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vegan meals and IC

5 replies

starterfor11 · 12/10/2020 16:23

I wanting to go vegan but have interstitial cystitis which means I have to avoid tomatoes and anything spicy. Does anyone have any meal suggestions?

OP posts:
starterfor11 · 12/10/2020 21:10

Bump

OP posts:
Fifthtimelucky · 12/10/2020 23:28

My 'go to' vegan meal is risotto made with mushrooms, leeks and butternut squash. If I'm not making it for a vegan I use butter and Parmesan cheese, but it's also good with olive oil and vegan substitute 'cheese' made from ground up cashew nuts and nutritional yeast.

BewilderedDoughnut · 12/10/2020 23:44

@starterfor11 there is no such thing as Interstitial Cystitis. The vast majority (as in almost ALL) of us with this diagnosis are now being diagnosed with Chronic UTI. Chronic UTI can be treated and it can resolve, it takes about a year.

www.chronicutiinfo.com/chronic-uti-facts/chronic-uti-explained/

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starterfor11 · 13/10/2020 13:30

Thanks @BewilderedDoughnut it is a struggle to get treatment. The urologist has just said that it is IC and you have to live with it and modify your diet. Have you managed to get treatment for a chronic uti when urine sample come back with no growth a d urine is clear on dipstick?

OP posts:
BewilderedDoughnut · 13/10/2020 14:45

@starterfor11 I promise it’s not IC! I spent 14 years thinking I had IC. Urine cultures miss 50% of urine infections. Healthy bladders are teeming with bacteria too so even if they did find bacteria it is of no clinical significance. No way to tell if friend or foe. Dipsticks are worse. Tools not fit for purpose which is why there are so many women like us who are being let down.

If you possibly can... I’d seek treatment with Professor Malone-Lee’s team in Harley Street (that’s where I am). They are life changers and have the evidence based research to back them up (you can self-refer).

There is an NHS option too at the LUTS Clinic in Whittingham Hospital. Hopefully your urologist will refer you if you ask.

Never let anyone say IC to you again! That diagnosis is dead! 🙂

If you follow @JoanneMcKinlay4 on Twitter, there are links there to the Facebook support group. She’s amazing!

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