Posterior tongue tie?

[leahmaysimmonds]

EXPERIENCES PLEASE:
My 10m old baby is extremely gassy and refuses feeds at times, she has trouble staying and going to sleep. I’m pretty sure she has a posterior/anterior tongue tie which is the cause and I just need someone to confirm with me if she actually does or am I just being paranoid?

She has had a lot of different treatments for trapped wind and reflux but nothing has worked and she seems to be getting worse as she gets older. I’ve now put it down to the tongue tie, so she’s being referred for a snip and I’m hopeful it’ll help her. This is my last hope and I really wish it changes her as a baby because she seems unsettled most of the day 🥺

What were your experiences of tongue tie division for babies this age? Really need some bit of hope! My last chance

Her symptoms:

• Not being able to move tongue properly in mouth or past bottom teeth
• Sometimes choking while feeding
• Trapped wind at night, keeps wriggling
• Line under tongue
• refusing feeds

hard to see it on photo, but it's very likely.
4 of mine had TT, one had really bad posterior TT.

the youngest 3 had op when only a few weeks old.
get HV to refer you to whomever would be doing consultation then op through NHS or find out if you can get it done privately.
we had the maxillo-facial surgeon do it at our local hospital, privately for £80. he also does the NHS referrals but that was a longer wait so we paid for speed.

I cant even see a frenum in the picture to cut!

Posterior tongue tie is a very controversial diagnosis. Theres currently no evidence to suggest snipping is of any benefit

Everyone has a frenum. A line under the tongue is normal. That looks like a perfectly normal, healthy tongue

no evidence???
DD was losing weight because she couldn't bf and could barely drink from bottle. she also had a high-arched soft palate so as soon as she had op bf improved immediately.

probably best for a professional to judge what the actual situation is.
but saying there's no evidence that a TT separation improves feeding is just irresponsible.
there's definitely evidence. 3 x from me alone

Sorry all posterior tongue tie is where the frenulum is hidden under the skin of tongue but her tongue seems very cupped and doesn’t reach top of the roof of her gums when crying xx

@leahmaysimmonds

EXPERIENCES PLEASE: My 10m old baby is extremely gassy and refuses feeds at times, she has trouble staying and going to sleep. I’m pretty sure she has a posterior/anterior tongue tie which is the cause and I just need someone to confirm with me if she actually does or am I just being paranoid?

She has had a lot of different treatments for trapped wind and reflux but nothing has worked and she seems to be getting worse as she gets older. I’ve now put it down to the tongue tie, so she’s being referred for a snip and I’m hopeful it’ll help her. This is my last hope and I really wish it changes her as a baby because she seems unsettled most of the day 🥺

What were your experiences of tongue tie division for babies this age? Really need some bit of hope! My last chance

Her symptoms:

• Not being able to move tongue properly in mouth or past bottom teeth
• Sometimes choking while feeding
• Trapped wind at night, keeps wriggling
• Line under tongue
• refusing feeds

Hope this helps. Was a video but couldn’t post it had to screenshot x

Please check the image x

@ZingDramaQueenOfSheeba yes, in the medical literature, which is surprisingly what someone would look at when researching a procedure. One person is not evidence.

Its not irresponsible its the truth, its what the papers on the subject say. Not a tongue tie division, a posterior tongue tie division.

But OP I still can barely even see her frenum.

If you are anywhere near West Yorkshire check out milk matters in Huddersfield. They were excellent with us. My son had his released 3x. It was posterior and he could not latch onto the bottle let alone the breast to drink his milk. We were also advised to her body work (osteopath) etc done as releasing the tie alone will not help if their alllignment needs some work/ tension released in neck and skull which will help tongue movement

Also have you ruled out cmpa? You mention reflux but not sure if you have ever tried being dairy free for 6w?

I should say it was released twice locally and the third time by milk matters. They suggested it hadn't been released far back enough hence needing to repeat it.

It took almost 5 months, endless agony, weightloss and stress until anyone would believe me/diagnose my ds with a posterior TT. I was told he had silent reflux. I had bruised and mangled nipples and he was attached 24 hours out of 24.

"It's so tiny and insignificant, I can leave it or snip it but if it was up to me I'd probably leave it" I insisted it was divided, and I cannot tell you the difference it made. It literally solved his feeding issues, the pain for me, and his weightloss, his silent reflux disappeared overnight.

I was told the NHS do it until 20 weeks (ds was 19 weeks when it was done, and my area only does it till 16 so I had to travel an hour to a different hospital that did) and then they won't touch it till after 3.

[quote NutterflyEffect]@ZingDramaQueenOfSheeba yes, in the medical literature, which is surprisingly what someone would look at when researching a procedure. One person is not evidence.

Its not irresponsible its the truth, its what the papers on the subject say. Not a tongue tie division, a posterior tongue tie division.

But OP I still can barely even see her frenum.[/quote]
I’ve just uploaded another pic also a posterior one is more hidden.

OP asked for experiences, not published medical papers ffs

@ZingDramaQueenOfSheeba published medical papers will give a much wider breadth of knowledge. One persons say so is pretty much irrelevant to whether its a procedure that will actually help Ops baby or not

If theres an obvious band of fibrous tissue to snip then realistically there's no harm in snipping it even if its of no benefit.

In OPs case theres very little to even see. Youve got nerves, blood vessels and your salivary ducts in the floor of mouth and there's a risk to these structures if you are snipping too posterior. We can see OPs baby curling their tongue back fully and sticking their tongue out to their lower ridge in both photos