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Paralysed Mum home soon from rehab

4 replies

Kissthepastrychef · 08/12/2020 18:59

I could do with any advice, tips. Mum nearly died in august in a massive stroke. She is right side paralysed and has aphasia. We don't really know how much she understands as the physios struggle to get her to follow anything but really simple instructions
I'm not really sure what I'm asking to be honest, maybe any experiences of those early days. She is on soft/bite sized diet and I'm keen to try and include as many of her preferred dinners as I can within the guidelines. Dad is terrified about her coming home and not understanding if something is wrong. We will have carers 4 times a day to start

OP posts:
KihoBebiluPute · 09/12/2020 09:45

Are you sure that her coming home is the best decision? That sounds like an extremely challenging situation. If you are going to need more support, or if residential care would be a more realistic solution, it will be far less of a nightmare to make that happen if you dig your heels in now. If you agree to a setup that might not be enough support, and find you are overwhelmed immediately, it may nevertheless be ages before you can get anything better in place.

TheSockMonster · 09/12/2020 09:51

I am so sorry for what your family is going through Flowers

Do you have privately arranged and paid for carers or carer visits arranged by the hospital? I’m sorry to be negative, but if it’s the latter you may not have as much help and support as you are expecting and, they may well be under pressure to reduce support as soon as your Dad is perceived to be ‘coping’ by himself. We had some experience of this with my Great Aunt, who fortunately had enough savings that we were able to hire our own carer (who was amazing!)

Please don’t be pressured into bringing her home if you’re not sure your Dad can cope.

OhCormoranAllYeFaithful · 09/12/2020 09:55

My relative had a very similar stroke, and her speech, mobility and understanding were extremely limited.

She lived alone, and while they considered carers four times a day it was decided residential care offered the safest option for all her medical and care needs.

Do consider asking for this option, it may be the best thing for your mum and your dad in the circumstances.

Sideorderofchips · 09/12/2020 15:06

Bumping this for more help for the op

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