I have a genetic condition that effects my mobility amongst other things. It also causes fatigue, pain and issues with my autonomic system.
For a period of time I was pretty much a full time wheelchair user and then I had some intensive rehab that enabled me to get more strength and not use my wheelchair.
I feel like now though I’m constantly fighting my body everyday and it’s exhausting. I feel so conflicted as I like the freedoms not using a wheelchair allows me and for my kids I like that I’m not ‘different’ but it’s just so exhausting faking being well and people not understanding the daily battle I’m facing. Not really sure why I’m posting but just feeling a bit sorry for myself and don’t feel that there’s many people IRL that I can talk to about how I feel!