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Dad in ICU on ventilator... with one lung

20 replies

LavenderBee · 05/04/2021 09:25

My lovely dad had a pneumonectomy at the start of this year due to cancer. He’s an amazingly fit and active, positive man and made a brilliant recovery. But 2 weeks ago he had huge breathing problems and ended up in ICU on a ventilator, where he has remained ever since. It’s not Covid and they are treating him for pneumonia and sepsis. We haven’t been allowed to see him but were called In two days ago to see him as he got suddenly worse... then he stabilised when we were there (still critical)! He’s still needing almost maximum oxygen from the ventilator and is in an induced coma. It’s an utter rollercoaster. Along with my own fears and hopes, I’m having to manage the expectations of my close and wider family, my sons who he’s been like a dad to, and my dads many supporters, as well as wondering do I work or just take time out... I absolutely need to be there for my dad if the end comes...As well as supporting my mum. This isn’t a thread of Poor Me, just wondering if anyone has any similar experience, advice or tips on how to cope? Thank you 🙏🏼

OP posts:
Thatwentbadly · 05/04/2021 09:31

Day by day is the only way. My Mum was in CCU (coronary ICU) for over a month over 10 years ago. We were originally told she probably wouldn’t survive but she has.

Remember they don’t put people in ICU aid they don’t have a chance of survival.

Lupinhere37 · 05/04/2021 13:37

So sorry you’re going through this @LavenderBee. This was incredibly difficult for me several years ago, with no pandemic complicating every issue. Must be horrific now and my heart goes out to you.

Some practical suggestions. Set up a WhatsApp group, Facebook or group text (thinking about older folk and what they may use) for all who need to be/wish to be kept informed. Tell them you’ll update when you get any news because it’s really difficult to keep everyone updated otherwise. Tell them you appreciate their concern and support because when restrictions hopefully relax, you may be glad of help from some of your dad’s supporters. Your mum certainly will need them.

Separate WhatsApp for close family, where you can discuss logistics, make decisions together quickly etc.

Allocate one family member only to communicate with the hospital. As an ex nurse myself, it’s sometimes frustrating when multiple family members call in for info, especially during busy periods of time. Also, the more that call, the more that can confuse the story. So pick the best person to represent you and your dad and agree that together. As per previous suggestion, hard facts on WhatsApp, so everyone knows at the same time. This will then prevent any family disagreements. And trust me; these happen at times of stress, even in the most friendly of families.

ICU was never my field, so no practical advice there as I don’t know enough about it. But don’t be afraid to ask one of the nurses if they think you should make a phone appointment to speak to your dad’s hospital consultant.

Remember to ask the nurses if your dad needs anything practical delivering to the ICU.

Finally, find a friend or family member who you can talk to. Don’t keep your feelings bottled up. This could be a long haul, so find a way to keep yourself mentally strong enough to take each day as it comes.

I hope all ends well Flowers

normalsaline · 05/04/2021 13:53

@Thatwentbadly

Day by day is the only way. My Mum was in CCU (coronary ICU) for over a month over 10 years ago. We were originally told she probably wouldn’t survive but she has.

Remember they don’t put people in ICU aid they don’t have a chance of survival.

she’s right about the fact that he’s been given an ICU bed; it’s a positive sign that they’re hopeful he will recover

look after yourself Flowers

LavenderBee · 05/04/2021 18:36

Thank you for the replies and some really good practical advice there. The consultant has just called to say that nothing they are trying is working and to give it a few days and then see if they are really still treating him... very sad 😢
You are so right... this is awful but in a pandemic it’s been so very tough too. Some of life is so very sad. Thanks for taking the time out each of you x

OP posts:
Lupinhere37 · 05/04/2021 22:56

@LavenderBee, sorry to hear your update. Let’s hope he turns a corner in the next day or so.
Thinking of you and sending you strength Flowers

DaisyDreaming · 06/04/2021 02:06

We had a sort of a similar experience (icu, on a vent, missing most of one lung). A white board at home to aid communication between us and to write up who rang or details.

I kept a diary which helped us look back at things

Hanging on with both hands to hope

Trying to keep a normal routine going of some sort, even if its just getting up and showered and having dinner around the table together

Visit as much as allowed (thankfully there was no restrictions back then).

Don’t be afraid to ask questions although it’s hard when you don’t know what questions to ask. I explained to his nurse that I like full and detailed updates and explanations. Not good for everyone but for me tracking the vent pressures and how much help he was needing it was very reassuring (apart from a few bad days).

Accept any support offered

Thinking of you. My relative was in his late 70’s and is now in his 90’s. He never made a full recovery but has a good qualify of life for his age

LavenderBee · 07/04/2021 22:22

Thank you all. Sadly my lovely dad died yesterday 💔

OP posts:
Tatum1234 · 07/04/2021 22:23

I’m so sorry x

Serena1977 · 07/04/2021 22:26

I'm very sorry for you all.

LagganBubble · 07/04/2021 22:26

I'm so sorry for your loss Lavender. Losing a parent is so, so difficult. 💙

FinallyFluid · 07/04/2021 22:29

Oh darling.

nocoolnamesleft · 07/04/2021 23:10

I am so sorry. Thinking of you and your family.

megletthesecond · 07/04/2021 23:14

Oh I'm sorry to hear that Lavender. X

Frogartist · 07/04/2021 23:14

I am so sorry.

Lupinhere37 · 08/04/2021 00:09

Oh no @LavenderBee I’m so sorry to hear this. Such a difficult thing to go through but particularly during these tough times. Your poor dad; so sad for your mum. Take good care of yourself. Flowers

TweezerMay · 08/04/2021 00:20

I’m so sorry Lavender. Take care of yourself.

1WayOrAnother2 · 08/04/2021 00:26

Flowers So sorry to hear this Lavender. He sounds to have been a wonderful father and a good man.

Fullmoonequalsnosleep · 08/04/2021 07:07

I’m so sorry 😢

LavenderBee · 09/04/2021 22:46

Thank you all for your kind words. He was a wonderful father and a lovely man. I didn’t know it would feel this deeply sad. Makes me value everyone that’s left even more. Love to you all x

OP posts:
HarrietLong · 09/04/2021 22:58

I am so sorry Flowers

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