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Aura migraine - any other sufferers out there?

106 replies

ImaHogg · 04/06/2021 10:17

I’ve just woken up with one.
I absolutely hate them.
I’ve had them for 15 years and mine must be triggered by hormones because they started in my first pregnancy, then the second and now I get them in the 2nd or 3rd day of my period and getting worse (I’m 48).
They start as a sudden blind spot which progressively gets bigger, from that blind spot I lose my vision (ie can’t see a full clock face or only see half of someone’s face), the blind spot then turns into a psychedelic zig-zag flash which goes right across my vision and gets bigger u til it moves away. I then have to lay down with eyes covered as I basically can’t see much at all. It lasts around half an hour and quite often I don’t actually get much of a headache but they leave me exhausted, nauseous and feeling very weird and spacey. Some very bad ones have left me with numb hands and lips and feeling very cold and confused.
I absolutely hate them and have never gotten used to them. They scare the hell out of me and I worry about strokes as they run in my family and apparently you have a greater risk of stroke as an aura sufferer!
My mum and sister get them too.
Doctors and opticians don’t appear that interested tbh.
I take neurofen to ward off a headache but nothing stops the aura.
I fear mine will get worse as I head into Perimenopause.
My day will be buggered now I’ve had one this morning.
Any fellow sufferers out there? Have you found anything which helps?

OP posts:
FictionalCharacter · 05/06/2021 15:19

Yes I get these, and I’ve never found a definite trigger. I can’t take triptans so I don’t know if they’d work for me.

Best thing for me is 2 pink Migraleve immediately- as soon as there’s an inkling of an aura - and a lie down in the dark if possible. That will usually stop the attack developing too badly and keeps the pain down.

It’s worth taking medication as soon as you suspect it’s coming. Better to take it when it wasn’t needed, rather than hang on until it’s too late.

thenightsky · 05/06/2021 20:00

This is exactly like mine, but speeded up. I take 40 to 50 mins from a the missing dot in the middle, to the zigzag fizz to disappear off to the right.

MySocalledLoaf · 06/06/2021 10:32

Isn’t migraleve sumatriptan?

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TheCreationOfDistance · 06/06/2021 10:44

No, it’s paracetamol, codeine and buclizine (antihistamine and anticholinergic).

ImaHogg · 06/06/2021 11:52

[quote thenightsky]This is exactly like mine, but speeded up. I take 40 to 50 mins from a the missing dot in the middle, to the zigzag fizz to disappear off to the right.

[/quote] Yep, that shows it perfectly
OP posts:
MrsJackPearson · 11/08/2021 12:08

Coming back to this old thread as I have managed to get an MRI appointment later today about my migraines. Has anyone had one? I had another aura migraine last week and booked a GP appointment for yesterday to discuss, got a different GP to usual and he was very concerned by the speech problems that I have, I’m quite surprised to get an MRI booked in the day after my GP appointment!

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