Cystitis - how to treat?

[cystitis101]

Have got what I strongly suspect is a UTI... have to handle in a sample to surgery at 9.30 (once bladder has filled up again) but I’m in agony .... can’t sit still for shaking in pain and can’t stop spasms in my tummy . Have been for a wee eight times since 7am and no let up . Wee full of blood . Have taken cocodamol, ibuprofen, a litre of water and a cystitis sachet to no effect ... what can I do? GP surgery said just to try to sit it out in the loo or sit on a bag of frozen peas . Never felt so uncomfortable in all my life, and I’ve been through this hundreds of times before but never this bad . GP receptionist said don’t panic, just get sample down to them ASAP . But have only just peed ten minutes ago so can’t do just now .

As your GP has been pretty useless, I'd contact 111 and get an appointment with out of hours or just go to the local out if hours service if they walk up. It sounds very much as though you have an infection and the antibiotics just have been strong/long enough to knock it on the head.

If you have a relatively small struvite stone (these are more common in people who catheterise) it could explain the ongoing pain. The way to diagnose this is through CT/ultrasound. Struvite stones grow in size quite quickly. Your GP is treating you for infection as you aren’t presenting in horrific pain, but they have no way of knowing if you have a stone or not. Stones can present with consistent grumbling pain that suddenly gets dramatically worse (although it’s more common to have sudden onset severe pain) so I would press to get a scan to rule out that happening.

You have all the classic signs of a stone:

www.healthline.com/health/symptoms-of-kidney-stones

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[quote Inthemane]If you have a relatively small struvite stone (these are more common in people who catheterise) it could explain the ongoing pain. The way to diagnose this is through CT/ultrasound. Struvite stones grow in size quite quickly. Your GP is treating you for infection as you aren’t presenting in horrific pain, but they have no way of knowing if you have a stone or not. Stones can present with consistent grumbling pain that suddenly gets dramatically worse (although it’s more common to have sudden onset severe pain) so I would press to get a scan to rule out that happening.

You have all the classic signs of a stone:

www.healthline.com/health/symptoms-of-kidney-stones[/quote]
Funny that was exactly what I was thinking , that it was possibly a stone . Especially when they’re saying that urine isn’t showing any growth in the lab . Fits with my history of neurogenic bladder too . I’m not sure who would best sort that though, I Presume 111 if still off tonight . GP usually just get a nurse to phone who puts everything down to anxiety or google. It’s a weird niggle in my left side as if the muscle is pulled but it isn’t . Did that a week ago for 24 hours and I thought then that I was looking at a stone - urine was gritty after - but not sure.

Will keep an eye tonight and if no let up or worse will ring 111 .

Three infections at once - one was multi drug resistant, second was fairly drug resistant; third was a vaginal infection . Have to do repeat sample tomorrow and swabs . Nurse said they’re surprised I managed as long as I did . Also said it’s the third infection since Jan so they’re speaking with hospital to try and figure out what’s bringing them on so often . They don’t think it’s necessarily a stone but said will keep a very careful eye for a bit and see what happens . It’s getting balance between catheter associated infection and retention associated infection I suppose .

Hi, just saw this, no wonder you’ve been feeling so dreadful! Glad they’ve identified the three types and hopefully can find out what’s causing them. Fingers crossed you’re feeling better