What can be done about endometriosis? Or do women just have to put up with it?

[BigSandyBalls2015]

DD feeling very down as she seems to be going round in circles with GP. Very heavy painful periods .. to the point of nearly passing out. Had internal ultrasound and diagnosed an ovian cyst and said endo was ‘very likely’ but they can’t diagnose it without a laporoscopy. Waiting list for that is long (end of the year if not longer). And even then, once it’s diagnosed what can they do?

DD said they aren’t really interested until she wants to conceive (she’s 20). And what about the cyst? Shouldn’t they be doing something about that? Can it burst?

I’ve contacted my private insurance and all they’ve suggested is X-ray/ultrasound again which will use up her allocated allowance 🤷🏼‍♀️

Any views/ideas

I was 20 when I received a very off handed diagnosis of endo. Did a surgery to remove large dermoid cyst which had a large rupture risk, and during the laparoscopy they found endometriosis. Very little, the doctor said, barely there. They cauterized it.
Did explain all the misery I've had since getting my periods.
Like some other posters, I'm on the pill. I hate needing it, though - I'm not the best at remembering to take it (thank god I don't need it as contraception) and whenever I miss one dose, I have very annoying breakthrough bleeding. I'm currently at week 2 of it.
I tried cerazette, hoping to later but an implant so I didn't have to remember taking the pill every day, but bleeding hell, my body did not like it. My hair fell in chunks, I felt terrible, so I went back to the pill.
I've seen some gynaes privately, and they strongly recommend the mirena coil. DM was on the coil, however, and essentially had a 3 year long period with it, so I'm terrified of putting it on me and having the same symptoms.
I repeat what a previous post said about surgery - I had two glorious, pain free periods, and by the third one the pain was back, if not worse. My GP thinks the scar tissue stuck together. So worth considering.
Really hope your DD finds something that helps her.

Also worth noting is that there is research being done. I met a wonderful researcher a couple years ago who worked on PCOS and Endometriosis, both treatment and non-invasive diagnosis (through menstrual blood!). Of course, that's very early days until something is actually made for it, but maybe I'll get to enjoy the fruits of this research before menopause hits.

Hi all, DD is booked in for a laporoscopy in June … through private healthcare that my work pay for. Doubt it will cover it all, but it will help. The doctor that DD saw also suggested the coil being fitted.

So what can she expect with the op - if they find endo, they'll presumably try and remove as much as they can? What is the recovery like. She's concerned that she has to go in alone, due to covid rules. Is it likely to come back at some point? I see from PP that this isn't always the case.

I have a condition that is related to excess oestrogen.

I switched to hemp milk because it is the only milk that has no effect on oestrogen levels. Waitrose sell it.

It has a slightly higher fat content but I can live with that. I am also advised to avoid soy products.