Anyone else had these issues with the Mirena Coil? Please help, feel like I’m losing my mind

[GarethKeenanARM]

I had the mirena fitted earlier this year for irregular bleeding. It was fitted early January and I’ve basically bled every day since so it hasn’t really
Helped. I’ve had scans/blood tests etc and there’s no cause of the bleeding but I am very overweight so obviously thats not helping.

BUT over the past couple Of months my moods have just become so so unstable. I’ve always had anxiety but recently it’s absolutely sky rocketed. To the point of it really starting to affect my every day life. I suffer from crazy rages, I’ve been having really intrusive thoughts that I shock myself with, I’m so emotional I’m hysterically crying all the time. I’ve had thoughts of just wanting it all to end (I am not suicidal, don’t want to die and have no intention of killing myself but just the thought of god it’d be so much easier if it was all done with). I feel like ending my relationship for absolutely no reason, my DP is lovely and I’m madly in love with him. Last night I was thinking of asking my
Mum to take care of my DS for 2 weeks so I could go away alone and switch my
Phone off and just be alone. I mean, that’s totally not normal right? I am a student nurse not far from qualifying and obviously that’s been very stressful but it’s been fine and manageable, I’m on the home straight now so don’t feel particularly stressed about that.

I feel like my whole body has been taken over and I’m turning into someone else. My DP has been lovely but even this morning I’ve basically blanked him, he’s just left for work and I didn’t say goodbye because I’m in some weird horrible mood and now I feel terrible. I only know one other person with the mirena and that’s my sister, I’ve spoken to her but she’s a total convert and can’t sing it’s praises enough.

I’ve got a follow up with the doctor at the end of this month but i don’t think I can wait that long, I’m going to ring the sexual health clinic on Monday and ask for them to remove it. I want it gone. But has anyone else had anything like this? Or is it just me that’s totally crazy?

And also I’m
Feeling no joy in anything. I’m meeting my friends this afternoon for dinner and drinks and I should be excited but i just want to stay in and not talk to anyone.

I had that after I had an implant fitted many years ago. The consultant wouldn’t remove it, I wanted to cut it out myself! Saw a female consultant who booked me in for sterilisation and removal. She was an angel!!!

I've had a few Mirenas (my womb seems to be excellent at expelling them if they are even slightly mispositioned) and I find them really good because for me they only seem to affect my womb.
If I take any type of pill (which I can't anymore since they cause migraines for me) I actually want to murder people. I honestly fantasised about stabbing exH one day, I watched myself doing it in my head, and how I would get rid of his body. I would actually see a red mist descend and felt totally out of control of my emotions and thoughts.

I appreciate that doesn't help you but didn't want to read and say nothing. I hope you feel better soon

Thank you. I’m glad it’s not just be but sorry you’ve both had the same issues, it’s rubbish.

I have sobbed snd sobbed this morning, I feel totally numb but also overwhelmed at the same tone. Luckily DS is with his dad and DP is at football probably wondering what the hell is wrong with me. I think I’m going have it removed, it’s not helped with the bleeding anyway and I can’t carry on like this. If I leave it in any longer I dread to think how ill feel in a months time, probably be locked for smashing someone’s windows through because they left their bin by my house 🙈.

It’s horrible. Absolutely horrible

Yes, a couple of years ago. It affected my hormones and moods very, very badly and made me feel exactly as you’ve described- completely out of control. I also bled constantly and had permanent cramps. It was a complete nightmare and I would never have one again.
Phone your GP on Monday and insist you need to speak to someone ASAP. You really have to push to have one removed early as the clinics tend to be reticent to the idea, but the relief after a couple of weeks was immense. I felt like myself again.
Female doctors seemed to understand this much better than men.

Thank you, I’m sorry you’ve had the same thing. This weekend has been horrific, I sobbed to my DP when he got back in and he was lovely
But of course he doesn’t understand. Then yesterday evening when I got home from meeting friends I took something he said TOTALLY the wrong way and flew off the handle. I ended up taking myself and sleeping in the spare room.

I’m not trying to justify my behaviour because there’s no excuse for the way I’m acting but I do feel totally and utterly out of control, like I’m
Actually scared of the way I am feeling. I’m going to ring the sexual health clinic tomorrow and tell them I want it out, I’ll try my GP as well. I just want it gone :(

I felt really depressed with mine. I was sort of numb. I'd look at all the jobs that needed doing but couldn't do them. It was like I was frozen. In hindsight I wasn't good with the pill either and I was really ill later down the line with menopause. I don't think I'm good with hormonal changes. I had mine out in the end.

Yes.

I kept it for 9 months. I bled every day apart from 3. My skin was awful. I had mild stomach cramps frequently, was bloated and uncomfortable.

