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DVT advice please

14 replies

MyNameHasBeenTaken · 10/02/2021 14:19

Hi. I have spent the last 2 days in hospital, so had good medical advice.
But I would like to hear from other people about how long it takes for the swelling to go down? When will my leg be more mobile? Anything I can do to quicken this?
I have been given some platelet tablets and I am taking them.
I have been given some "flight socks" but no advice on when to wear them or how long for?

OP posts:
Redshoeblueshoe · 10/02/2021 16:09

I don't know, but I'm bumping this for you

MyNameHasBeenTaken · 10/02/2021 20:08

Thanks red

OP posts:
DogsSausages · 10/02/2021 20:16

How did you get the DVT, do you know what tablets you are on, is it warfarin, poor you.

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DogsSausages · 10/02/2021 20:18

I would ask the staff if they have a DVT clinic in the hospital

MyNameHasBeenTaken · 10/02/2021 20:20

I believe it was caused by a strange incident involving sleepwear .
I think I slipped down into my pjs as I fell asleep. Woke up with a side of leg wedgie
Right where they found the clot.
Not warfarin.
Apixaban I think.
And penicillin just in case.

OP posts:
DogsSausages · 10/02/2021 20:36

I wasnt expecting that reply. Wow.

Sn0tnose · 10/02/2021 21:56

I’ve had several. My last one was two years ago.

Unfortunately it’s one of those ‘how long is a piece of string’ questions. Some people are fine within a week or two. Others have effects for years. I was given surgical stockings during my first hospital stay and took them off when I was discharged; they’ve never been suggested since. It’s my experience that you get more information from other people on social media than you do from doctors. There are some good FB sites for people who are on your medication. Some are American which is very good in one respect as they seem to see far more specialists than we do in the UK who give them far more information, but they do tend to do an awful lot of praying and thanking God etc. You do have to be careful you don’t frighten yourself with too much info though.

I’m on Apixaban (Eliquis) for life. I’ve found that they’re the best ones for periods (periods and blood thinners are not a great combination). If you have any questions, feel free to ask.

murasaki · 10/02/2021 22:44

I developed 3 in the summer. 3 days in hospital, and it took about another two weeks after that before I was walking normally and the swelling had gone down. I'm on rivaroxaban for the foreseeable, one per day with oily food. And trying to walk more. They haven't pin pointed a cause, even with extra blood tests to check for genetic markers, just having a shit wfh chair (now rectified from work) and not moving enough. Good luck with your recovery!

murasaki · 10/02/2021 22:45

OH, and get an inflatbale cushion for your bed to raise your leg while sleeping. that helps.

MyNameHasBeenTaken · 10/02/2021 23:51

Thanks all.
I think some4hing is starting to work
I can bend my bad leg a little now
And it isn't rock solid.
I was given flight socks as I was discharged. Just opened the bag to look at them now and it says I should wear them 24/7 apart from /2 an hour when I have a wash .
I have stayed in bed all day, only place I can sit with my feet up!
Flight sock is actually quite comfortable

Not looking forward to my next period!
Any tips? Please dont suggest sleeping in pjs

OP posts:
Sn0tnose · 11/02/2021 10:11

Get the most absorbent san pro you can find. Night time plus last me about an hour max before needing to change for the first day or two. Put some old towels on your bed too (and maybe your sofa). You’ll probably be fine, everyone is different and, having been on both, Apixaban is definitely better for periods than Rivaroxaban, so you could breeze through it.

You need to be careful about what other medication you’re taking. You can’t take Nsaids, so paracetamol is ok, Anadin and ibuprofen are definitely not ok. Your chemist will help you with this.

Be careful about crossing your ankles, you absolutely shouldn’t be doing it. Move about as much as you can and when you’re still, keep your leg elevated.

MyNameHasBeenTaken · 11/02/2021 10:32

Thanks.
I have been taking ibuprofen as nobody told me I cant!
Some days on a normal period I can soak through a night time towel in 90-120 mins.
I hope I haven't made things worse with ibuprofen??

OP posts:
Sn0tnose · 11/02/2021 12:04

I’d definitely be prepared for the worse. It does get easier once you know what to expect and, hopefully, you won’t even notice a difference. If you start to lose too much though, you’ll need to talk to your doctor. My haematologist told me that there were no studies on how blood thinners effect periods but that she had heard anecdotal evidence that there was a definite improvement with Apixaban.

That’s the problem you see, nobody tells you anything! I read the entire leaflet that came with the box and also have the most fantastic local chemist who went through it with me when I picked up my first prescription. NSAIDs are definitely a no no.

On some of the fb support groups, people in America are told not to eat various foods (watermelon is the only one that has stuck in my head - I can’t remember the effect it has). There’s a much more detailed standard of care there than in the UK (probably because it’s billable).

Also, Apixaban can cause problems with your liver and kidneys. If it’s just a one off you’ll probably only be on them for six months or so, but as a long term taker, I have to have blood tests every six months. I was never much of a drinker but if you are, you might want to ease up a bit (alcohol also thins the blood, as do many other things, like aspirin).

I’ll also just say that if you’ve had one, it does increase the risk of another in the future. If you ever get any similar pain or feelings of breathlessness, never ever ignore them. Some doctors are under the impression that you cannot suffer another clot if you’re taking thinners. From personal and anecdotal experience I can tell you that it can and does happen, so never let yourself be fobbed off!

MyNameHasBeenTaken · 11/02/2021 13:21

Thanks sn0t.
Is there a 'safe stage" to return to work?
I am off for the rest of this week. And next week is half term. I am hoping to be ok after half term.
My bad leg feels a lot warmer today. It was freezing yesterday.
My thigh is still pretty solid. But my shin is a little bit softer

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