Fatigue or more than that?

[CheekyWeeShite]

I was diagnosed with ME years ago, I’ve always doubted it’s that to be honest. I also have endometriosis and adenomyosis but had really severe fatigue for several years.

Despite being at home most of the last year with our twins, it hasn’t actually been too bad - I found out I was deficient in a few things and have corrected that and I’ve felt more well. Last couple of weeks the boys have been at school and rather than needing to rest I’ve been working. I’ve been doing well.

Then I have phases like today - it’s hard to describe but I feel like I’ve been poisoned, like something is up internally and I’m being drained. DH got off work early and made their dinner etc as I can barely move. And I have no idea why.

I’ve had plenty of blood tests in the past - no issues. But I guess maybe I need to somehow get bloods done on a day like today when I feel like this? I’ve always been suspicious that it’s my thyroid as my symptoms are quite typical but although I’ve had a few elevated TSH levels (not out of normal range but close) it then goes back to normal.

I have a smart watch so I know my BP and pulse are okay, temp is fine. I even checked my blood sugar as one of my boys has hypoglycaemia but totally normal. I just feel so ridiculously ill. But it’s so hard when it’s non-specific.

I feel so down as I’ve been doing so well. It makes no sense for me to feel like this now when I’m expending a lot less energy than I have been most of the last year.

ME is awful.
rather than needing to rest I’ve been working. I’ve been doing well

And on these days you do lots of things which, if you have ME, leaves you wiped out as you have used too much energy. It’s frustrating having to pace yourself but if you do too much on your good days you can then get a flare up. If I am busy (for me) for a day or two it can wipe me out for several days.
I can’t remember where I read it but people with ME tend to have low Vitamin D, low B12/folate & Ferritin. Things may be in ‘normal’ range but, if low end, you can still suffer symptoms of deficiency until you are in the upper range of normal. I do have all the above and an underactive thyroid and work hard to keep things at the top end or normal but it doesn’t help much. It would be worth getting print outs of your results so you can see where your levels are in your labs reference range.

I often say to DH that I can’t believe there isn’t something seriously wrong with me because it’s impossible to feel this awful and there be nothing physically wrong

I really know that feeling. It seems impossible to feel this awful and have normal blood tests doesn’t it?

Correcting my folate and vitamin D has had a massive impact and I’ve been feeling so much better which is why I’m so upset today. I was fine this morning and then I just nose dived.

Thing is the work I’ve been doing has been quite leisurely (very small business, just been doing bits here and there) is nothing compared to how hard the last year has been. It just doesn’t make sense to me that I feel like this but now didn’t a month ago after ages of no rest / respite. I can’t get my head round it.

Will see how I am tomorrow I guess - maybe I need to ask for blood tests again, it has been about a year since I had any done. Maybe my iron is low as my periods are heavy but it has been fine before.

It’s so hard to explain but it feels like something fundamentally wrong with the way my body is working which is why I checked my blood sugar when I never have before. It’s so weird. Almost like my insides are running too quickly?! So hard to describe.

I too have ME- had 4 days now of feeling like I'm dying, in a weird fuzzy haze of exhaustion with vertigo and delirium. I know what you mean when you say you can't believe there's nothing actually wrong, it's insane how unwell you feel isn't it!

Might have to call the doctor tomorrow as I can't keep on like this, I'm trying to get a degree ffs.