Had it removed. Lost 10lbs of water retention over a week. Passed several enormous clots. Quickly felt better.

Hi OP, please insist that it is removed. The Mirena releases very high doses of progesterone into your body and it can serious affect your mood. If you are affected it is imperative that it is removed. This is in the NICE guidelines. If your GP won’t remove it immediately (😡) you should change GP and report them. I cannot believe what women have to put up with from medical professionals.

Yes. I got it taken out and felt better by the next day. It was really bad I felt almost suicidal with it. Never again!

I don't think there is enough publicity around the negative affects of the Mirena coil. They should tell you that it could turn you into a crazy banshee who quickly gains weight and it also could kill your libido in the process.

I had to take antidepressants after I had mine fitted and was so angry, I felt like I was in a vacuum. Was horrible to the kids and DH. It felt like I had severe PMT constantly.

Literally the day after I pulled it out I felt like a huge cloud was lifted, I could feel happiness again and started wanting DJ to touch me whereas before I could have gone without sex forever.

I don't advocate pulling it out yourself but definitely speak to your GP ASAP or a GUM clinic to make an appointment for it's removed.

I hope you feel better soon x

Thanks everyone, I’ve called the gp and they’ve put me on the sacred list of call backs to ‘speak to someone’. I was very polite but I said I’ll speak to whoever they want but I want it removed.
I’m currently on hold to speak to someone at the sexual health clinic, I’m literally feeling panicked about having to wait to have it out.

My mood is getting worse and worse, it feels like a hole is in my chest full of dread, anger, sadness and paranoia. I should have never ever ever have had it put in :( there was no discussion with me about the side effects it was literally a case of ‘you’re bleeding and we don’t know why, have this it will make it better’

Just got through to the sexual health clinic and they’ve also arranged a call back for me between now and 6.30 😭. I just want someone to take it out for me. I’m going to ring the people who put it in (it was through the NHS but a third party company) and see what they say

You might have to push to get them to remove it, they seem very reluctant to do so! There are coils with fewer hormones in that might not affect you as much but they always seem to push Minera. I think because it has more chance of reducing bleeding.

I hope you get it removed soon, OP. I had horrible side effects with the Mirena, physical as well as psychological. It really doesn't suit some people. I wish I'd known sooner that it might be the cause of the symptoms I was having.

If you do get it out you might not feel better straight away so don't panic. Took me a cycle to feel more normal but that might just be me.

Called the company who fitted it (health harmonie if anyone is familiar). She said the line are very very busy and I need to speak to a manager to discuss ‘whether they can make me an appointment’ so I’m now on the list of a call back for 3 different healthcare services at any time between now and 8pm. All 3 are capable of removing it so whoever calls me back first I’m going to demand it taken out.

I had one and didn't like it. Nowhere near as bad as you but I had absolutely no libido and felt numb inside my head whereas I'm usually pretty happy.

I was thinking of having it removed when it luckily ejected itself! I had an emergency appointment to remove it properly as I could feel it digging into my insides. I felt much better quite soon afterwards.

Good luck today!

They are evil things. I had mine removed after 8 weeks. There was some face pulling/disapproving looks but I absolutely insisted.

Ok the sexual health clinic called and booked me in for tomorrow. The only thing is have my second Covid jab booked for 5 minutes before. They’re literally 2 minutes around the corner from eachother so going to try and go for my jab a bit earlier and hope they see me. I’ve had a look at changing it but there aren’t any more available till June

I had terrible anxiety and really intrusive thoughts with the Morena coil. It was bloody awful and made worse because the GP didn't take me seriously at all. I had to get very firm and absolutely insist they took it out of me!! Stick to your guns OP, it is the coil making you feel like this and you will feel better when the bloody thing is out and your hormones have rebalanced themselves. An un-Mumsnetty hug to you!

I had one for about 6 months and it was a total nightmare.

It caused me to have episodes of suicidal ideation, terrible mood swings and a constant low mood, crushing anxiety, weight gain, acne and migraines.

Surely everyone ought to be doing a yellow card for these unacceptable side effects? I had dreadful problems with a copper coil which according to forums etc were common side effects but the doctors wouldn’t recognise them and pushed other medication for the side effects. As soon as it was out all the problems vanished overnight. I never yellow carded though so presumably doctors are still telling people those side effects can’t be linked to the coil?

It’s out!!! Had it removed yesterday and feel a million times better already. I just feel like my heads clearer which might seem silly and is probably a placebo effect but definitely feeling better 🎊🎊

Well done OP. Sometimes it seems as if women are not allowed to mind their own health - we met listen to our "betters". But we need to stand up for ourselves.