Ok sorry I now have a bit more time to write! My son had silent reflux and allergies, it took me going to the health visitor for him to be weighed and he screamed blue murder, the health visitor called the senior over and asked me how much of the time was he like this, I said 90% of the time. I'd been to the gp 4 times and been fobbed off and told he's a baby of course he cries, it's normal for him not to sleep, feed him formula his weight gain is poor. I knew this wasn't normal. The Hv wrote in the back of my red book and sent me to the gp that day, he was useless but he did start us down the reflux route, with gaviscon which was a disaster. I was so desperate I went private to a consultant as ds was only sleeping for 20mins at a time, was hysterical most of the time and was failing to thrive, he turned my journey around.
Ds had green frothy explosive poos
Did not sleep for longer than 20 mins
Hysterical on back
Eczema
Pale and drawn
Bobbed on and off feeding clearly uncomfortable
Daytime would only sleep on me or upright on a sling night time would sleep 20mins then be up repeat all night.
Hideous mucus loose nappies
Would choke on his reflux daily but never sick
I was told to immediately cut dairy and soya, wheat, egg, I ended up cutting out sorbitol as well. He was prescribed omeprazole at a relatively high dose and ketotofin to calm the allergic response, he was prescribed a dairy and soya free formula for top ups and was put under a dietitian. It took 6 weeks for any real improvement and the improvement was small, he slept for 45 mins at a time, his nappies were slightly better etc. I introduced everything back apart from soya and dairy and by 13 months I was down to 4 wake ups a night, 15months 2 and off all medicine and back on dairy and soya and by 2 was sleeping through consistently. What I didn't realise was his nappies were still bad, I just assumed it was normal as I'd never had a baby before, only when I started to potty train did I realise he didn't have any control of his bowels and that they were looser than they should be and finally as things got worse and worse we're full of mucus. Long story short back to private paed, turns out he has a major gluten intolerance, we are just reintroducing other allergens and he is back on ketotofin and fingers crossed it seems to be working.
My dd had sever silent reflux but no real poo issues but lots and lots of foul wind, treatment has been the same, lansoprezole and ketotofin and cut major allergens with the hope of improving reflux which it has, sleep is still bloody awful but she is still reacting to something so have cut more from our diet to try and get to the bottom of it.
Reflux and diet go hand in hand and a good paed will support you with this. Unfortunately my experience of nhs support with This is awful (currently complaining to pals) but the private support has been second to none.