dr dismissed me.
Eventually I was reffered to a online sleep clinic who pushed back to the gp and I was diagnosed with sleep apnea. I have a cpap mask now.
It took 6 weeks to feel any better on cpap but eventually I felt 50% better. But over the last year I have gone back to being as exhausted as before. I put on two stone and one stone in a month. I'm exhausted. I'm breathless and my ankles swelled up over night. I tried the gp again as with the swelling I have heart failure symptoms. A new recently qualfied gp saw me and took things very seriously. I had a leg doppler, ecg ordered, lots of bloods, referral to fatigue clinic, compression stockings ordered. Ecg ordered. Bloods was ok except my creatine kinase was 230 ( no heavy exercise I would struggle to breath right now). So that was redone. Asked about muscle wasting I
the family etc. but then My normal dismissive gp said my redraw of bloods was fine. I haven't heard anything for three weeks so chased to see if I have been reffered to the fatigue clinic or the ecg three times, no reply.
So I phoned the hospital. No referral for a ecg was made. I asked if with my symptoms should I chase a ecg. The hospital said yes.
I have asked the gp again via e consult to tell me if if they have reffered me or not as I just need to know.
I have started to feel teary and wondering if I'm being ludicrous? Just doing washing made me dizzy today. I think as my bloods showed no heart damage and my chest xray was clear and the bloods that I can not possibly be unwell. Yet I have the symptoms which seem pretty real to me. I wish the gp would say I cant possibly be ill because of the tests so far. Instead they arent replying to me.
I'm also going through tests for nerve damage / MS but so far that's looking good but I have a consultant saying why it not MS so that's more reassuring. My gp is not doing this. Bloods are ok so everything stopped. If bloods are ok and my chest xray is clear then forget about it? I'm worried