To sick to work what do I do

[Overwhelmed245]

I currently have endometriosis migraines I’ve had 3 surgeries and currently on almost daily codine and the occasional morphine when I’m unable to tolerate the pain. My List of symptoms is endless and I’m often always in pain daily when I’m on my period I’m laid up in bed being sick withering around in pain on those days also leaking through everything constantly I can’t work on the days around those I go to work but am often sick at work. I’ve paid to see private doctors I’m on lots of different tablets and working my way around different types of things that may help but nothing working as of yet. At the moment I work 3 days a week and either try and swap my days if it falls on my period and for the other times I just trudge through work come home and then sleep. I tried to do an activity on Saturday managed half an hour before I had to go back to the car and cry. I need more money but I can’t work anymore I’m on my 4th job and have just gone back to my first as they could offer me part time hours and it’s easy on my pain. I can’t claim any benefits and don’t want to if I can help it I’m lucky my living costs are low but I can’t keep on earning no money I don’t no what to do

I’m only 27 I want full time job work want me to take on an extra part time role in something I love and am
Really good at but I can’t commit to it as I’m already struggling on part time hours to keep up

It’s awful OP - I have endometriosis and adenomyosis, and ME. I had to stop working when I was 29 and became self employed although have never made much. I now have a very flexible very part time job, I would be screwed without DH. I’ve been on morphine daily for well over 10 years now.

I don’t get any disability benefits either - chronic pain is really difficult to claim for.

Waiting on another lap (will be my 7th) and in constant pain right now. It’s unbearable and so hard to manage.

Yes it’s awful my partner is lovely and says I will be ok as I have him and he loves me but I don’t want to become dependent on him

Has anyone had a successful claim for
Disability or pip

Another night of extreme pain I have work on Wednesday and I can’t call in sick again

How am I meant to survive if I can’t work or hold down a job

You need a job where you work on stuff that can be done at anytime, ie, you have to make 5 items this month, so you can work when you can, and as long as you do it within the time frame. Sorry if that's not explained very well, hopefully someone will know what I mean

I know what you mean I’ve tried looking for other jobs but it’s hard as I need a job with full time pay I have bills to pay and need to be able to afford things I can’t also find things that work for me. Like today I have a day off and planned to get my nails done with a voucher I had from Christmas I’m in so much pain in bed I don’t think I will be able to go. I can’t even do anything fun

I want to be able to work and have a full time job I hate my days off I actively get excited to go into work

This is outrageous. No woman should have to go through this much pain and disruption to her life. You are effectively disabled OP. I would focus on going back to your medical care and fighting DEMANDING something is done to alleviate this. Pain management is not a solution but often women are swept to the side with a bunch of painkillers

If this was a man who couldn't work, he'd be taken more seriously. A sad fact.

You're young and deserve the opportunity to have a successful career. Keep fighting your medics for answers and solutions, make a nuisance of yourself if needs be. Those that shout that loudest and all that..

Good luck

That sounds so hard, @Overwhelmed245.
Have you joined one of the endo FB groups, such as www.facebook.com/groups/273254573148116/?ref=share

@pigeonpies there is no cure I have plenty of different options to help me but none have worked currently trying more options now yes I’m on lots of endo groups too x

@Overwhelmed245

Sorry I wasn't intending to be ignorant I just feel a lot of the time we are told things are they way they are or incurable when this often depends on the level of care you have access to.

Sorry you're having to go through this.

@Overwhelmed245

I'm so angry on your behalf and feel so sorry for you, and that's not meant to be patronising.
I don't understand why you're still suffering with endometriosis - a vile, excruciatingly painful condition - when you've seen so many doctors.
I suffered from this, (but no migraines), in my late 30's/early 40's, and it took ages to diagnose, and I had to push my GP's for action.
Eventually endometriosis was confirmed after a laparoscopy, and the
adhesions were successfully lasered away.
Fortunately the onset of the menopause meant that the condition never returned because of course my periods stopped, which was when the pain was at its worst.
You don't say in your posts whether you've had laser treatment?
But forgive me if you have.
pigeonpies is right - you should not have to suffer like this

I’d apply for PIP at the very least. It’s not means tested and you can claim it while working PT. Talk to a disability charity, they often will help you put together application and represent you at tribunal. DWP rejects most new claims for PIP because they know many will just give up. It’s to save money by denying benefits to disabled who are entitled to them but don’t have the energy to fight for it. So you don’t give up, ask for reconsideration and then appeal to tribunal.

I had laser and Excision surgery which is actually the best I’ve paid to see one of the top doctors in the il and even he agreed im stuck like this until one of the treatments might work

I will try and apply for pip thanks x

Also I have lots of savings I’m using to buy a house will pip be affected by that or affect me getting a mortgage

Pip isn't a means tested benefit so savings don't count. However it is difficult to get make sure you get as much evidence as possible to support a claim and ask if you need assistance filling in the paperwork.
If you have to give up work there's also esa you may be entitled to.
I was retired on ill health grounds in my 30s and my pension had two tiers (1.if they think in the future you'll be able to work 2. If they feel you'll never be able to work again).
It may be worth looking at your pension if you have one for future reference.

Thanks I do have a pension but it’s a work one I just miss being able to feel normal we have a family break to the uk booked and there all planning these activities that I know I can’t do because I’ll only be able to manage one or two with lots of rest in between

@Overwhelmed245

Also I have lots of savings I’m using to buy a house will pip be affected by that or affect me getting a mortgage

No. It’s not means tested so doesn’t matter how much money you have. Also it is not taxable income, so will not affect your tax bill. It is also passport to other benefits like disabled rail card which is 30% off rail tickets for you and another adult travelling with you. Also disabled bus pass. Also, can be used as part of evidence when applying for blue badge parking permit.

Thank you for the advice will try and fill out a form tonight

Take great care when filling in the pip form. It's not actually based on the condition you have, but how that condition affects your everyday life and your ability to do things. Answer all questions as if it's your very worst day and how that stops you from being able to carry out tasks. There are practise pip forms you can complete online to get an idea of what you would score before you actually fill the real form in. I'm not saying try to lie or cheat the system or exaggerate your answers but if, on your worst days, you can't get out of bed, can't cook a proper meal without assistance etc then make that your answer. Also, provide as much evidence as possible from doctors etc, even if you have to ask your doctor to write a letter of support. It is hard to claim but it can be done, even if you have to appeal the decision if you don't score enough points. Good luck.

Have you tried the helpline at www.endometriosis-uk.org/ ? Or one of their local support groups? I found them really helpful.

It might not be want you want to hear but the answer I found was to go part time with flexi hours. Eg I have a task to complete by the end of the week but to achieve it I put in the hours on the parts of the days I feel well enough to work. I’ll do around 16hours but when I do them is up to me. (It’s a huge hit financially though so I understand that it’s not for everyone.)

Thanks for all the advice x