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Has anyone regretted getting an autism diagnosis for yourself or your dc?

2 replies

OtterRock · 19/05/2021 10:13

Hi, I know this shouldn’t really go in chat but I’ve posted about this before in the right topic and it’s so quiet there I only got a couple of replies.
So I’m pretty sure that both my 2 dc and I have asd and adhd. I’m hoping to get us diagnosed but my dd age 17 is worried that the diagnosis will go against her in some way, for example if there are jobs where your medical records would be checked and employment would be denied for autistic people. Her career aspiration is pretty niche so I won’t say what it is in case it’s outing but they do make you jump through hoops to get in. Could an employer ask to see your medical files and then turn someone away because they had autism or adhd?
I’m also wondering if anyone regrets getting a diagnosis, has it ever impeded you in any other ways? For example I have a couple of chronic illnesses and it’s so hard to get my pain taken seriously by doctors, if they could see I had autism on my records would they listen to me even less?
Any other ways having a diagnosis has been negative or anyone who regrets it?
Positive stories of having a diagnosis for you or your dc are welcome too.
Thanks Flowers

OP posts:
NCnamechanged4this · 19/05/2021 10:23

No, it's been positive for my child. It's helped them understand themselves better and why certain things are more difficult for them than others. It's also helped with articulating their needs with school etc.

As I understand it a diagnosis belongs to the individual and they can choose when and where to disclose it.

In certain situations I think it may be required, I think if it's likely to affect their driving they have to declare to the DVLA but if it makes no difference then they don't have to. I'm not 100% confident on that though.

My child initially rejected the diagnosis and was very very upset but after a few months they accepted it and have found it helpful.

We did ours privately therefore their GP didn't have a record of it and would only know if we told them.

Many companies are now actively recruiting neurodiverse people as they recognise that they have skills and outlooks which are beneficial.

TwoAndAnOnion · 19/05/2021 11:22

Where does she envisage her medical records being checked?

Autism would come under disability discrimination.

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