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I've had tinnitus for 5 weeks, think it's getting worse. So scared.

39 replies

FeatherySquawkington · 18/11/2020 17:57

I'm not coping very well with the fact this is probably permanent. I have two noises, one a middle pitched tone that fluctuates slightly up and down and a constant very high pitched noise. I think the high pitched noise is getting louder. Got an ENT appointment next week but fully aware there is nothing they can do really. I don't want this forever 😭

OP posts:
Littlefish · 18/11/2020 20:11

I saw an audiologist this week. I have tinnitus (high pitched). The audiologist said that tinnitus is exacerbated by caffeine.

FeatherySquawkington · 18/11/2020 20:20

Don't drink caffeine, alcohol and don't smoke either. There is something going on with my jaw/muscle but probably not treatable.

OP posts:
SelfMadeFantasist · 18/11/2020 20:21

I don’t know how long I have had tinnitus as I seem to have heard whooshing sounds forever, but it has definitely got worse over the last five years or so. Mostly it’s like a fridge humming away in the background, the pitch varies from medium to high, with a bit of radio static added to the mix. It sounds louder when I’m stressed, and also if I start to «listen» to it. I try to concentrate on something else and filter it out.
It’s essential not to fixate on it, as the more you think about it, the more intrusive it becomes. It’s a very annoying and frustrating affliction.

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Echobelly · 18/11/2020 20:33

Have you seen a tinnitus specialist? I had it and was told by a GP I had damaged my hearing and never to go to loud places again (which was harsh as I was 21 at the time and loved clubbing and gigging)

When I saw a specialist after several miserable months he showed me my hearing was fine and that what I had was an anxiety issue of 'listening in' to my tinnitus - not hearing damage or a permanent problem, which sounds like it might be what you're experiencing if you're 'tuning in' to it at night. I was able to get rid of it within a year

It's private - I don't know if there is any CBT help like this on the NHS, but the clinic is here tinnitus.org/

FeatherySquawkington · 18/11/2020 20:39

Thank you @Echobelly, that's very helpful. I'll look into that. NHS waiting lists are ridiculous currently, I would have to wait until May to see an ENT consultant with them. I'm having to pay and see one privately.

OP posts:
firesong · 18/11/2020 21:05

I have this too! Between lockdowns, I saw a Chinese medical practitioner and she used acupuncture. For about two days, the tinnitus was WORSE but then it vanished. Now I still have a little, but nowhere near as bad, and probably what I have always had when I haven't paid attention.

firesong · 18/11/2020 21:06

Oh and yes, I have something with my jaw too, one side is quite locked. Been like that for years.

timtam23 · 18/11/2020 21:08

I have a very high-pitched tinnitus in one ear following a shingles infection about 4 years ago. It has improved quite a bit, or maybe I notice it less. It seems worse in cold weather or if I'm stressed/tired/run down. Also more prominent at night when it's quiet. Distracting myself helped quite a bit. And having other (quiet) noises in the background. I did despair of ever getting used to it at first, and I was not helped at all by ENT, but over time it has become less upsetting for me.

Icenii · 20/11/2020 14:55

How are you? Its our 10th anniversary today but the ringing is so loud I can't bare it. Starting to feel dizzy too.

FeatherySquawkington · 20/11/2020 20:14

@Icenii Happy anniversary, sorry that the ringing is bothering you still. I managed to cope quite well with it yesterday but another bad day again today. I keep panicking that it's getting worse but I think it's just because I'm focusing on it. It's so so difficult to not think about it when it's all I can hear, practically impossible. So I'm working on 'not being bothered' about it when I hear it, e.g it's just a noise, isn't harming me, I can still do stuff, etc. I so wish it would go though!

OP posts:
FeatherySquawkington · 20/11/2020 20:15

I've been feeling off balance on and off for a few days too.

OP posts:
bellalou1234 · 19/12/2020 17:15

I had it when I was in my third year at uni! It was a high pitched tone that went higher then lower.. it's now gone but comes and goes from to time. More often than not its when I'm stressed

DianaT1969 · 19/12/2020 17:59

OP, I have no knowledge of this, but might Botox be used to loosen your jaw muscle?

Starrr123 · 11/11/2021 09:07

@Icenii hi!! I am wonder how is your ear ringing! I have the exact same symptoms with nevk and jaw! Just wondered how your getting on? Mines nearly lasted for 2 weeks x

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