To cut a very long story short, I have just been diagnosed with endometriosis in my c section scar. It’s something that has given me a lot of pain for a long time and I am glad to have this confirmed (to be honest I already knew it but had the MRI etc and now it is confirmed).
The care I had through to diagnosis has been excellent. Surprisingly excellent given the circumstances. No complaints there. However, when the MRI results came in, a GP in my practice phoned me to tell me. Two minute conversation along the following lines:
“Yeah so we have your results. You have endometriosis in your scar”
“Ok, so what does that mean?”
“I don’t really know, to be honest. I’m not a specialist. I’m going to write to gynaecology and see what they say. In the meantime I’m going to prescribe you the contraceptive pill for six months. It’ll suppress your cycle and take away the pain”
“Ok…I don’t have a great history with hormonal contraceptives…is there another way?”
“Give it six months just till we see what gynaecology say”
Fine. So now I’m on this pill. It has been 4 weeks and I am angry and tearful and nauseous. Textbook. The endo pain at what should be my period is tender but nothing like what it was. I have basically replaced one problem with another.
GP phoned me back today. “We’ve heard back from gynaecology. They don’t need to see you so just stay on the pill for now. See how it goes”
So I start to explain that this isn’t working for me. I don’t want to be on the pill. She says symptoms from pill often settle after six months, so wait it out. I don’t know how bad/severe the endometriosis is, nothing has been explained to me about what it is etc. How will it be treated? Do I just have to stay on the pill forever? She pretty much shrugged me off. Didn’t have any answers for me, basically.
Is this…normal? I’m just not very sure what to think? Does anyone have any experience with this?