Cystic fibrosis symptoms?

[mommycarol]

Hi ladies,im new 'here so bare with me :) i did post my question with another title but not sure if that was the right one.' So i need some advice for some weird things my son developed recently!! he seems to get quite wrinkly in water and fast! i made the huge mistak'e to google and b'ammm hel'l brike l'oose.'everything says cystic fibrosis..' my son is 2'.5 years old no other symptoms. We do have a sweat test in 10 days but it drives me crazy really.'.'any moms had something similar but enden being nothing??please help,im so stressed right now..thanx xx

@Ladylokidoki really? Thats nice!! I ve luved in London for a couple of years! My uncle used to own a very popular night club-restaurant ,i think was called Elysse

You're right to get him tested but what you clearly have there is a healthy child. So even if his genetics show CF he is clearly not unwell and the science is around now to keep him well. I work with a cf service and the modulators are basically miraculous.

@mommycarol is that a night club in Cyprus?

We usually have quiet family holidays there. No clubbing involved. We stay at Panera or around there.

pernera

@Northernlurker Thank you!

@LadylokidokiYes,Pernera i know :) the night club i was talking about is in London! An uncle if mine owned it!

@mommycarol ah I live in Yorkshire, I don't know London that well.

I have been to Cyprus more times than London

@Ladylokidoki haha i see..well when you come let me know!! We can hang out! I will take you to magical places

@mommycarol. Will do.

And please let me know how the sweat test goes. I am sure it will be fine, but know how worrying it can be.

I wouldn't be worrying too much OP. My own DC had a sweat test done but it was after a significant number of serious respiratory infections. They had multiple symptoms of CF infact pretty much all of them, frrquent infections/pneumonia, stools, not gaining weight, as well as some suspicion regarding changes in lungs on imaging. Googling had me completely convinced that was our answer but the sweat test was normal so no point worrying about it until you know for sure

@jumpbounce Hi :) glad that everything went ok with your son! Ohh i hope so that everything goes well with us as well! The waiting is so hard.

@Ladylokidoki for sure i will!! The test is on 5th of july! And then needs a fwe days for the result. Im gonna have a stroke until then lol

@mommycarol finger crossed you get the results quickly.

Its easy to say but just try and keep yourself distracted and try not to think about it.

Your son sounds healthy and happy. Try and think of it as more ruling it out, for peace of mind

@Ladylokidoki Thank you! ❤️

I echo what the others say, to step away from google and wait for the sweat test. My sister who is in her 20s has CF, she was diagnosed at around 6 months old.
Best of luck, hoping it's a negative for your son.

@MissMooMoo Thank you ❤️

Sweat test update negative!! :) Im so happy