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Has anyone with a school age child got a private ASD diagnosis ?

29 replies

GingerbreadLaTTee · 29/09/2021 17:54

Can you tell me what the process was after diagnosis ? Was it just accepted and support put in place or did you have to have more assessments before you could access support ?

OP posts:
NewlySingle2021 · 29/09/2021 20:10

Sorry for jumping on but @AuntyFungal does an IEP sometimes have other names? My son is due an IEP but the document I was sent was called something different.

OP my DS got a private diagnosis but it was during lockdown, school haven't really done much since he went back in March. I understand as I know there must have been a lot to cope with, but my patience was wearing thin. Towards the end of the final term his teacher told me a few adaptations she'd made for him. It was a bit too little too late (July!) and I was very disheartened by it. I've chased it up ever since and finally last week got school to agree to a meeting between the class teacher, senco and a rep from the local authority's autism support team. I would request a meeting with your senco as a starting point to ask what is being done to accommodate the recommendations your report will have given.

AuntyFungal · 29/09/2021 20:40

NewlySingle - the IEP doesn’t have to be called an IEP. School do though have to provide a document that’s fit for purpose.

You should have a copy and be involved with the termly review. That way everyone can see what has been agreed. What’s worked or not.

It should reflect the current DC age or working age, what they can do now and short to medium goals. Always keeping in mind what you would like (if possible) for the end goal ie eat at table using knife and fork. So you would break that down into small manageable sections.

  1. Stay at table 2. Stay at table and eat agreed food with fingers. 3. Stay at table, eat agreed food with a spoon etc…

The same with educational, behavioural and social areas of difficulties.

One of the main problems in the educational bit is separating out the age related learning difficulties (what targets the average kid should be hitting at a given point) from the learning difficulties difficulty. So, is your kid not understanding because they have not hit a maturity level yet (ie young in year), or a general lower level of understanding or because of their SpLD / ASD.

Tricky, but not impossible to assess ie viva rather than written tests.
Clear English - no double negatives, no ‘feelings’ interpretation etc…

Lower level maths / physics is a corker for this. At GCSE and below, maths and physics can be very wordy. More like an English comprehension test. This disadvantages DC with SpLDs / ASD. I’m not sure how many teachers really appreciate this. Then the child can get pigeon holed into ‘not good at maths’. When perversely, this child then flys with higher level maths - if they get good grounding and are given the chance.

GingerbreadLaTTee · 29/09/2021 21:05

Thankyou this is all so helpful I have a lot to think about

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NewlySingle2021 · 29/09/2021 21:16

Thank you so much @AuntyFungal

Good luck @GingerbreadLaTTee I hope the school does their best for your DC. It's so hard sometimes.

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