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Palliative care nurse phoned - is this bad? Hand hold please.

43 replies

WishIWasSomewhereElse · 13/07/2021 12:18

My dad had a radical nephrectomy after Kidney Cancer. He also had Bladder Cancer simultaneously - unrelated type.

He was treated with Paz, after the KC returned, which stabilised and shrunk them. Then he was diagnosed with Primary Pancreatic Cancer, so the Paz was stopped, then the KC grew all over. He also has Stage 4 CKD, and AKI.

He's been treated palliatively only for a couple of months, and despite being more frail, has been OK. No strong painkillers needed, we thought he would last a while.

He stopped eating much and also stopped drinking tea (which he drunk by the gallon all his life), in the last couple of weeks.

He fell on Sunday and was taken into hospital. He is dehydrated and his electrolytes are all over the place. The doctor said he would be in for 2 days.

Today the palliative care nurse phoned mum and asked if she had anyone with her. She said that the next 24hrs are crucial and they're treating him right now, but he's not responding.

We've got an appointment to go and visit him (mum, Dsis and me).

On his notes it says that he wants to die at home.

They also said they did a scan and there is great disease progress.

Tomorrow it is a year and a week since Dbro died and dad seemed to give up after his "boy" died.

OP posts:
JackieQueen · 14/07/2021 12:14

So sorry op, sending you strength Flowers

Cooldryplace · 14/07/2021 12:38

It doesn't sound good, but it is excellent nurse that you have a specialist palliative care nurse caring for him.

WishIWasSomewhereElse · 14/07/2021 20:05

The plan now is to get him home asap. It takes time to get paperwork sorted apparently, and a care package in place, but he already had a hospital bed and anticipatory EofL injections at home, so that is ready, he needs a nurse to administer the injections.

He seems much brighter. However his GFR is 5 and his Creatinine has risen to 965.

The doctor said that the next 24 hours are critical now they've withdrawn treatment and he could dip very suddenly. They won't know this from blood tests though as they will no longer do any, I guess they can tell from how he is talking etc.

If he dips suddenly, they will try to expedite discharge, but he may otherwise be transferred to the hospice. (Sorry this sounds a repeat of above, the doctor basically said the same as the nurse).

It's hard to take in , as yesterday he was confused, today he was much more lucid.

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WishIWasSomewhereElse · 14/07/2021 20:59

They've now phoned and told us the doctors want us to go in tomorrow morning.

OP posts:
NigellaSeed · 14/07/2021 21:04

Hi OP
Massive handhold. I hope your dad is home with you soon. But mainly I hope he is with his family, even if that means in the hospital, so that his final day can be surrounded by the love he found in life.

WishIWasSomewhereElse · 14/07/2021 21:10

@NigellaSeed thank you Flowers

OP posts:
ShowerOfShite · 14/07/2021 21:16

Had similar with my DM last year.
Sending you Flowers OP.

MagnoliatheMagnificent · 14/07/2021 21:23

Thinking of you, I hope you get him home if that’s what you all think is best. Hopefully you can get to say all you want to say to him too. Just take things one little step at a time. 🤗

Lilypansy · 14/07/2021 21:27

I'm sorry you are going through this, it's very hard. Sending hugs and thinking of you. Flowers

AbbieLexie · 14/07/2021 21:28

Flowers for you and your family

lachy · 14/07/2021 21:30

Flowers and hugs for you all.

covilha · 14/07/2021 21:47

So sorry @WishIWasSomewhereElse. Very much hoping they can transport your Dad back home, sounds as though you are a very close and loving family xx

WishIWasSomewhereElse · 20/07/2021 12:36

Dad came home on Sunday. He saw dd and took a great effort to talk to her. Sadly I think that was the last time as he is now unresponsive and she was upset enough then.

He's done amazingly well considering we were told he had 24 - 72 hours, and that was last Tuesaday. He's not been able to drink since Saturday and he can't have a drip.

OP posts:
MichonnesBBF · 20/07/2021 12:56

So sorry you are going through this ❤ I have been there in very similar circumstances to what you have described. I have always taken solice in the fact my dad passed being loved. And it sounds like your dad has that by the bucket loads. ⚘

ShowerOfShite · 20/07/2021 13:33

It's a terribly sad thing you're all going through, sending you my best.

SquigglePigs · 20/07/2021 15:03

So sorry you are going through this. Great that he's home and that your daughter got to see him/he got to see her. Hope the end is as peaceful for you all as it can be. Look after yourself. Flowers

lachy · 20/07/2021 19:04

So sorry you're all facing such a tough few weeks and months ahead, Flowers I hope you have plenty of support around you all.

lastnightthemooncame · 20/07/2021 20:47

Oh OP, I wonder how things are?
Is your Dad still peaceful?
Bless you.
I want to add - do you have the end of life kit & are able to use it etc?

Recently needed as in the last few hours my Mum needed the morphine driver that had been supplied (after being very peacefully getting weaker after stopping eating & drinking) then she became very agitated in the last 4 days and there was no staff available to administer it/it took Marie Curie twelve hours to get to our house to administer it.

I won't say anymore, just that I wouldn't wish that on anyone, ever.

Similar issues due to lack of paramedics etc a few weeks before when she needed emergency ambulance, it took 8 hours to arrive, it's in those periods of waiting with no medical care around that I think it's worst, I hope things are peaceful for you all, my heart goes out to all of you.Flowers

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