Can I ask if anyone has had any experience of a first appointment for a diagnosed tumour (yet to be diagnosed as to what it actually is although it's a suspected desmoid tumour)?
Background to this is I started experiencing some discomfort in my right lower abdomen (it runs about 1.5 inches off my c section scar) about 8 weeks ago. Had a burning/stinging pain which would come and go.
I contacted the GP about 2 weeks ago as I thought maybe I had a small hernia and I have to use an anal irrigation system (water up the bum each day to stop incontinence after huge spinal cord issues) and thought it best to get it looked at.
I went for an ultrasound on Saturday where a consultant radiologist took one look at the offending area and said this needs a referral, speak to the GP on Monday. So spoke to a doctor this morning who said it's a tumour if some sort, probably a desmoid tumour. Hence much googling. As it's a connective soft tissue tumour they are referring me to dermatology with a view of involving other specialists. It's come as a bolt out of the blue after a horrid 10 months after I developed Cauda Equina syndrome.
I'm unsure as to what the appointment will bring, and wondering if this initial appointment could be one I went to alone or if I should take my partner. He doesn't get paid for taking a day off so if it's further tests there is not much point in him coming however I would prefer him there if I was to get a firm diagnosis.
If anyone has been through similar or knows the next steps I would really appreciate an idea of what will happen. I think I'm just take a back at the speed of everything and feeling very unsettled this evening.