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I am so bloody lonely

9 replies

Purpleblock · 15/06/2021 11:41

I’m a carer to our Asd late teen, dh works full time and I worked part time when our child was at school.

Ive never had a big social life, I find I can do short burst of interaction with people in passing but longer episodes do exhaust me and to be honest I suspect I am also on the spectrum, even so I did feel less lonely when I got to interact with people when I worked outside the home.

Much like other parents I imagine, I did fantasise about being at home when our child was at school because it was so very hard trying to juggle work and the inevitable calls from the school (providing I actually got dc to school in the first place) to come and collect a struggling adolescent with a severe social anxiety, and the afternoon would be filled with all of the things that caused dc stress during the day and all of the things likely to cause stress tomorrow. There was so little down time for my brain.

When COVID arrived and we were asked to stay home as much as possible, we did just that. With the result that our child will no longer leave the house at all. In fact dc is the happiest they have ever been, there are no demands on their life at all, and all I feel is guilt because I don’t push harder to try and encourage some outside time.

I’ve read back over my post and I realise it might sound like I resent my child, I just want to make it clear that I don’t resent dc at all. In fact I absolutely adore my funny, very insightful and caring child. I just feel sad that my dc will always need a strong scaffold around and as I watch my other dc go to work, form romantic relationships, take driving lessons, all the things you hope for your child, I wonder what the future will hold?

OP posts:
parietal · 15/06/2021 11:48

i'm sorry you are feeling this way, it is very tough isn't it.

does your child go to any form of school or college at the moment? are they under the support of CAMHS?

Purpleblock · 15/06/2021 11:59

It is tough, I don’t always feel sorry for myself but some days it just hits you, you know?
We have no supports at all, I’m not in the uk so things are probably a little different here.
I had hoped to get dc on a life skills course but COVID put an end to that, it would have been hard to convince them to go before COVID but almost impossible to convince now.

OP posts:
GingerFreaker · 15/06/2021 12:23

Online parental support groups changed my life.

I learn so much more. I was encouraged. I could laugh or cry, whatever the day brought. No one judged, it was what I needed 15 years ago, but didn't know existed.

As for my dc, I have 2 with autism and extreme anxiety. I encouraged getting involved with local charities. No pressure on them. It worked for one.

💐💐💐

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niceupthedance · 15/06/2021 12:28

I'm always banging on about social prescribing on here but most GP practices should have one ... no obligation chat about things on locally which might appeal and maybe some suggestions for your son (even online?) Might be worth a go.

Purpleblock · 15/06/2021 13:06

I guess I just have to find “my people” where ever they may be.
The problem with dc is if it even looks like I’m suggesting us leaving the house together for any reason ( and I’ve tried allll the reasons!) I’m shot down in flames.
I could go out by myself, and I do once a week, dc is ok to be left alone for a couple of hrs as long as I say there’s no need to answer the door if someone knocks, and as long as I answer any texts straight away. But then I feel guilty for leaving dc behind.
I’ve never heard of social prescribing nice ?

OP posts:
niceupthedance · 15/06/2021 16:13

It's a new nhs initiative to help people find their people in the local community. You essentially tell the social prescriber your issue as above and come up with a plan together about something you might like to try; community gardening, book clubs, courses, fitness things or whatever takes your fancy really.

Auntienumber8 · 15/06/2021 17:13

Sounds like your dc is safe for a couple of hours. You also say they have never been happier.

DO NOT feel guilty leaving the house for a couple of hours, why should you?

How do your other dc interact with your child? In all this what do they and your DH do to support you both?

Purpleblock · 15/06/2021 19:13

@niceupthedance

It's a new nhs initiative to help people find their people in the local community. You essentially tell the social prescriber your issue as above and come up with a plan together about something you might like to try; community gardening, book clubs, courses, fitness things or whatever takes your fancy really.
That sounds really interesting, I’m going to see if there’s something like that here. Thanks nice
OP posts:
Purpleblock · 15/06/2021 19:27

@Auntienumber8

Sounds like your dc is safe for a couple of hours. You also say they have never been happier.

DO NOT feel guilty leaving the house for a couple of hours, why should you?

How do your other dc interact with your child? In all this what do they and your DH do to support you both?

I know I shouldn’t feel bad about going out without dc, I probably just need to get back into the swing of things, I live in a nice area with lovely walks, I just would like to have some company.

Dh and other dc are great and will step in and help out when ever I need them too, I do have to ask though I’m definitely the one who carries the mental load here. I’m very aware of not relying on other dc too much, they have their own life and in the future when dh and I are older we will need them to do more.

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