Anyone else experienced this?

[Stitchyfingers]

Posted in children's health but also posting here for traffic.

I posted before in a different area and have come a little further but still searching for answers in my investigation as doctors seem baffled.

My DD, almost 4 months, keeps having choking episodes where she stops breathing for anywhere up to one minute. They started when she was 5 days old and were happening once every fortnight or so but is now having several a week.

To us, it looks like she's struggling to swallow excess saliva when waking up from naps. She'll wake up in a panic unable to breathe, arms jerking almost rhythmically requiring a good pat on the back to help her clear the liquid. It can be up to a mouthful of clear liquid that is released. She also sounds quite raspy when she breathes but has an unrelated lung condition that it could be linked to.

We've been admitted to hospital twice and had several tests done for seizures etc but all have come back normal. Originally they thought reflux but it always happens 2.5 - 3 hours after feeds and is never milk that is brought up.

I'm not sleeping at night anymore as she's so quiet when it happens and I'm terrified she'll stop breathing. Has anyone else experienced anything like it?

How scary for you.

My DD has always stopped breathing when asleep, sometimes for a few seconds, sometimes for 10-20 seconds, but she was born very early and it was thought to be because of her prematurity.

She still does it now at 13, and also snores very loudly, she’s a mouth breather too.

She did a sleep study when she was 4, and it didn’t find anything wrong.

We had an angel care monitor which went off when no movement was detected, which did give some reassurance but I still slept very little for the first few years of her life.

I would ask your GP to refer you for further testing, you need peace of mind and I remember those nights sitting staring at my baby. I still go in and poke her 3 times a night 13 years later!

Thank you for replying and sharing your experience ☺️

We've just invested in an angel care monitor for peace of mind which is helping.

Thankfully our GP and the consultants at the hospital have been pretty good and we're back in the new year for more tests.

I know I won't get any answers here but I'm just trying to see if anyone has had a similar experience. Of all the people I've spoken to so far, none have seen anything like it.