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14 YO DD still wetting the bed

10 replies

UntilYouComeBacktoMe · 27/07/2021 08:19

NC for this
I was hoping someone who's gone through something similar might be able to offer some wisdom.
DD wet the bed until she was about 7 or 8. Up until that point we didn't think there was anything unusual. She then stopped wetting the bed for about 2 years, and then it started again.
We have taken her to the GP, she's been on desmopressin which hasn't really worked, and we have also taken her to a consultant who's done an ultrasound of her bladder and found no issues. At times she has also used an alarm, which has been fairly successful in waking her up, but not necessarily always.
You'd think that she sleeps very soundly, but the ironic thing is that DD says she she barely sleeps, and she's on melatonin now.
The last 18 months or so have been hard on her, with low confidence and self-esteem issues, and she has had some counselling. She is in a much better place now, with a nice group of friends, and slowly but surely gaining in confidence.
I don't know if this is in any way relevant, but she is also ever so slightly overweight. Nothing major, maybe 4 kg, but from what I can see that she eats, there's no good reason for it. In the past she has had bloods taken and shown no thyroid issues.
Anyway, I am posting in the hope that someone who's gone through similar might be able to suggest something we may not have looked at. At this point, we are thinking about getting another alarm. Thanks.

OP posts:
grey12 · 27/07/2021 08:22

Could she be scared of going to the bathroom? My mum used to leave the bathroom light on and my door slightly open so I could see the light

UntilYouComeBacktoMe · 27/07/2021 08:24

Thank you grey. We have also done that in the past, even leaving a trail of night lights along the corridor so she can follow the path.

OP posts:
Janek · 27/07/2021 08:46

A friend of mine's dd stopped wetting the bed when she stopped eating dairy. And several years later, if she sneaks inappropriate snacks the problem re-emerges.

They already suspected a dairy allergy, but only confirmed the bed wetting was part of it when they cut it out, iyswim.

UntilYouComeBacktoMe · 27/07/2021 10:09

That's really interesting Janek.

OP posts:
ZingDramaQueenOfSheeba · 27/07/2021 10:25

ask GP to prescribe Desmopressin (sp?)

it's 1 tablet to take before bed (no drinking any liquids after that or can make her sick), usually for a 6 weeks period.
the tablet concentrates the urine so there's no bedwetting.

after 6 weeks people usually take a 7 or 14 day break - if there's no more accidents then you're done, if there are a few then use best judgement (we did another 6 weeks), if still lots of accidents then repeat.

bladder training is useful too : you can find free instructions online

Seeingadistance · 27/07/2021 10:31

My DS was still wetting the bed occasionally at that age. He is diagnosed ASD with complex sensory processing issues. When he’s awake, if he needs to go he needs to go NOW! When sleeping, his body simply didn’t recognise or respond to signals that his bladder was full.

As he’s got older, it’s got better and he is also more conscious of needing to empty his bladder as a matter of routine rather than relying on sensation to prompt a visit to the loo.

How is she when awake? Does she have to rush to the loo?

ItsSnowJokes · 27/07/2021 10:31

@ZingDramaQueenOfSheeba

ask GP to prescribe Desmopressin (sp?)

it's 1 tablet to take before bed (no drinking any liquids after that or can make her sick), usually for a 6 weeks period.
the tablet concentrates the urine so there's no bedwetting.

after 6 weeks people usually take a 7 or 14 day break - if there's no more accidents then you're done, if there are a few then use best judgement (we did another 6 weeks), if still lots of accidents then repeat.

bladder training is useful too : you can find free instructions online

Its in the original post that she has been on this and it didn't work. Please read the OP.
Shmithecat2 · 27/07/2021 10:32

@ZingDramaQueenOfSheeba

ask GP to prescribe Desmopressin (sp?)

it's 1 tablet to take before bed (no drinking any liquids after that or can make her sick), usually for a 6 weeks period.
the tablet concentrates the urine so there's no bedwetting.

after 6 weeks people usually take a 7 or 14 day break - if there's no more accidents then you're done, if there are a few then use best judgement (we did another 6 weeks), if still lots of accidents then repeat.

bladder training is useful too : you can find free instructions online

The OP already said that desmopressin was prescribed previously and it didn't work.
SedentaryCat · 27/07/2021 10:43

We've had similar - DD was never dry at night and used to have regular UTIs. Scans and investigations showed no physical problem.

She's been seen by the bladder and bowel service, prescribed desomopressin, with the option of something different if this didn't work. It did for a time but then she kept randomly 'forgetting' to take it. It was hit and miss whether she would wet when she didn't take it. We tried alarms - she slept through them.

She's 16 now and still has the occasional wet night. She won't see the doctor now and I can't force her. I'm hoping she will grow out of it completely in time for university - she doesn't seem to have a problem when she stays away from home, it's almost like she is comfortable here and sleeps more deeply which can trigger her to wet.

One thing that kept coming up was to avoid blackcurrant squash - which I'm sure you've been told 100s of times (we were told every single time we saw someone about it - DD doesn't like blackcurrant!).

Good luck with it all OP, I hope you find a solution.

BlackeyedSusan · 27/07/2021 10:57

we were also told to avoid fruit juices like citrus and pineapple.

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