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I think I’m autistic - where do I go with this?

30 replies

thinkimautistic · 20/10/2021 15:46

Uni placement, observing an assessment for autism earlier and I had the sudden realisation that they were describing me .

I’ve always been very anxious, and awkward for want of a better word . I was horrendously bullied at school, I never had close friends . I did have a group of girls I hung about with in my older teens but I was often on the outside; they said I was irritating which I can well believe. I don’t understand how friendships work . I have a couple of people I talk to very regularly but not appropriate ‘friendship’ as such (ie not always very reciprocal) . I find I cling very closely to one ‘friend’ in particular to the point she probably finds it suffocating!

As an adult I spend my days largely very much alone . I’ve worked, I’ve studied, but I’ve never made good close long lasting friendships . I find stuff like the pub, parties very awkward . I found the staff room and staff politics a nightmare at work and was bullied by a couple of colleagues .

Never had a relationship at all, I don’t understand how that works iyswim .

I’ve never understood how to play sports - it makes zero sense to me, I can’t get competitive, I couldn’t do it at school - diagnosed dyspraxic but I think it goes beyond that . I was similar with games and parties as a child, I didn’t know how to dance or join in with stuff and felt mostly alone .

I’m always extremely anxious and tense, I have panic attacks frequently . I can’t do stuff like shopping centres, public transport, busy places without struggling . Noises of cars, trains, traffic lights, I find very hard .

Language I am terrible with sarcasm and metaphors and stuff . Told I was a ‘mini professor’ as a child . Have a weird thing where I can remember a great deal for no real reason (i.e. I remember dates, phone numbers, bank numbers, addresses) .

I’ve had mental health help for years on and off, several different diagnoses . At the moment I’m on highest dose of anti depressant, propranolol and bloody diazepam to function and even then it’s limited .

I watch the same TV programmes again and again for weeks - not because I particularly enjoy them but because I feel safe with them on in background (Friends or something like). Sort of similar with eating .

I self soothe a lot and I remember vividly as a child spinning, clicking my tongue, etc - as an adult I just shoogle my leg all the time .

Autism would appear to run in my family - sibling is diagnosed, mother is strongly suspected (complex presentation) and father has traits .

I ended up in tears this morning (in private) as it’s hit me that I’m actually very, very lonely and angry with myself for lacking what everyone else seems to have .

I’m dithering over asking uni if I could talk it through privately, or write something reflective; but where do I go with it? I don’t know if I want to pursue a diagnosis - would it help? Does it make any difference knowing or is it better trying to just accept me as me?

OP posts:
InDispairThisWeek · 21/10/2021 18:32

WTFCanIDoAboutThis my DD’s private assessment is £1200 in total, it was £400 for an initial assessment where I filled out a long form about DD’s childhood and any problems we’d had, dd put some answers in too, we then had a 45 minute phone call where the assessor went through a few things and then said she was fairly certain dd would get an asd diagnosis if we proceeded, it’s split like this so you don’t pay out the whole amount and then end up with no diagnosis. We have another call tomorrow which is due to last a few hours.

BlackeyedSusan · 21/10/2021 18:43

Write a list for your GP: social and communication difficulties
Sensory issues
Routine.

Ask for referral for assessment. You can ask at uni too as they might have an alternative pathway.

There is plenty in your OP to go on for your list.

Autism is a bit/lot shit. Knowing you are autistic helps to know why you find things difficult.

I wish I had known earlier.

RevolvingPivot · 21/10/2021 18:45

I was diagnosed 3 years ago she 34. Had to wait 2 years for my assessment though. Obviously that was before Covid.

RevolvingPivot · 21/10/2021 18:46

I don't know why I wrote "she"

CountTessa · 21/10/2021 19:47

There is a great website called Swan which I think is the Scottish women's autism network and they have some excellent resources on presentation of autism in women and girls.

Some people say that having a diagnosis helps with understanding why they feel different to others around them. Only you know what will suit you. Good luck on whatever you chose.

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